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Friends, families and carers

Hot Chocolate Anyone ?

Hot Chocolate Anyone ?

Hi All

There is a thread operating on the Lived Experience Forum under Night Shift where members who are having trouble sleeping for any reason give a bit of a shout-out, to see if there is anyone else sleepless and looking for company. It's been such a great thing, I thought I would start one over here too.

I have had the odd few nights where I have woken up on and off, and my kids have been having a bit of trouble some nights too, depending on what has happened during the day.

Being a carer can be lonely too, so if you are making an after-midnight cup of something hot, and wonder who else might be doing that too, maybe have a look-in here and see if anyone else is about.

☕️

21372 replies

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In response to: Hot Chocolate Anyone ?

Re: Hot Chocolate Anyone ?

Steady here @Faith-and-Hope how gas your day been?

In response to: Re: Hot Chocolate Anyone ?

Re: Hot Chocolate Anyone ?

not much of a carer but just poping in to say hi ☺

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Re: Hot Chocolate Anyone ?

Hello @Former-Member, @Faith-and-Hope, @Former-Member

In response to: Re: Hot Chocolate Anyone ?

Re: Hot Chocolate Anyone ?

Ya @Shaz51,

In response to: Hot Chocolate Anyone ?

Re: Hot Chocolate Anyone ?

You're a self-carer @Former-Member ..... I have always said that ...... you are both C and LE ..... and it's good for you to be here, looking after your carer side. You get fatigued looking after you ......

Steady on the outside @Former-Member, but feeling emotionally tired on the inside ..... I have questions and nobody to ask them of. They are the sort of answers associated with dx.

In response to: Hot Chocolate Anyone ?

Re: Hot Chocolate Anyone ?

Hi @Former-Member .... 💕

In response to: Re: Hot Chocolate Anyone ?

Re: Hot Chocolate Anyone ?

Love that picture @Former-Member

In response to: Re: Hot Chocolate Anyone ?

Re: Hot Chocolate Anyone ?

Hi @Faith-and-Hope. Also @Former-Member @Shaz51 @Former-Member @Determined.

I really need a nice hot chocolate right now, as its been an emotional roller coaster these past few days. Decisions made, plans in place emotional discussions. Sigh.

Hubby is taking it all pretty good, and remaining fairly positive, despite not feeling too well the past few days. He is having some lung and chest issues, likely symptoms from his melanoma starting to show themselves, according to the oncologist.

After making decisions over the weekend for hubby's anti-cancer treatment, today we have been given a treatment start date of Thursday week. That will give them time for the medications to come up from Sydney. Luckily treatment can all be done locally in the oncology clinic at our rural referral hospital. So thats a definite positive. So every 3 weeks over the next 12 weeks, hubby needs to go to the oncology clinic and have a 4hr infusion of anti-cancer Combination Treatments. After that it reverts to just a single drug which will be a 1hr IV infusion every 2 weeks. That will be for however long the treatment remains effective, if at all. But only for a maximum of 2 years. Not sure what happens after that?

We have an appointment at the hospital on Friday for an education session. I think its to give us more of an idea of what to expect, what to look out for, when to seek Dr assistance while undergoing treatment, meeting more members of the oncology team, all that kind of stuff.

So I have just been drifting along from day to day, in a bit of a physically and emotionally exhausted daze really. I think I'll be glad when treatment starts, then we'll have a bit of an idea of how hubby is going to tolerate the treatment, and even whether he will be up to staying on it.

I'm sorry I havent been around to support any of you good people. I've really just been poking my head in from time to time and checking on you all, but saying very little. I just havent had much to say that would help anyone unfortunately. I really do care though.

Sherry

In response to: Hot Chocolate Anyone ?

Re: Hot Chocolate Anyone ?

Just poking your head in is fine @Former-Member. You have got more than enough going on for you than to be worried about supporting anyone else here ...... we know that you are a cery caring person and wish us all well, whether you are saying ao in the minute or not.

I hope it all goes as well as it can for your hubby and I wish you good strength h and energy to walk along with him.

When I have internet back on (!) I will post you a hot chocolate Hon ......

💜💐💕💜💐💕💜💐💕💜

In response to: Hot Chocolate Anyone ?

Re: Hot Chocolate Anyone ?

Hi @Former-Member

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