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All over again

All over again

Well, maybe not all over again, but it is very similar to the awfully inadequate transition from foster care phase I wouldn't wish on anyone. Long story short, at the moment I am in "transition from youth services", and have to be out and acclimated into adult services before May next year, which is a month before I turn 25.

I am already used to adult mental health services because they begin at 18. That doesn't mean they aren't grossly inadequate and inappropriate for my needs, however. Currently the only service besides the NDIS available to people with severe and persistent mental illness is the Plus Social program.

Plus Social uses the social model of care and social prescribing. The main part of the program is attending social groups and participating in activities with peers. This is supposed to be adjunctive to clinical care like medication and evidence based therapies.

In theory, it sounds great and no doubt helps a lot of people with severe and persistent mental illness who would otherwise experience a very high degree of isolation and social stigma, and who are typically treated like a waste and burden because our clinical symptoms don't improve much, if at all, regardless of any treatment or services we receive. I believe the combination of using both models of care is a step forward.

However, what it fails to take into account is that a high percentage of this population in my area are not receiving any clinical care because the public mental health system wants nothing to do with us, and the vast majority of us are on DSP and cannot afford private care, not even the sessions that Medicare rebates, which let's be real, for someone with this level of symptom severity is nowhere near enough, especially if you have multiple mental health professionals.

My GP and I have no joke spent the past 6 years trying to find me appropriate clinical care. We have basically given up because it is always inadequate and that is even if there is anyone willing to treat me. I may as well have a label on my head "I'm a huge burden and waste of your time and resources, please treat me like utter sh*t"

Don't get me wrong, I completely understand and accept that I am a lot more to take on board than the typical mental health consumer. I am under no illusion that treating me or even being in my presence is simple, because it most definitely is not. There are several things about me that make me off-putting, challenging and confronting. There is a reason my category of mental illness has "with complex needs" attached to it.

Interacting with me is undoubtedly one of the most strange things most people who meet me will experience in their life. I defy most of the commonly accepted norms as far as human behaviour, and even being human altogether, are concerned. More often than not, I receive ignorant comments about a variety of those things and I have come to expect them.

"The autism is strong in you" is one of them. Gee, thanks for that, of course it is, I am autistic and it is a core part of my being as a person. "You don't look like a trans person" is another one. And just what does a trans person look like exactly? Not that this is the case for all trans people, because it isn't, but I hate to break it to you that me not being clocked is kind of the point in my medical transition.

But for what its worth, you really shouldn't comment on a trans person's body or physical appearance unless they have given consent first. Comments like that are not helpful or useful, because whilst it is true that I pass with clothes on it doesn't mean that I don't struggle profoundly and still go about my existence having to wear a costume. Drawing attention to my appearance exacerbates that and is just rude and inconsiderate, I am a person, not a body or clothing.

I don't expect any cis person to be able to grasp what it is like to have disconnection between brain and physical body, therefore, out of both of our best interests it is wise not to comment on such things.

Anyways, back to the point. One can't really transition from anything if there is nothing to transition to. Plus Social is not an appropriate program for me, because I am asocial as sh*t and am a massive hermit and loner. I have almost no interest in being around other people and none whatsoever in social activities or groups. I don't need or want any connection or attachment to others, nor do I need or want understanding from others because that can easily be faked and forced, and takes away from my individual experience.

My GP and I are left with nothing. Typical. This is why I have basically no choice but to make use of online peer support, because there is literally nothing else. My GP has given me a referral to see the gender psychiatrist again, of which I despise having to go to because it serves no purpose other than to cover doctor's arse in providing trans healthcare to me in the future, that is IF I manage to find any. In any case, I will need his "supporting letter" to hand off to my next GP for continued medical transition, no doc around here will even consider treating a trans person without one.

You know, because I'm not capable of making my own healthcare decisions and deciding what is right for my body. Cough. I will also need his "approval and support" to be placed on the long waiting list for the new service that provides reproductive health services to trans people, because that is the only affordable and accessible route of getting sterilised, of which I personally need and have to do in order to fix my deranged birth certificate so I can actually do something with my life for once.

Personally I think it is ridiculous that a trans person who has been transitioning for so long has to get psychiatric clearance. Like I said, it serves no real use or benefit to me whatsoever, its just a cover doc's arse tactic. My apologies for using that word. But really. I'm over it. Let me get on with my life.

At this point it appears that I will be receiving absolutely zero mental health services as an adult and will have no choice but to continue putting up with the functional consequences of that, and existing, yes, existing, not living, in a world that is in no way compatible with me on any level.

And 6 years ago I thought I would have a job and no longer be forcibly dependent on the state anymore. I'd laugh if it was funny. Young adult naivety. Well, in my defense, I was hidden from the world for most of my childhood and had basically zero social awareness unless it applied to the tunnel vision of the corrupt beyond belief foster care system and child protection law.

I beat myself up now I am more of a grown adult for being so stupid and naive. I should have known better, given my experience as a child, but you know, entering the real world, society, after leaving foster care and a childhood of being locked away is a profoundly surreal experience.

38 replies

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In response to: All over again

Re: All over again

Sometimes we don't see it in ourselves.

What you getting up to today? I'm going to get a little bit of exercise soon. Making the most of the pleasant weather.

In response to: Re: All over again

Re: All over again

Cool.

In response to: Re: All over again

Re: All over again

I'll be doing a whole lot of squat as per usual. Anyways, this is getting nowhere as per the usual, so goodbye.

In response to: Re: All over again

Re: All over again

I just want to say that whilst I was out of line and it is my job to take responsibility for that, in my opinion it is never OK to speak for someone else and the state their trauma has left them in or to project their perception of a survivor on to them, whether they mean well or not. I don’t think that others can describe the impact of anything I have endured, as that is undermining to me and makes me feel like I am a fool. Thus, I do not agree with the statement that "sometimes we don't see it in ourselves".

I don't think others can compare their suffering to mine and project their wishes onto me. In my opinion, others should not communicate in such a way wherein it is portrayed that the impact of one’s trauma is less than for any reason whatsoever.

It is not anyone’s place to conceptualise or communicate about me or my trauma in any manner. Especially if they were not there, they did not go through it. Members of the forums only know what I choose to divulge about myself. They don't have my life and they don't exist in my life. They are not me, so they don't have any place to make any judgements about me or my life, whether it be good, bad or otherwise.

I am the only one who can do that, and it is up to me to decide what resilience is and isn't for myself. It is my job to identify it, and it is only genuine if I do it myself.

I believe just because I have endured what I have it does not make me some poster child for child abuse survivors and recovery. It doesn't mean anything other than I am a child abuse survivor.

I am not excusing my out of line statements, but I am making it clear that I do not agree with many of your statements above. No-one here is wearing my shoes and I didn't give permission for them to steal my shoes and try and fit them on their own feet. I do not want others to comment on what characteristics they perceive me to have, and I never will because determining and affirming those is my job.

I didn't come here for sympathy or emotional support, or to be asked how my day is and what I'm doing. I came to try and find people who can provide me with actual answers or ways to deal with the problems in my original post.

I respect that many members interact in this manner, but I would appreciate this type of interaction being avoided in my case.

In response to: Re: All over again

Re: All over again

Hey,

I hope everyone is going okay tonight. It can be a challenging thing trying to support each other, and this can be especially hard online. Sometimes if we are not supported in the way we hoped it can bring up intense distress. @Former-Member I notice you have clarified more what you are looking for on the forums and that can be helpful in communicating with other members.

Thanks for expressing yourself so respectfully. Just a reminder to everyone to please be gentle with each other. And remember that as much as forums are really helpful most of the time, sometimes they can be hard and it's important to look after yourselves. The self-care and addressing conflict part of the guidelines might be helpful for this.

Take care,

Tortoiseshell

In response to: Re: All over again

Re: All over again

More like none of the time.


@Former-Member wrote:

Hey,

I hope everyone is going okay tonight. It can be a challenging thing trying to support each other, and this can be especially hard online. Sometimes if we are not supported in the way we hoped it can bring up intense distress. @Former-Member I notice you have clarified more what you are looking for on the forums and that can be helpful in communicating with other members.

Thanks for expressing yourself so respectfully. Just a reminder to everyone to please be gentle with each other. And remember that as much as forums are really helpful most of the time, sometimes they can be hard and it's important to look after yourselves. The self-care and addressing conflict part of the guidelines might be helpful for this.

Take care,

Tortoiseshell


In response to: Re: All over again

Re: All over again

You know what, I am over this place. I've been waiting almost a day and a half to have emails responded to regarding this topic, I am over having to censor myself for you and being treated like a fool. Please delete my account so I don't have to put up with the nonsense anymore.

In response to: Re: All over again

Re: All over again

Hey @Former-Member,

Sorry to hear things have felt so hard around the forums recently. Community Managers are often super quick getting back to people via email, but sometimes it does take time. Please continue to communicate via the team@saneforums.org email around closing your account.

I know it can be hard if you've decided on a course of action to have to wait, so please take care of yourself while you wait for a response.

Warm regards,

Tortoiseshell

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