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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi everyone

@Exoplanet @TAB @outlander @CheerBear @Mazarita @Bunniekins @Zoe7 @Shaz51

@Exoplanet I love your posts. I went through several years with the same progressive improvements in housing (or tenting, caravaning, bus etc) as you have. But I've never owned my own patch despite nearly making it happen a couple of times. Your stamina and resourcefulness are amazing, I think you're living the dream and I love hearing about it. But it is hard work, hey?!

@TAB sounds like a sensible plan re being prepared in advance for a move. Glad to hear the pressure is off in that regard. What's happening about work vs centrelink?

@outlander @CheerBear thanks for your support yesterday. Did go to the beach but sat there having waves of emotion relating to what that article triggered yesterday. Decided to stay home instead of going out with sil last night for that reason. Really broken sleep as usual.

Feeling better today as I managed to pull focus not long after waking and wash dishes then get stuck into admin catch up tasks. Then spent 2 hours with my coordinator of supports and sorted out a bunch of things including how many more psychology ap'ts NDIS will cover and requesting more support worker hours to do a few new regular and one off activities. Also had a phone call with my plan manager and she confirmed I can claim the cost of some of my activities, including the tai chi, as they fit in with my goals.

@Mazarita and @Bunniekins @Zoe7 @Shaz51 look forward to catching up with you before too long.

Hope today is going well for all you good folk and anyone else passing by here today. And that all who need it have shelter from the heat.

In response to: Re: A long rave

Re: A long rave

I've gone work over centrelink well main reason being cashless card, which is probably why they have it here. and if register here, it would follow me wherever I went until I went off benefits and re registered. waiting for a call for 2 weeks work which will just/almost fit in with other work which really dont want to do but. Anyway. have re booked doctors and dentists. going patchless today as think they;ve been making me sick last couple days. and dont even go there re hangovers, 100 times worse on patches seems(?) @eth

In response to: Re: A long rave

Re: A long rave

I love reading your posts @Exoplanet They are always informative and sometimes humourous (even if they are not meant to be). I have this image now of glasses sliding off your nose with one hand trying to push them back up while using the hoe in the other hand - that made me smile knowing also how difficult that would be to try to achieve!

Keep posting as you are - we catch up with you that way and that is nice for us all.

It seems like you had a productive day today with a lot sorted out @eth That is great that you can claim water tai chi as well - and I know that is something you love going to. The pool I go to is open again for normal hours next week so I will be able to get back into a routine there. I will start off slow with some walking and one lot of my exercises and progress to doing them twice in further sessions.

Still sorting out the garage here but the wall and shelves are all up and the trailer is ready to stack all the rubbish. Just having a break from the heat and then will get back into it.

In response to: Re: A long rave

Re: A long rave

Great effort @Zoe7 what a constructive week you've had (see what I did there?)!

Going off-line for a while now, time to rest my brain. It's been a big day already.

Take care xx

In response to: Re: A long rave

Re: A long rave

..it vaguely reminds me of On Our Selection by Steele Rudd re @Exoplanet s stories @Zoe7 wonder if its available online I bet it is. I read it a couple times as kid just because it was on the bookshelf. it was hard work just reading it. re struggles

In response to: Re: A long rave

Re: A long rave

.. oh, you ..constructed .. a pun .. @eth lol

In response to: Re: A long rave

Re: A long rave

Constructive week @eth - yes very funny It has been a big week for me with appointments thrown in there also. I do really want to get it done though so I can have room to move in the garage. Right now there is still a mess on one side of the garage and that all needs to be sorted out. Some of it can be thrown out and some stored - but now I have room (and shelf space) to do that. No doubt by the end of the weekend the trailer will be full

Have a good rest this afternoon and will catch up with you again later

@TAB Not a book I have read but may need to check it out for later reading. Will google it soon

In response to: Re: A long rave

Re: A long rave

Yeah its all over the Internet I do print tho so may go join the library @Zoe7 its famous it’s everywhere

In response to: Re: A long rave

Re: A long rave

Hi @Appleblossom I noticed your supports. How are you going?

In response to: Re: A long rave

Re: A long rave

ohhhh hugs @Exoplanet, @Zoe7, @TAB, @Mazarita, @eth, @Appleblossom

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