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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hey @CheerBear and @Zoe7

I have my 2nd bridge lesson at the bridge club this morning. Early start for me - getting picked up at 9am - going there via Shebah ride and getting a lift home with some other players afterwards. They will most probably drop me off around the corner from home - doesn't sound like much when I write it but THIS IS HUGE for me - I'll be walking home alone. It will be the farthest I've gone walking by myself in over 2 years. Then cooking for 5 at the end of the day.

What do you both have on today?

In response to: Re: A long rave

Re: A long rave

Morning @Zoe7. Hope work is good for you today 🙂

@eth that's awesome to hear! Sounds like you're in a really great place as far as trying out new things and stretching yourself beyond your normal. How much of you being able to do these things do you think has been influenced by the support you receive through the NDIS? (Just out of curiosity and only if you'd like to share 🙂).

I'm not sure what today looks like for me. I have some bills to pay and a couple of emails to write but aside from that there isn't anything I really need to do during the school hours as I did a lot of it yesterday. I'm tossing up between crocheting some more squares for a blanket or sitting by some water with my fishing rod for today. Tough 😉

In response to: Re: A long rave

Re: A long rave

@CheerBear There have been recent reviews of my progress towards goals and planning of the next steps to take but that's not what's prompted the changes lately really. It's been more because of the coordinator of supports going on leave without telling me and so I've simply had to brave up if I was going to get to the new activities that I wanted to do that have started already this year. And even since she's been back she's been unable to find a support organization that will provide a sw to get me to and from things that I don't need them to stay with me for. e.g. the creative writing workshop, the craft workshop, the bridge lessons. I just didn't want to go on spending at least 4 days a week holed up in the cabin. So I've basically stepped up from 3 days out to 5 days out each week. It's a pretty big step. Last week found me wondering if I'd bitten off more than I could chew, but that feeling only lasted 1 day thank goodness.

In response to: Re: A long rave

Re: A long rave

👋💕🌷 @eth @Zoe7 @CheerBear @Mazarita @Adge ..,,, anyone else around .....

👍🎉 @eth .... go you ❣️

On the run .....

In response to: Re: A long rave

Re: A long rave

Have a good day @Faith-and-Hope x

In response to: Re: A long rave

Re: A long rave

It's bonkers the way that happens @eth. Sometimes I wonder whether they do this kind of thing to almost prove that we can do things ourselves. I need a certain type of support that I'm not getting at the moment and I worry that they'll turn around with a 'well you did it so clearly you don't need it' type attitude 😏 What they miss is the toll it takes to do it and how 'doing it' looks more like frantically scrambling and messing things up to get there and is a million times harder than it needs to be! Grrr vent over!

Still go you though. Hope it works out wel for you today ❤

Hope your day has good @Faith-and-Hope ❤

In response to: A long rave

Re: A long rave

Good morning @eth @CheerBear

Good morning everyone.

Adge

In response to: Re: A long rave

Re: A long rave

Good morning @Faith-and-Hope

Good morning @Zoe7 & @Bunniekins

I hope you have a good day.

Adge

In response to: Re: A long rave

Re: A long rave

@eth A work day for me today - my first Monday with classes and most of them new classes. I had a really good day - spent more than half the day with one class and actually felt useful - really enjoyed it

@Adge @CheerBear @Faith-and-Hope Hi to you also. Hope you have all had a good day.

@CheerBear Did you crochet some more squares or go fishing - 2 completely opposite things that both would be very relaxing.

In response to: Re: A long rave

Re: A long rave

Hey @Zoe7 🙂 I crocheted squares and watched a doco today in between some paperworky kind of things. It was really quiet. I was very tempted to go to the water but not so keen on needing to go to the shop to get bait first so I ditched that idea early.

Great to hear you had another good day! Sounds like a fab school and change for you 😊
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