FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Our stories

A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

13,931 - 13,940 of 27,230

In response to: A long rave

Re: A Long Rave

So true @Mazarita every time they knocked me back I went into depression about being sure I'd fallen through the cracks in the system. There is so much grey area with MH and it's nigh on impossible to get ndiS to accept that for some people it's lifelong and not an episode that resolves in time. And lots of people with MH are completely isolated with no support. I could totally rant here but I've probably already done enough of that on the other thread since the journey began. I recognize daily how amazing it is that I've had such incredible support to get to this stage. And I've been having bouts of guilt when I read of others who do not have the capacity to keep fighting them but clearly deserve an NDIS package and plan.

In response to: Re: A Long Rave

Re: A Long Rave

You have nothing at all to feel guilty about, @eth. You had to fight so hard for it, and went through hell, to get the support you have now. The support you are getting is what everyone who needs it should be getting. I can't help but feel that the whole scheme is just a way of reducing government spending on those who really need community mental health support. I won't go on any more about it either. But I am very glad that are getting this support.

In response to: Re: A Long Rave

Re: A Long Rave

I hope so much that my thread helps people get through @Mazarita That's why I went back and edited my opening post to include the outcome of my battle - to give people enough encouragement to read it through. I know it's a lot of pages now but there are so many tips and pointers in it (from me and others). And I know from experience it's easier to spend a lot more hours reading on the NDIS website without getting much clear advice .

I'm getting closer to bed again now. My fingers keep tripping over each other. It's always so nice to catch up with you irt. Hoping we both get some deep sleep between now and dawn. may well see you then.

In response to: Re: A Long Rave

Re: A Long Rave

Yes, good idea for us to both head back to bed now, @eth. Thanks for being here. Love to you. oxox

In response to: Re: A Long Rave

Re: A Long Rave

Good morning, @outlander. Felt you under the 'support' button. Wishing you a day that is one of the better ones.

Good morning, @CheerBear, leaving you a warm, fond greeting for the start of this new day.

I'm going back to bed now, but wanted to leave you both these hellos. I am thinking of you both at this early morning hour.

In response to: Re: A Long Rave

Re: A Long Rave

Morning @Mazarita ❤

I hope you can get some decent sleep. Might catch you a little later today 💛💚💙

In response to: A long rave

Re: A Long Rave

This is terrible @Bunniekins

NDIS keep on telling my husband and me that they have sent application forms out but it’s been a long time and nothing happens

your story on your son is disgraceful

In response to: Re: A Long Rave

Re: A Long Rave

Hi @outlander hope you've had some results by now and that they've put you mind at rest.

Hi @PeppiPatty if I was you I'd start badgering them - ring them every few days. It should be easy for them to send out another set of forms for you. Once you have them, if you have any questions I'd be happy to answer them.

Good morning to anyone else around at the moment @Mazarita @Teej @Shaz51 @Bunniekins @CheerBear @Exoplanet @Appleblossom @Dadcaringalone @Faith-and-Hope @TAB @saturnzoon @Sophia1 and @STORMGRL101 you might like to join us here at the long rave.

In response to: Re: A Long Rave

Re: A Long Rave

Good morning @eth, and everyone else around ..... 👋💕

In response to: Re: A Long Rave

Re: A Long Rave

Hi @Faith-and-Hope how's today looking for you so far?

I actually got out my mandala colouring book yesterday and had some colour therapy. The hours and days waiting to hear from my adult child that their baby has arrived are passing slowly and I keep having 'what if' thinking. They've been labouring since 2am Saturday morning. I suspect that means there've been some false starts. They are reaching out to their on-line 'family' more than me and it hurts at times.

13,931 - 13,940 of 27,230