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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Rave- I hate how many meds I'm on. Last year it was just an injection once a fortnight, now I'm on 10 different pills (2 prn but still)

And the stupid thing is I still can't function in society. I can't do what normal people do. I have so many side effects from my meds that's it's getting to me.

In response to: A long rave

Re: A long rave

Evening all @Shaz51 @Mazarita @Teej @CheerBear @Faith-and-Hope @Exoplanet @The-red-centaur

@Exoplanet i love your videos, im not sure if i know you, im pretty new and forget things.

I had a cookingv group at 12pm this morning then ten pin bowling at 2pm but i just did not have the motivation to get dressed and go, im a bit disappointed in myself for not going.

I have my art group tomorrow at 1pm till 3pm so hoping to get myself ready for it and positive motivation

In response to: Re: A long rave

Re: A long rave

Good morning, @CheerBear, guessing you might be up. Just woke from another long sleep. Yesterday long sleeping too. I think I've only been awake for about four hours in the past 24, and spent that time in the armchair watching reruns on TV. I'm trying to make an earlier appointment with my psychiatrist about this, but no luck so far. Just have to keep ringing for possible cancellations.

Good morning, @saturnzoon, @Shaz51, @Teej, @Exoplanet, @eth and everyone, I read all the posts here from yesterday and appreciate the tags and messages. Just haven't had the energy for responding. Hope the day treats us all well.

In response to: Re: A long rave

Re: A long rave

Morning @Mazarita. Love hearing the knock knock on my phone that is often your morning hi, thank you.

I've been thinking of you sensing that things are not going so well. I can imagine the collapsed and sleepy depressed feelings are becoming hard for you. I could be wrong but big hugs anyway. I hope you get in to see the psychiatrist soon.

I've been up for a couple of hours. Little had a nasty sounding cough throughout the night and ended up in my bed, then sometime in the very early hours I woke with a "must do all the things" jolt. I've been trying to work on some NDIS prep since. I can't stand the brain I own sometimes. It seems to be constantly searching for something, anything, that can "fix" everything and fix it all perfectly. Today is the NDIS info session and that's what's done it I think. It takes nothing to set racing thoughts off. I have written down 'learn how to chill out a bit better' as a goal though haha. There's a little early morning rave :face_with_rolling_eyes:

@saturnzoon hoping for you that you make it to art group today. Is it a particular type of art that you do like an art class, or more a therapeutic art group?

Sorry to hear about the med side effects @The-red-centaur. I can imagine how frustrating that may be.

@Teej hugs for your crash day yesterday. Wonder how your plants are getting on. Hugs for you with everything you have going on too @Shaz51.

👋 to everyone who may be calling by. Also hope the day goes well for all ❤

In response to: Re: A long rave

Re: A long rave

@CheerBear, good on you for doing something productive with wonky brain last night, by doing some ndis prep. Although it's now progressed to other anxieties with it, it's awesome that the ndis has come through for you. I think I gave up on trying to fix everything perfectly a long time ago. These days I just like to feel like there are small steps forward, not so many backwards, which is where I am now unfortunately, in a big way. Thanks for your hugs. Returning them warmly to you.

In response to: Re: A long rave

Re: A long rave

I think I've said it before but your acceptance and gentle way of being with yourself inspires me @Mazarita. With time I hope that I can find the balance of still trying to push through, but without the ridiculous pressure I put on myself.

The NDIS is only a good thing for me, though it's hard to see how the initial stages of it at all fit with recovery. Like the DSP it has such a hopeless feel about it at the moment. Again, maybe it's just time to settle the big scary changes feelings.

Sitting with you in the backwards that is at the moment, always sending you my thoughts and love from behind this screen.

Better head off and do the morning thing now and see how that little is sounding.

❤

In response to: Re: A long rave

Re: A long rave

@CheerBear, sleep is calling again. Good to meet up for a message exchange this morning. Sending good wishes for your ndis meeting today, and anything else you do.

In response to: Re: A long rave

Re: A long rave

Good morning @Mazarita and @CheerBear

You might both be gone by now.

Maz I hope you feel like getting up and having some awake time next time you wake up. I think it's a good idea to discuss your sleep pattern with your psychiatrist again.

I was started on yet another med last Wednesday. It blocks adrenalin receptors and is meant to help me sleep without so many flashback type dreams, and for longer spells, but it hasn't changed anything yet. Gradually increasing the dose every 5 days. So far no obvious side effects, but it does also lower blood pressure so I'm on the alert for any dizziness or light headedness.

CheerBear I hope your NDIS info session goes well and answers questions you have at this stage. Hope it leaves you feeling clearer about it all. I totally get that it's not all sunshine and roses yet. It's not for me either.

In response to: Re: A long rave

Re: A long rave

Hello Everyone 🙂

@Mazarita@eth@CheerBear @saturnzoon {it's nice to meet you 🙂 } @Sophia1 @Shaz51 @Teej @outlander @Sans911 @Faith-and-Hope candycane {not using the @ because I don't want to bother you 😉 }

I've finished my second roll of netting, that's 100 meters so far & I've still got a little to go. I have some second hand netting, which I avoided because it can be a real pest to unravel & this lots got barbed wire attached to it; but it'll do for the little bit I've got left 😉 {I'll put the barb to the bottom, shouldn't bother me so much}. I did notice the little fella have a little dig near the fence when I first started doing the netting, so I might have to put some very short in height {I think it's called bird netting} on the ground around the boundary. The mean in me has been getting quite thrilled by the little fella crying at the fence because he can't get out {even though it's still not finished yet & he does still eventualy go out for his morning inspection of the property . . . I'm gunna stop that!!!} & yesterday when I got home from seeing the patient lady, which ended up not being a session & I didn't have to pay, because she had to organize a review & I have to see my GP first; the little fella didn't greet me at the front of the driveway, he was still in the houseyard & boy did he carry on 😄 😄 😄

In response to: Re: A long rave

Re: A long rave

You’re getting there with the fencing @Exoplanet ..... go you ❣️

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