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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

Good morning @Mazarita @CheerBear @outlander @Sophia1 @Appleblossom @Bunniekins @Shaz51 @Exoplanet and all others floating around here today. I hope today has started well so far. @Bunniekins I'm wondering how you are too?

Another night of 6 short sleeps - I always feel a bit cloudy after nights like that which are more common than not at the moment. Oh for a longer block of sleep - 2 1/2 hours is the max I get in one go. Woke up from a chaotic and anxious dream this morning - I was glad to wake up and realise it wasn't real. But it does go to show some of what's bouncing around in my subconscious lately.

Hello and welcome to @NatalieS - spotted your 'like' in my notifications. If you're new to the forums I hope you find them helpful and a safe place to express how things are for you.

In response to: Re: A long rave

Re: A long rave

Morning everyone
Hope you all have some good moments

In response to: Re: A long rave

Re: A long rave

Good morning everyone.

@CheerBear, so glad you didn't find spiders yesterday and were able to achieve some of what you wanted to get done. You are brave and tough!

@eth, hope the cloudiness has lifted since you've woken. You and me both with disturbing dreams at the moment. Hope this improves for you soon.

@Exoplanet, good to feel you under the like button. Hope the day has started well for you. Wonder what you will be up to today.

@NatalieS, I am another who noticed your likes yesterday. Feel free to jump in and chat here if you would like to join us. I think you've been around for quite a while on the forum but we haven't chatted much if at all. Either way, I hope the day is kind to you.

@outlander, hope things have improved for you, at least a little, hopefully more. Thinking of you.

I slept from 8.30pm last night to 10am today, so still sleeping long. Not as heavy during the day as I was on the higher dose of anti-psychotic, but still struggling with sleeping too much and very little motivation. It's been 6 days on the reduced dose. Psychiatrist said to take the lower dose for a week before going off it, if I chose to do that after monitoring myself the first seven days on the lower dose. Seems worth a try and I'm actually excited at the idea of getting off anti-psychotic meds altogether (after being on them for about five years). But it remains to be seen how that next step will affect me. Well, I hope.

Whatever the struggles today, I hope the day brings moments of peace and smiles to all.

In response to: Re: A long rave

Re: A long rave

Hello Everyone 🙂

My mind's in a bit of a fuzzle at the moment. I received the quote from the fence contrator of a couple of hours away & it was well above my planned budget; though seeing as I've been a bit obsessed with fencing details lately, I do think it's within reason - it's my planned budget that doesn't really come up to reality {I think}. I have great fears of being 'ripped off', it's happened to me many times in my life - but this is thousands of dollars, & this quote is double what I had planned. There's more money involved in the support posts & build than there is in the materials I have already purchased. It will make my fence more expensive than my car. So I have sent the 'picture' of my fence plan off to many other contractors in the hope that I may receive some replies & will wait a few days at least. The biggest problem I have with this quote is the variable cost in clearing the fence line, though I think it would be classed 'light regrowth', from the only other quote I've had, clearing costs $150/hr & the already double budget quote could rise dramatically.

Sorry, my brain can't think of much else at the moment. My fence saga feels so close & yet so far.

Love, hugs & support to all

In response to: Re: A long rave

Re: A long rave

Hi @Mazarita good to see you. I'd be happy to try getting off antipsychotics with pdoc's support one day too...........it's been nearly 9 years for me. I'm hoping that it works out for you well. What are you up to today?

@Exoplanet I'd be getting more quotes too if I were in your boat re the new fence. The latest quote sounds outrageous to me but I'm no expert. Good on you for persevering with the unfolding saga.

In response to: Re: A long rave

Re: A long rave

@Exoplanet, understandable that your mind is taking up with fencing issues when it is such a large investment of limited funds. I also don't like the sound of a 'variable quote'. Good on you for seeking a number of other quotes. Good luck with it today!

@eth, thanks for your good wishes on the medication reduction. I'm still waiting for the time when the med changes over the past number of months really improves things. Though I think I may have lost a couple of ks in weight so far, so that's something. And the rapid cycling seems to have disappeared, though it's plunged me into just the lethargic end of the spectrum for now. Hopefully better balance before long.

In response to: Re: A long rave

Re: A long rave

@Mazarita It's frustrating isn't it when meds have to be adjusted over and over for months at a time - really hope you find the right balance soon. And that with the next change your creativity and inspiration with your video making comes back.

My current med regime keeps me relatively stable but I haven't had a strong creative impetus for several months. It seems like it's the price I have to pay ....I really wish we didn't have to chose being stable over so many other qualities of who we are. As you know when I'm hypomanic I'm so much more into craft and writing and my mish mash of spirituality - I believe they are part of who I am and I miss them. And still don't get decent sleep even when I take a prn. That seems like it will never change.

Preparing this morning to meet my plan manager for financial aspects of having my NDIS plan. She's coming at 1pm and I'm doing this one without sil - just me. Hoping I don't get too swamped by the info she has for me.

In response to: Re: A long rave

Re: A long rave

@eth, hope the meeting goes well today. I believe in your ability to take in complex information, evidenced by the detailed and extensive research you have done over a long time to be able to secure the ndis support.

I've texted my friend to see if she's up for another visit today. If so, I'll be going there early afternoon. Would be great to get some household things done before then, but I'm not sure yet if it will happen or not. We'll see.

In response to: Re: A long rave

Re: A long rave

Thanks @Mazarita

Good luck with the chores! I probably should sweep my floor before the meeting but I can't be stuffed! Let them see things as they usually are.

In response to: Re: A long rave

Re: A long rave

Yes, the chores, @eth. I can't be stuffed either. Washing is screaming at me but my inner ear is barely hearing it and my body definitely doesn't want to move. I feel very boring at the moment, without even a video to talk about. Just my symptoms. Sorry you feel disconnected from the things you identify with as part of your self. Reading novels, which I used to do a great deal of throughout my whole life, stopped altogether with the anti-psychotics. Hoping that might return if I'm off them altogether.

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