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A long rave

A long rave

Edit Feb 2018: This thread has evolved into a chat thread, which is fine by me. In addition, I encourage other members to feel free to post their own 'long raves' in here too if wished. I will continue to post my own longer raves from time to time, as well as chat with friends along the way.

Original post from May 2016:

First of all, a (very) long post alert. Please don't feel obliged to read or respond. Mainly I am writing today to clear my own head of some things. So, here goes...

Last week, I managed to get to all planned appointments and activities every day of the week except Sunday. That only amounts to one, maximum two, per day, but was an improvement on previous weeks and months. I've made all planned appointments in a week before, but there have not been so many appointments in so many days consecutively. Many of you will know that, prior to about mid last year, I spent years very rarely leaving the flat. This was since the last of my breakdowns from paid employment in 2008 (one of so many similar breakdowns from paid working, though none as devastating in consequence as this last one). With each of these breakdowns, the recovery time got longer and longer. It's taken eight years to recover much at all this time around.

This week, so far, I've made none of my appointments or activities. In fact, I've not showered for days. Embarrassing to admit but maybe helpful to own up to it. As I write I'm still in what I wore to bed, as I was all day yesterday and the day before. The weird thing is that I don't feel that bad in my emotions, just crashed out physically and lacking almost all motivation except to use the computer. In other words, my mind and fingertips are alert and active, in fact nervy and overactive as usual, but the rest of me is crashed out. Perhaps I have entered what some people call a bipolar 'mixed state'. Whatever the terminology, this is where I am and I've been here so many times before.

The way I see it, there are a number of possible reasons for the way I am after last week:

  • inner conflict about how helpful my psychologist treatment is for me (saw her on Friday);
  • trying to further reduce my tobacco intake (the struggle seems disproportionately huge and exhausting);
  • needing recovery time from a big week (by my standards);
  • simply another manifestation of bipolar disorder in me.

Regarding the psychologist. She is young compared to me and I have the feeling that she may not grasp the full extent of my situation, partly through lack of life experience. Perhaps she may particularly lack an understanding of the various physical ailments that complicate things with me, some age-related (menopause, musculo-skeletal problems), one of them a chronic illness (crohns disease). She is treating me with some techniques from Dialectical Behavioural Therapy, something I honestly have never liked the sound of when I've read about it. The main 'homework' I have for this four week period is a sheet I am meant to fill out every night covering various things including tobacco use, coffee intake, isolating, unbalance eating, sleep patterns, lack of exercise. The sheet also includes sections monitoring mood every day. The problem I find is that monitoring and (by implication) tackling all these things at once is just overwhelming. I am significantly depressed after filling out the form because it seems to highlight all the ways I am failing rather than the ways I am succeeding. The psychologist has given me this sheet as homework once before and it had the same effect on me then. A full month long slump into depression is what followed. This sheet makes me feel very pressured to recover quickly from all of these things at once, a message that contradicts the advice of my psychiatrist (who I trust much more). His advice is to take it slowly and steadily and not feel rushed. As of yesterday, I stopped using the DBT form altogether. I am even considering giving up on the therapy with this psychologist after my next (sixth) session instead of seeing it through to the ten sessions my GP is willing to refer me for.

With the difficulty of further tobacco reduction, I am succeeding in reducing this a little more but the effort is gargantuan and seems to be sapping all the strength I have for making it out the door to my activities and appointments (or even to get dressed and showered). Writing here is just about the only thing that is distracting me from smoking again or thinking about it obsessively.

I've run out of steam on writing about it all now (a huge sigh of relief from any readers at this point).

I wonder if anyone else can make any sense of this.

27230 replies

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In response to: A long rave

Re: A long rave

@The-red-centaur I will go and have a look at at your thread.

In response to: Re: A long rave

Re: A long rave

Finally up at about 1.30pm. Slept since about 12.30am last night, with only a few short wake-breaks. Good long sleep, still tired on waking as always. It's okay. Nothing really pressing on me today. C is cleaning today for the flat inspection next week. The small flat is now too chaotic for me to move around and do my own cleaning. But I will start that tomorrow (hopefully), though I intended to start it on Friday and haven't yet. These things shall come to pass (I hope), even if it all happens in the last day or two.

Hi @Bunniekins, @The-red-centaur, @Sophia1, @eth, @Shaz51, @CheerBear, @outlander and everyone here,

sending calm vibes to all for the rest of the day.

In response to: Re: A long rave

Re: A long rave

@Mazarita Hi Mazzy glad you slept in tht will do you a power for good. Yes I have to clean my house too. Need new vac bags which are a huge problem in getting because the cleaner is so old. Hoping the rest of your day goes smoothly 🙂

In response to: A long rave

Re: A long rave


@eth wrote:

Hi @The-red-centaur Hope today is starting well for you. Loved your paintings.

Thanks @Bunniekins it means a lot that I at least seem that way. Actually I'm quite anxious a lot of the time about making the transition to being NDIS funded and finding appropriate support and doing significantly more in the community, travel training etc.

I will go soon and start work on the booklet. I'm anxious that I will overlook something important at the planning meeting, or say something that reduces my entitlement.


sorry @eth

hope that you get this before your meeting tomorrow....internet issues tonight....younger son visit this afternoon...

good luck for the next stage of your funding and support...

In response to: Re: A long rave

Re: A long rave

Hi @The-red-centaur very sorry you feel unsafe at home, concerned for you. Do you have anyone you can go stay with for a few days or talk to on the phone while you are feeling this way? Or else would you consider ringing one of the help lines? 1800 18 7263 is the SANE help line. @Former-Member maybe you can make some suggestions.

In response to: Re: A long rave

Re: A long rave

Good morning @Mazarita @Sophia1 @Bunniekins @CheerBear @outlander thanks for the mentions. Had a big day here yesterday that I've posted about on the 'Anyone started with the NDIS?' thread. Today is the pre-planning meeting and I feel ready for it. The feeling I had about missing something important has settled well at last. I've done all I can.

Wondering if anyone is up and about yet?

In response to: Re: A long rave

Re: A long rave

Good morning, @eth. Wonder if you are still awake. Either way, I hope your ndis meeting today goes very well. Sounds like you are very well prepared for it. Good work!

In response to: Re: A long rave

Re: A long rave

Back to bed for me again. Will catch you later, I hope, @eth.

Also sending kind wishes to everyone for a peaceful day today.

In response to: Re: A long rave

Re: A long rave

Morning all

Wishing you the best with your meeting today @eth

In response to: Re: A long rave

Re: A long rave

Good morning @Mazarita and @CheerBear and all others who see this today.

Maz (typed Max instead - that might stick!) you only missed me by 10 minutes this morning. I went back to bed too, for about 1 1/2 hours. I'm back now but you're probably tucked in and snoozing. Hope you've had a good night.

CheerBear thanks for the wishes. Hope your day has started well too.

@Bunniekins Hi for when you see this. Bit of a cosmic coincidence yesterday - after telling you yesterday morning about the crimson rosella wings I made a mask out of long ago, my sister found one with a crushed beak in the afternoon. We put it in a box with a heat pack and took it to the emergency vet. Unfortunately it didn't survive (the vet said it wasn't viable, it's beak wasn't repairable so they euthanased it), but at least it had a much more peaceful death than it would have on the street. It felt quite surreal that I only mentioned my story on the same day.

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