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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi @eth,

We did indeed have topic tuesday this week in the Carers side of the forums - it's here if you want to take a look!

The upcoming Topic Tuesdays are always listed in the Community Wraps that go up at the beginning of each month and we also post the event up in the banner on the homepage of the forums the Friday before the event. For a reminder just hit the 'support' button on a Topic Tuesday event and you will be tagged when the event starts on the night 😊

In response to: A long rave

Re: A long rave

Yesterday I told another support worker about how much the article I read has brought up for me. I was kinda full of it and it overflowed. My psychologist cancelled for yesterday and I'd been counting on talking with her about it. Have to wait til next wednesday now. Anyway this support worker really listened and asked some good questions and really seemed to empathise when I spoke about the details of what happened to me and the actions of the police in both cases. She was very supportive, if somewhat shocked.

After we went to the big shopping complex we went in search of the coastal lagoon I'd wanted to explore, the aboriginal women's place. Except almost as soon as I turned maps on on my phone and tried to read it I got hit with sudden and full-on car sickness - strong nausea and dizziness. She was driving. I said keep going it'll probably go away. Haven't had car sickness like that for decades. So we muddled around and eventually found the place, but I was too sick to even get out of the car. At one stage I said fancy coming here just to vomit and leave again! But I managed not to. So we just went home an hour early. I was still feeling pretty crook so told her she could go 1/2 hr early and lay down and slept for 1 1/2 hrs. Still a bit crook when I woke up.

Thinking about it today I wonder about it - it seems surreal to me that I would get so sick so suddenly and not be able to visit the place and explore. Wondering if I just wasn't meant to go there. Just adventuring onto bush trails I'd not been on before brought up a lot of memories from times in my past, particularly when I was pretty involved in the lives of two elderly aboriginal women and their title claim business. Some of you know the longer version of that chapter in my life.

Lots to think about today, to say the least.

Take care all.

That's my rave for today.

In response to: Re: A long rave

Re: A long rave

Thanks @Former-Member Looks like one I'd really like to have joined in on. I've been having panic attacks for years now and would like to help my support people know what to do when it happens. So I'll read through it. And keep an eye on community wraps. I was looking for TT in special events.

Do you have to use the support button for every individual tt to get a reminder or is there a list of people who want a reminder every time it's on?

I can see I was tagged on Jan 4th but I'm certain I never had a notification of that tag.

In response to: A long rave

Re: A long rave

just fell out of bed here @eth ok not quite literally. Havent been paid again. for 2nd of 2 days worked this year. It must be deliberate. Have complained. Loudly.Again.Already. l o l Hope your day's ok and me getting zero pay instead of correct pay 2 weeks in a row has just given me complete license to do absolutely nothing on next job at least. ok a few days. Not playing anymore and not bothered lol I'll just smile at whatever they tell me to do I wont be doing much tho except trying to make sure i get paid

In response to: Re: A long rave

Re: A long rave

Hi @TAB it does really sound like you need a bit of a break from whatever sort of work it is that you've been doing. I'm imagining some sort of trade work. Going along and not doing the work sounds like it could backfire on you. Just sayin'.

Tho' I do understand how frustrating it must be not getting paid when you expect to be. Makes it pretty hard to budget for anything, let alone just pay the rent.

In response to: Re: A long rave

Re: A long rave

Hi @eth yes 'some sort of trade work' well there's ways and there's ways and not getting anything much from them recently and dont care if never get any more work from them, just need a few days pay, Happy to go and work for the opposition again lol

In response to: Re: A long rave

Re: A long rave

@TAB previous post edited

In response to: Re: A long rave

Re: A long rave

it's absolute survival here atm @eth re rent, thanks for reminding me. Not kidding.

In response to: Re: A long rave

Re: A long rave

Sorry to hear that @TAB. Hope your pay comes through today.

Good morning @Bunniekins How are you today?

In response to: Re: A long rave

Re: A long rave

sorry @eth was having a rant. of course I couldn;t get away with what i claimed was going to do re work and yes hopefully it comes thru re pay

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