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New to being a Carer, I’m in over my head

New to being a Carer, I’m in over my head

My mum has dementia. She was recently in hospital (for a seperate issue) but it was clear she wasn’t going to be able to go home alone. My father died 2 years ago and she has lived alone since.

While she was in hospital she started hallucinating and her health issue wasn’t improving. I was told by the hospital that they wanted to put her into respite and then move her to the nursing home.

At the time I was sure most of her problems were the result of some new drugs her pill popping dr put her on. I told the hospital that I was moving in with her, which I did that day (around 5 or 6 weeks ago) and they let her come home. She’s now off the drugs, the health issue is no longer an issue, no more hallucinations - but her memory is pretty much toast.

We had a couple of small issues when she came out of hospital, she refused to eat for a while and I was pretty much force feeding her - that issue hasn’t entirely resolved but it is much better. She has also been getting pressure sores on her feet, but now I know what I’m looking for we have got on top of them before they become a huge problem.

On top of all this, there has been massive problems in my marriage and a week ago I seperated from my husband after a problem arose with my sons relationship and impending breakup, long story short I was thrown under the bus by both my husband and son and have been cut off from my 4month old granddaughter. I was also pretty much ditched by my councillor who I see for CSA, but originally started seeing 2 years ago for marriage counseling.

This afternoon my mum went for a walk around to my brothers house (small town, he only lives a couple of blocks away). My brother rang after a little while to say mum got there but was pretty upset. She said there was a woman living in her home and she was bossy and she needed to get away from her. My brother explained it was me, but she said it wasn’t - it was someone else. She then told them she wanted to die.

After they dropped her home I tried to talk to her but she got angry so I had to give up. She flatly refuses to believe she went to my brothers, she thinks she went to a friends house. She denies everything she told my brother, but she did say to me that she wanted to die.

The last week or so I have been feeling extremely trapped here. After my brothers phone call I’m completely deflated. I’ve been rejected by my husband, son, councillor and now my mother.

I just want to get in the car and drive and drive. I feel like I have no life now, this is all there is. I’m not appreciated by my family, I’m completely on my own and there is no one left to talk to.

What do I do from here?? I’m 48 years old and I feel like my life is over and I’m completely in over my head.

27 replies

21 - 27 of 27

In response to: New to being a Carer, I’m in over my head

Re: New to being a Carer, I’m in over my head

@Razzle @do you have access to counselling services specific to dementia ? It might be that for things like that it is better for her and you to just nod and seem to agree with her in the moment, leaving her to believe in that lost-in-the-wrong-timeline moment, but not having dealt with dementia, I don’t really know ..... just trying to think about how I might have dealt with the situation I guess.

There must be some advice around it, whether to try to correct the mistaken understanding, or just leave it be and try to work with the more lucid moments perhaps.

I hear your frustration and distress.

💐💕

In response to: Re: New to being a Carer, I’m in over my head

Re: New to being a Carer, I’m in over my head

@Faith-and-Hope I do have to judge the moment, most of the time I just agree and not make an issue of it, but sometimes she starts to go looking for her or she wants me to make a meal for her too. Sometimes she’ll straight out ask where she is, if she has died.

In response to: Re: New to being a Carer, I’m in over my head

Re: New to being a Carer, I’m in over my head

Hugs @Razzle .....

Not easy at all.

In response to: Re: New to being a Carer, I’m in over my head

Re: New to being a Carer, I’m in over my head

@Razzlemy friend , when your mum talks about her mum , it might be just easier to agree with her

I am doing this to my mum instead of reminding her that she has told me that already xxx

In response to: Re: New to being a Carer, I’m in over my head

Re: New to being a Carer, I’m in over my head

@Shaz51 Yeah I do agree with her most times, it’s usually when she asks me directly if she has died or not, or when she goes searching for her. We can have the same conversation 50 times or more a day on a particular topic, I always respond as if it’s the first time she’s ever said it - because it is the first time for her.

She was looking at a catalogue this morning at breakfast and was talking about those free minis if you spend $30. She said what happens for mums that have 3 or 4 kids. She would have said that at least 10 times in 1/2hr, and I answered like it’s the 1st time. It can be frustrating now, but I know she won’t

live forever and in a few years I know I would give anything to have those conversations again.

In response to: New to being a Carer, I’m in over my head

Re: New to being a Carer, I’m in over my head

hearing you on the repetition and confusion @Razzle my grandad forgets and then repeats himself every 15 minutes sometimes. last time we had an appointment with one of his specialists he repeated himself 5 times in less then half an hour and pointed it out to him herself. by the time we left and got home (10 min away) he forgot what appointment he was at, why and what was discussed. he too gets angry or upset if I point things out.

It might be best to just acknowledge and agree with your mum when she talks about her mum. by the next day she wont have remembered telling you anyway. its quite frustrating and draining so try to do some things to destress too.

In response to: New to being a Carer, I’m in over my head

Re: New to being a Carer, I’m in over my head

@Razzle

21 - 27 of 27