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Exo's Exposé

Exo's Exposé

Looking for somewhere to hide in the Forum, no offense to anyone, I'm just kinda used to my own space - it feels safer to me. I often feel like I'm 'butting in' on other threads, I want to say something but it isn't 'in-line' with the current flow of conversation.

It rained here yesterday, dogs & cats weren't falling from the sky, but the grounds wet, there's puddles in my driveway & it's soooooooo sooooooo much cooler 😄 Guru Google even promises more!! After this weird wet stuff stopped dropping from above, I took the dogs for their walk, I do this almost every afternoon, but after a storm with close lightning strikes, my main purpose is to check the fence is still upright everywhere. I'm happy to announce it was all in tip-top shape 🙂 I noticed new puddle spots all the way around, I was sad that some trees had to be pushed over for the fence line, but the dip of their absence looks quite beautiful with a drop of moisture shimmering within. When I had completed the usual circuit I by-passed returning into the house-yard & wandered through to the dam. I think I may have been a little rain-drunk, I was hoping to see water in it, there wasn't any. I even went & stood in the very center of it's base, I think I was expecting to sink in mud - I didn't; but the cracks are gone . . . & they were huge. So if the Guru comes through with it's promise, there may yet be a puddle for my Staffy to play in 😉

I've decided to leave my camping trip to the beach for another week, rain wouldn't stop me - it rarely rains 24 hrs a day, but storms have - they often have devastingly strong winds that can break off & pick up reasonably heavy objects, that become dangerous ammunition. I've been emailing with the owners of this place, I'll still be in the off-peak season if I leave it another week - though I worry being so close to the Easter holiday, there's a more likely chance of more people. I keep telling myself I've just got to 'get over' that, that that would be all part of the experience - but I know I'm lying to myself. I picked this spot mainly because of the dog-friendly off-lead beach, but also because on the satelite view of Google maps I could see that there's no towns around it. It's one of the most isolated camping parks I've seen {that's within 5 hours of home, well - maybe just a little more}. It also admits it has old amenities, I saw negitive feedback about the place for those reasons - I think if you want to go to a resort . . . that's where you go - not to a place that describes itself as a rustic, old fashioned bush camping park 😉

Missing you Mazy Loads of love & support @Mazarita

1141 replies

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In response to: Exo's Exposé

Re: Exo's Exposé

It's been such a long time since I've been here, & everything's changed - I'm not even sure how to post anymore. I'm not very well, I had a lot of fluid on my lung, they drained it but it's returning. Even though they tested the fluid & didn't find cancer, nor could they see anything on the x-rays, they're still saying it 'something sinister" {not a very profession term in my opinion}. So I wait, for the fluid to build up again, enough for them to do a biopsy. I've been waiting for nearly 6 months to find out whether it's cancer or not, though not one doctor has said it isn't & the local community nurse is wanting me to get a diagnosis so that I can go onto palliative care. I'm feeling very alone, for 6 months I've thought 'this is it', it's scary, I can't do much - the breathlessness gets worse as the fluid builds . . . but I have nobody that will come to my home & help me.

In response to: Re: Exo's Exposé

Re: Exo's Exposé

Hey @Exoplanet,

Thanks for reaching out. Your post is very sad. I am sorry that you are experiencing all this. It must feel very scary, disheartening, uncertain and painful.

Sitting with you 💜

Xx

In response to: Re: Exo's Exposé

Re: Exo's Exposé

Sitting with you too @Exoplanet ….. ❤️❤️❤️

@Shaz51 @Appleblossom @outlander @hanami @Mazarita @Jacques @Kurra

In response to: Re: Exo's Exposé

Re: Exo's Exposé

Hi @Exoplanet ,

Yes, the forums have changed considerably to the newer, bolder, unapologetic SANE.

Firstly, welcome back. I'm sure members have missed you.

I'm sorry to hear how difficult it is for you at the moment. I hope you will be able to find some support soon.

We are here to emotionally support you through this tough time.

Kindest, tyme

In response to: Re: Exo's Exposé

Re: Exo's Exposé

Oh @Exoplanet

It is really good to see you. You are one inspiring lady. You deserve help at home. You have been so resourceful and practical. I am in awe. It would be scary and difficult. Wishing you the best possible whatever the outcome of tests. I am not sure how to nudge the services into help. Cant your nurse arrange something in the meanwhile?

In response to: Re: Exo's Exposé

Re: Exo's Exposé

hi @Exoplanet , just a quick question, do you Vape? there is a pnumonia type illness that is a mystery at the moment called lipoid pneumonia it has a lot of doctors really stumped as it is not a virus or bacteria normally associated with regular pnumonia.

In response to: Re: Exo's Exposé

Re: Exo's Exposé

sitting with you @Exoplanet im sorry your going through this. i would look into getting some supports at home even to help with a little bit of housework. your doctor or the community team should be able to help you and im really surprised they havent helped you more

sending lots of love

In response to: Re: Exo's Exposé

Re: Exo's Exposé

Hi @Exoplanet

So sorry to hear about your current issues. It must feel awful for you. I have no words that will make you feel better. There probably aren't any. Just want to say I'm sending hugs and care and really sorry you're experiencing this.

❤️

In response to: Re: Exo's Exposé

Re: Exo's Exposé

Thank-you everyone that supported & responded to my post, it's amazing really, I didn't even
tag anyone . . . I didn't know who to tag. It has uplifted me to see familiar names & it's always blown me away that total strangers will reach out & do whatever they can to help.
I think the scariest thing is the lack of medical attention. When I first went to the doctor
I was sent off for an x-ray, you could only see my collar bone & the top rib on my right side,
the rest was white as the x-ray doesn't 'see' through the fluid. My then doctor {I've changed
to a local one for less travelling} tried to make an appointment with the respiratory specialist, but even with a doctor trying to make the appointment, I couldn't be seen for a month! I think it's because I can't afford to pay & I have to go through the public system.
By the time I got in there my lung had collapsed & it wouldn't 'come up' properly because it
had been {another unprofessional term} 'squashed' for too long. The method they use to drain
fluid from the lining of the lung is quite painful, I may not have moved or made a sound, but
it hurt. Knowing that the next time will be worse, as the needle is longer & has to go further
to get the biopsy . . .
I asked about having a permanent drain put in, I was told that is an option, but once done it
seems they wouldn't be able to get a diagnosis. So, I'm left wondering how many times I'm going to have to go through that procedure & how long, how often I'll have to deal with this ever-increasing pressure in the right side of my chest?
I think the public health system is more than broken, I still can't fathom that it took a month
to be able to do something about a collapsed lung! And no-one seems to have even considered the thought & emotional distress that is caused by all this. I think I'll stop now, thank-you for sitting with me & giving me the thought & emotional support that no-one else in real life does.

@outlander @Appleblossom @Faith-and-Hope @Jacques @Former-Member @tyme @hanami @Mazarita (still miss you)

In response to: Re: Exo's Exposé

Re: Exo's Exposé

❤️ ❤️❤️

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