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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

that was a big day for you @eth

mum is home again now xx

I applied for the carer`s allowance and carer`s payment but have being rejected

I am see the diabetes specialist on monday as well as the dietician

Hello @Faith-and-Hope, @Mazarita, @TAB, @Bunniekins, @outlander

In response to: Re: A long rave

Re: A long rave

@Shaz51 You have been rejected!!!! sorry to hear that 😞

In response to: Re: A long rave

Re: A long rave

Hi @Shaz51 sorry re centrelink

In response to: Re: A long rave

Re: A long rave

I can't believe you got rejected @Shaz51 That's so unfair.

Good news about your Mum.

In response to: Re: A long rave

Re: A long rave

soooo unfair @eth, @TAB, @Bunniekins

the closeset centrelink here is 30 kms away and i think my name is down on the reject list

the next centrelink is 60 kms away i should try there but i think it will be the same

In response to: Re: A long rave

Re: A long rave

@Shaz51 it doesn't seem right Shaz51 .... can you appeal?

In response to: Re: A long rave

Re: A long rave

Do some research and also ask what problem is @Shaz51 c/link very secretive, tell you one thing and something else happens. Ask them to explain why rejected maybe

In response to: Re: A long rave

Re: A long rave

@Shaz51 C'link is a commonwealth body (national not state) so applying elsewhere might not be different, but I highly recommend applying with your Dr helping you do the form. That's how I got approved years ago when I had a legally blind kid to care for. They wouldn't give me the carers pension but I did get the carers allowance. Plus there is a Carers organization (e;g; Carers NSW, Carers NT or Carers Qld if that's where you are) that helps with all sorts of things. e.g. a friend of mine caring for her husband and mother was approved for a new set of tyres because she needed to transport them both to essential appointments, hospital etc. Sometimes they do interest-free loans (as does c'link) and sometimes they pay for something for you. Hope this info is helpful to you.

In response to: Re: A long rave

Re: A long rave

@eth, you should of got the carer`s pension my friend

thank you for the information , I will look into it

It is the same with Mr shaz MI

and with my physical problems , see how we go with them -- this is not helping mr shaz`s anxiety at all

I found out I have 12 weeks to ask why @TAB , @Bunniekins

In response to: Re: A long rave

Re: A long rave

Hello Everyone 🙂

@Shaz51
Maybe that Doctor who was not happy because the hospital should of done a script for
your Mum when she left the hospital, might help you appeal Centerlinks decision to
reject you for the carers pension/allowance? He has good knowledge of everything you
do for your Mum & Mr Shaz, he also knows all about your own health issues & what's
involved. Hugs my friend

@Faith-and-Hope
With your wonderfully postive attitude, your artwork is likely to fit back together
even better in it's new position 🙂 I wonder whether you might be able to incorperate your 'shelf garden' into your artwork? Perhaps you could set up an automatic watering system somehow, or use, like you say, catus & air-ferns & the likes 🙂 That was a beautiful garden view, I can imagine the puppies & I walking along that road!

Mazy @Mazarita
Thanks for sharing your days news, I love receiving it When people share even just little bits of thier day, I feel much less alone 🙂 I guess that's why I blurb myself,
all part of not feeling alone 😉 My puppies inspire me to do something before I get
online, well they pretty much demand it, there's no way I could look at the sparkling
expectation in thier eyes & not feed them. My routine is centered around them, I put
on the kettle, feed them, put away the dishes, give them thier dental treat & then sit
down to a cuppa & computer 🙂 There's the walk we have each day & thier evening feed
is when I get my evening feed together 🙂 They also tend to get dirty & smelly well
before I notice me getting dirty or smelly & that's when we bathe 🙂 Even my bed making
happens because I want to get the Staffies bed tidy & the bedroom door shut so he can'tmess it up again 🙂
I only had 1 child, she was under 9 pound & it wasn't a difficult birth. I went through
childhood tramas that I don't remember.
GPS adventures, I reckon that'd make a good title for a book 😄 I think just about
everyone could relate to it 🙂 Every time I turn it on I do feel like I'm starting an
adventure 🙂

@Bunniekins
I'm glad your psychologist is going to be good I have an undercurrent of anger too, when it errupts {which is quite rare now days} like the lava spewing from a volcano I
have no control over who it burns. Usually though, the underlying truth is, the one I'm
most angry with is myself & I'm also the one that gets burnt by it the most. I hope
you psychologist is patient & understanding & helps a lot with it

@eth
I thought your story might be scary & it sadly doesn't surprise me that your life was
threatened. The last protest I went to they used dogs, I wasn't biten myself & I don't
blame the dogs, but it was frightening & it was the last one I went to. I loved hearing
about your day, even the heavy stuff, I feel priviledged that you shared. I can't stand
anything over my mouth either, though I don't know why - truth is I don't want to know.
Glad you've made an appointment to see the Doctor, I can understand being stubborn
about going, but if there's a known way to ease the pain, then it can be eased 😉 Oooo
the excitement of an impending baby!!!! Can't wait to hear the news when it happens 🙂

Love to all the need or want it

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