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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Ok @Bunniekins I get it. Will your psychiatrist write a report for you that explains the necessity for the current MH worker? I think the problem could be NDIS saying that the current MH worker would be funded by 'mainstream' sources, but if your report says that wouldn't be continued it could be helpful. Basically you have to prove that you have exhausted all mainstream funding options. Another possibility could be getting the current worker to register with HireUp and then book them directly through there. If you are plan managed or self managing you can use workers who are not individually NDIS registered. I have 2 sw's that have gone onto HireUp for me so I can keep working with them.

In response to: Re: A long rave

Re: A long rave

@eth Thanks for that eth I will bring up what you mentioned at the meeting on Thursday. Every bit helps. It is all very stressful. I trust that the mh worker and the support co ordinator are working hard at getting it organized but I can see time ticking away. They keep telling me not to worry but they have had other clients of which this has happened and they are still working on sorting it all out for them.

In the meantime I am still waiting on my son2's application to be approved .... his current plan ends in late April. I love how these b@stards leave everything to the last minute just to stress the client out.

In response to: Re: A long rave

Re: A long rave

I totally agree about your second paragraph there @Bunniekins It just peaks out your anxiety and exacerbates the daily struggles. There is so much wrong with the system. And it seems NDIS lost a chunk of $$ in the budget just handed down, so it will probably get even harder to get in with them.

In response to: Re: A long rave

Re: A long rave

@Bunniekins I have another wave of tiredness coming over me so will go back to bed and get a little more shut-eye. Take care and have a pea-ceful morning xx

In response to: Re: A long rave

Re: A long rave

@eth You know what eth all through my son2's life since the age of 2 1/2 I have been fighting for funding from one government department to another. It is like his condition will never change he will always need funding of a high degree due to his disabilities but oh no they make you prove it again and again. It is soul destroying.

In response to: Re: A long rave

Re: A long rave

@eth sleep well eth 🙂

In response to: Re: A long rave

Re: A long rave

@Bunniekins xx

In response to: Re: A long rave

Re: A long rave

Morning everyone 🙂

I think daylight savings ended here (yay for digital clocks that automatically change the time - I should probably know whether we've gained an hour today haha!). We're away at the moment but I'll be heading between here and home to feed some cats as they need.

It's a beautiful but very cold morning. I was woken by a puppy who was so excited to have us sleeping over she had share some pouncing, licking love. I picked her up a unicorn hoodie recently and think it might be the weather for it today -any excuse to dress a dog up as a unicorn really 😉😆🐶🦄❤

Hope it's a good day for all 😊

In response to: A long rave

Re: A long rave

Good morning to all passing through this thread @Bunniekins @Mazarita @CheerBear @eth @TAB @Exoplanet and anyone I have missed.

I loved having the extra hour's sleep - got up super early as a result of the change in times but had another nap this morning to compensate A quiet day planned here - the usual housework, school work and furbaby snuggles on the agenda but not much else planned. It is only a week until school holidays so I will can wait until then to do other things that need to be done.

Have a great Sunday everyone

In response to: A long rave

Re: A long rave

Sorry @Bunniekins I'd crashed again, got 6 hrs last go wow .. um yeah I revisit same places, have same, similar dreams. I like it when find self in familiar places well in dreams

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