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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi to you too @Mazarita Ages since we've been on at the same time. How are you this morning?

In response to: Re: A long rave

Re: A long rave

@CheerBear, @eth

I'm okay this morning, thanks eth. About three hours sleep so far. Yesterday I clocked about nine hours overall. The day before it was seven. Sleep is slowly returning to me after six weeks or more of less than four hours a day. Glad of it, and feel better for it. Sorry to hear you had a such extremely fragmented sleep overnight. I feel for you with that as an ongoing issue.

Good to see you this morning too, CB.

In response to: Re: A long rave

Re: A long rave

@CheerBear @Mazarita I had what was a big day out for me yesterday and really thought I'd sleep better. Went out with my sw for 5 1/2 hrs. First we bussed to the psychologist then back to the local shops. Walked bus stop to chemist and then to home. Jumped in the car and went and caught the ferry across the harbour, walked to cafe and back to the shady park near the ferry stop. Then home via a beach drive. So all up over 2km walking, a lot for me still. Had had a disturbing dream the night before so lots of past events were coming up for me even before the psych ap't. Got into details about another traumatic event from my pre-pubesant years with the psych. Planning to do some EMDR about it next week. Still trying to get psych and coordinator of supports to communicate - they haven't even got it together by email and it's really frustrating me. Psych did another report for me 2 weeks ago and neither CoS or I have a copy of it yet, tho psych says she's sent it ...... rave over!

@Mazarita great to hear you are getting more sleep again. Seems like the recent drop in one of your meds has been the right thing to do.

What do you both have planned for today?

In response to: Re: A long rave

Re: A long rave

Sounds like a good day with the increased activities, @eth, even with the traumatic memories arising. Harbour ferry, shady park and beach drive seem especially nice. How are you finding the bus journeys after doing them for a while now?

2km walking is good going, hope your feet held up okay. I need to get back into doing some of that too. The creative work on the computer is keeping me inside almost all the time lately. Perhaps even more than that, I'm not handling the heat well at all this year, so taking cover here at home from that too.

Hoping the psych and CoS get it together soon, and that you end up getting a copy of the psych report. That would frustrate me too. Have you been able to express any of your concerns about this to them?

In response to: Re: A long rave

Re: A long rave

Yes I've talked to them both about it @Mazarita. Will get CoS to check her spam mail when I see her on Friday. She's coming to go on the myGov site with me and help me navigate the NDIS portal there.

The bus trips are pretty ok so far, with the sw sitting with me. Yesterday I would have missed my stop if she hadn't alerted me as I was in deep telling her about real life events that the dream was referring to. We talked about the next step which will probably be me sitting at the front and her sitting at the back of the bus. When I'm ready.

Foot is a bit niggly today but not too bad.

Do you use a laptop or desk top computer Maz? If a laptop maybe you could set up an area in your courtyard where you could sit outside and still work on your vid projects. But I guess it might be too hot to do that anyway. yesterday was a scorcher here too.

In response to: Re: A long rave

Re: A long rave

Good to hear the bus project is proceeding well step-by-step, @eth.

I use a desktop for computing. A powerful computer is needed for video. The ancient laptop I have just wouldn't cut it. I get outside in the courtyard many times during the day, for smokes, to have a look at the sky, listen to the birds, etc. Every night for quite some time now, I've also been going out and looking at the sky, stars and moons while I've been on my breaks from computing. Other than that, during the day it is too hot to sit there. Also too noisy if I was there for an extended time, due to regular air traffic flying low on their way in to land.

It's not really that scorching hot here, but still hot. Just that my body seems to be handling the heat less well as time goes on. I have a delicate thermostat!

In response to: Re: A long rave

Re: A long rave

I hear you about aging thermostats @Mazarita. Lately I get really red-faced quite easily, not to mention the sweating, and it takes a long time to return to normal core temp.

I suspect one or other of my meds is contributing to this, not just age.

Having those little breaks when you step outside sounds like a good balancer for all the screen time. Good for your eyes too.

In response to: Re: A long rave

Re: A long rave

Heading back to bed. Hope you enjoy your mornings @Mazarita and @CheerBear xx

In response to: Re: A long rave

Re: A long rave

Yes, meds side effects here too, @eth, with the overheating and sweating so easily now.

Rest well, hope it's a decent chunk of it this time.

In response to: Re: A long rave

Re: A long rave

Hope you sleep well @eth. Sounds like you could use it.

Sorry to hear about the frustration with your psych and CoS. Another hearing you as I canceled my (much needed) psych appointment today for a similar reason 😏

Love the sound of sky watching in your courtyard @Mazarita and the sound of some sleep returning for you. That's a big yay!
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