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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Hi everyone,

@outlander, good to see you around again. To answer your question, I haven't been making videos for a few months now, but the ones I've already made are getting some public screenings, so a little bit of admin to do here and there. I'm putting my health and wellbeing as the higher priority for now, and giving myself some time out from something that has so often kept me up all night. Sorry to hear you have been having more troubles with physical and mental health. Hope your pdoc appointment went okay. Hugs and kind wishes that things improve for you soon.

@eth, hearing you on the broken sleep. I've been having that every night lately since the anti-depressant dose was increased. I can only imagine how hard and frustrating it is for you, having experienced it for such a long time. Hoping the EMDR helps with that, and the new med. Also looking forward to hearing what ideas your support workers might suggest for your extra hours.

@Bunniekins, awesome to hear your adventure with your MH nurse went so well today, and that you like her so much. I'm fine, another pretty good day here, improving steadily from the recent big depression. Will be thinking of you tomorrow with your appointment. By the way, I like Irish accents too.

@Exoplanet, I did get out the rubber ducky yesterday. Today it was a thorough wash only. That's okay by me. I only really need a shower every couple of days, and on the odd days a thorough wash. But shower every two days is still more of a goal for me than an actuality. Always room for improvement, eh? We'll see if I can manage one tomorrow.

@CheerBear, makes me happy to be able to give you a boost. The other thing I meant to say about your current situation is that you are also part of the caring team for the ill person in your life. I'd say you are doing lots for other people. Just because it's not structured like a 9-5 job, doesn't mean it's not valid and valuable. Really glad you had such a good last day at your group, sounded wonderful.

Now that the day is almost over, I can share what I did. Bussed it to the doctors, had a long appointment with her and got my three-monthly B12 shot. Did my 'weigh in' with her. I am slowly losing weight. Seems the change in medications is finally starting to help with that. I was pretty surprised because I did no exercise during the two month slump. Seems to confirm that the previous meds I was on have been the main thing stacking on the weight over the past several years. After seeing her, I wandered around the local shopping village, treated myself to a yummy lunch and managed to clock up maybe 2km of walking before bussing it home. The doctor is also now going to try to get me into a physiotherapy program at the local public hospital. If I'm accepted it will involve a specially designed gym program. That would be great. Other than that, a relaxing TV night. Will be off to bed soon.

Sleep well all, hope there are some refreshed feelings in the morning for everyone.

In response to: Re: A long rave

Re: A long rave

Good early morning, @CheerBear.

Just woke for the third time tonight. Had full sleep cycles between each awakening, so feeling okay just now. Will get some more sleep before long though. How was your night?

In response to: Re: A long rave

Re: A long rave

Morning @Mazarita 😊

Good to hear you're feeling OK even though you had a few wake ups last night. I had a really good for me night and slept well thanks. Up just before 5 which is OK and not too tossy turny while I was sleeping 🙂

So good to read about your day yesterday! Are you still doing reverse psychology here (this is me interested in how your day is looking but not wanting to throw your good run!)?

In response to: Re: A long rave

Re: A long rave

Glad to hear you had some okay sleep too, @CheerBear.

Yes, 'reverse psychology' it is until I can feel more confident about my capacity to follow through on my plans. I do have them for today though.

How about you?

In response to: Re: A long rave

Re: A long rave

I'll look forward to hearing how your day has been once it happens then @Mazarita 🙂

I have an appointment with my GP to get results from a blood test I had to check my medication. I'm interested in hearing what they are and whether the dose will be increased today. One week down and no side effects I can't cope with yet so off to a good start👍

Aside from that I might potter in the garden today. We'll head out to spent time with unwell and well one this weekend too so I'll get some things ready for that.

Forecast is for a sunny and warmish for us day today. So good to have spring weather happening at times 😊

In response to: Re: A long rave

Re: A long rave

Hope the blood tests are all clear, @CheerBear. Good that they are checking that. It should be done, especially with mood stabilisers, but I have found that it doesn't always happen. Great that you are tolerating the new med and that the side effects are livable.

I have some side effects from the new med regime too. It's hard to completely avoid side effects with meds. For me, it's about deciding whether the side effects are worth the treatment. I think they are, but one of them is excessive heat in the body and too much sweating. So not looking forward to summer with that one!

Sounds like your day will be fairly relaxing. I like to hear you getting some time like that.

Light here and the birds have just gone a little quiet after some very bright morning chorusing.

I had a funny dream just before waking. I was at a highbrow experimental music concert in a very cultured overseas city. I was wearing my big fluffy dressing gown! I think I have lived in it so much over the past couple of months, my dream self thinks it's the only clothing I have!

In response to: Re: A long rave

Re: A long rave

My GP was pretty clear about me needing to follow through with all the blood tests and appointments if I was to take this med @Mazarita. Her plan is to 'start low and go slow' and I really feel like I'm in good hands with her which helps 🙂

Haha that's funny! I'd live in my dressing gown if I could I think. From memory you have a bit of a fancy one from overseas maybe? Mine is getting way beyond its life now and this may be the last cool weather it will see. I'll be sad to say goodbye to it as it's been a great comfort for years.

Light here now too and lots of finches/sparrows (cute but annoying because they destroy the garden) birds are out and about. Our fruit trees now have bright green leaves to go with the pink and white blossoms too. As the flowers are losing their petals the yard can become sprinkled with white and pink. It's so pretty 😊

In response to: Re: A long rave

Re: A long rave

My dressing gown is not fancy, and I couldn't get the colour I wanted so had to go with murky fawn, @CheerBear. But I did get it on ebay from the UK, so it is very warm and cuddly.

Just heard the first crow of the morning. Such a familiar sound of the Australian landscape (though I know there are crows elsewhere in the world). I like crows. Saw a gorgeous glossy one yesterday, flew in close to where I was walking.

Your spring sounds wonderful. It's pretty much green with flourishing flowers all year round where I am. Though the city I live in is kind of trashy, I feel so lucky to live in the beautiful landscape in this part of the world.

In response to: Re: A long rave

Re: A long rave

Interesting that you like crows @Mazarita. I dont know what it is about them but I find them a little scary. I love colorful little bouncy birds and really enjoy spotting the occasional bright or different one.

I feel the same way as you with feeling lucky to live here, even though it's a bit trashy ('ghetto' was the word my housing worker used). It's a place with lots of issues and lots of really dodgy looking houses and places and some very shady characters. But scattered in around it all are some of the most incredible gardens. Everywhere I look I find flowers and fruit trees and odd and interesting garden decorations. It's a case of choosing what to focus on when I walk/drive around. I find the contrast truly fascinating 🙂

I better head off and start the day. It's been great to catch you this morning and I hope however you spend your day it's a good one for you ❤

Wishing you the best with your appointment today @Bunniekins.

Morning and best wishes to all 💗

👋😊

In response to: Re: A long rave

Re: A long rave

@Mazarita Good morning and a big thank you regarding your last message Mazzy. Hoping the wind gets back into your sails soon xxxx. No one like to see our Mazzy in pain and doing it tough especially the pea. Love greenpea 🙂

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