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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

I'm not sure yet @Mazarita what I'll have to do and what the plan manager will do for me - hopefully they'll do most of it, that's the reason I opted for having one. I imagine I'll need to learn how to upload invoices e.g. from the psychologist, but I'll try to set it up so that invoices can go directly to the plan manager who then somehow gets the funds from NDIS and pays the invoices. This is stuff I'm pretty confused about that wakes me up with a busy brain through the night. As far as I know the most important thing I have to do asap is go on the myGov website and set up a link to the NDIS participant portal and enter my bank details to start receiving the travel allowance - it's the only bit paid directly to me. I need help to do that and there hasn't been a suitable time for sil to help me lately. Bro was only home for 3 nights between trips (gone again now) and sil is back at work three days a week.

In response to: Re: A long rave

Re: A long rave

MyGov is a bit daunting to use, though not that hard once you get your head around it, @eth. It did take me a while to get it organised the first time round though. Hopefully sil will be able to give you some assistance at some time very soon. Good to hear you will have a plan manager to hopefully take care of most of the admin after that. It seems like it would be crazy if participants in the program also had to do the admin, a bit counter productive to engaging with the actual support programs, which I imagine will be enough to do in themselves. Good luck with this weeks meetings!

In response to: Re: A long rave

Re: A long rave

thanks @Mazarita. Yes I'm totally daunted by myGov. I did set it up for c'link and m'care in 2015 but haven't used it since then. I'm worried my hand tremor will flare up trying to do it. I need someone to sit with me when I try to do it. When I'm really anxious about financial stuff on-line I can miss important details, and the hand tremor makes it hard to enter passwords and pins accurately. Some websites only let you try so many times before they lock you out.

Re plan management - there are three different ways it can be managed. The other 2 are 'agency managed' (NDIS controls everything and you are more limited in the providers you can use) and 'self managed' which I definitely am not capable of at this stage. The way I've opted for it's a private plan manager external to the NDIS. Seemed to leave the most options for providers at the same time as a lot of help with the finance side of it all. I probably should be putting all this stuff on the NDIS thread but am not up to it this morning.

Leaving in 1/2 an hour so if I disappear that's why.

In response to: Re: A long rave

Re: A long rave

No worries if you drop out, @eth. Yes, I haven't used MyGov for a while now either and it makes me nervous thinking of trying to log in again. Hoping my password details are already saved on my browser because I can't remember them and not sure where I would have put them! I only have C-link and Medicare on there too.

Sounds like you have thought out a lot of things with ndis and have the best option available with the plan manager. I doubt there'd be many participants as engaged and conscientious about things as you have been.

In response to: Re: A long rave

Re: A long rave

@Mazarita I wouldn't have a clue how to save passwords on a browser! Luckily I kept the little notebook I've got passwords etc in when I moved down here. I know they say not to write them down but it's the only way it works for me. But I think I heard some time ago that if you don't use your account for a long time they shut you out. As is probably obvious I'm seriously anxious about all this stuff and may be overthinking it, as is my wont. I'm hoping the plan manager can help me do it when she comes on Friday. But will also be using her time to do service agreement and stuff. We'll see what happens.

In response to: Re: A long rave

Re: A long rave

I was thinking of suggesting that one of the people you have meetings with might be able to help you with MyGov, perhaps even your support worker, if you can fit it in with other things you are doing with her, @eth. Hope that works out.

I know the feeling of overthinking things, my brain never stops at the moment. I try to remind myself that I don't have to be in control of everything, that things have a way of working out even if we are not completely on top of everything. But, as I'm sure you know, it's not easy to talk your mind out of these anxieties.

My mind has been streaming lately with lots of thoughts about people, sometimes tiny encounters from decades ago with people I don't even have any contact with any more. It's a bit troubling, though not new. It's driving me a bit crazy. The feelings associated with these memories and thoughts are often self-damning and depressing in their feeling. I'm still using the 'now' mantra to help me refocus on the material world around me in this moment.

In response to: Re: A long rave

Re: A long rave

I go through periods like that too @Mazarita. Remember your "I forgive you" mantra. It really helps me at those times to remind myself that there are somethings I'll never know about my past.

I have to go now. Hope you get to your group and your friend's house. Might catch you tonight. Thanks for listening this morning. Love xx

In response to: Re: A long rave

Re: A long rave

Great to get an extended chat with you in real time, @eth. So glad the gmail glitch has been fixed! Good luck today and look forward to hearing how it all went later, or tomorrow. Love back atcha.

In response to: Re: A long rave

Re: A long rave

Morning @Mazarita @eth .... anyone else around .... 👋💕

Thank you for the call-outs this morning.

Am headed to the pool for a walk in water this morning and an appointment afterwards .... will find somewhere to put some breakfast in between.

I slept in this morning so I am time-scrambled now .... lol ....

Hope you both have a good day, or at least an okay one ....

In response to: A long rave

Re: A long rave

@Mazarita @eth and all ❤❣
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