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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@Zoe7 @Shaz51 I wish I could turn my hearing off and on 🙂 would come in so handy. I would also love to learn sign language. I know a bit but because I dont need it not enough.

In response to: Re: A long rave

Re: A long rave

We have a teacher on one of the prep classes that knows sign language @Bunniekins and teaches the kids. I have picked up a little along the way from her. A teacher I worked with at the other school taught our two classes the National ANthem in sign language - the kids definitely picked it up much quicker than me

In response to: Re: A long rave

Re: A long rave

ha ha @Zoe7 , @Bunniekins i love turning my hearing aide down as i cant hearing mr shaz snozing xxxxxx

In response to: Re: A long rave

Re: A long rave

@Zoe7 yes I learnt basic when I was a special teachers aide at a special school. It was fun making the motions for the words pig, dog and cat for example. I really enjoyed it and you are right kids pick up things so much quicker than us oldies 🙂

In response to: Re: A long rave

Re: A long rave

haha @Shaz51 That would help drown out the snoring

It sounds like you remember a bit @Bunniekins so you aren't starting off from scratch. I love the sign for kangaroo - and so did the kids. I had to watch the video of the other teacher signing many times before I got it all lol What have you been up to today?

In response to: Re: A long rave

Re: A long rave

@Zoe7 Busy day Zoe7 now since I have support workers. I went for an hours walk with worker and then did some cooking. Son2 has been sick and manic now for a few days so daughter and I are exhausted. She said she wants him back on his old medications but I prefer him being a bit manic and alert than being like a zombie .... it is hard to find a middle ground. He has just headed off to a disco which is great. Hopefully he will have a great time. He has an awful crush on this girl and I think she is going to hurt him ..... which is really sad and upsetting but what can you one do.

In response to: Re: A long rave

Re: A long rave

That is really tough @Bunniekins Hard to find that middle ground at the best of times but with such extremes in his behaviour it is even tougher. I can imagine being on constant alert is so draining. Hope you get some time tonight while he is out to look after the little pea xxx

In response to: Re: A long rave

Re: A long rave

Hi @Zoe7 @Shaz51 @Bunniekins @Angels333 @Appleblossom @Teej @Adge @CheerBear @outlander @Faith-and-Hope @Mazarita @Meowmy @frog @MDT @TAB @Snowie @Former-Member @Sans911 @oceangirl @Gazza75 @Hope4me and anyone else who's been supporting me lately - I had some fantastic news today ..... my new NDIS plan came through (without the delay I feared) and it's for 2 years and only very slightly reduced from this past year. Celebrations here tonight! Thankyou all so much for your supports over the last 6 weeks or so. It really meant a lot to me to be able to talk about it here while the build-up was happening.

WOOHOO!!!

Now I can actually start to plan my weeks again. And feel hopeful of steady progress.

In response to: Re: A long rave

Re: A long rave

Wonderful news @eth Doing a happy dance for you

In response to: Re: A long rave

Re: A long rave

congrats @eth . Well deserved. I’m so glad it’s two years. 💜🤗

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