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Son with no insight into his mental condition

Son with no insight into his mental condition

Hi, I am new to this group. I have an 18 year-old son who is mentally unwell. He has got progressively worse over the past 8 years despite trying numerous avenues to get help. He was initially diagnosed with depression, anxiety and OCD. He was prescribed antidepressants and psychotherapy. He was on those for about a year during which he improved though they made him feel drousy and disconnected. He reached a point where he refused to continue taking them. He said they were changing his personality. His OCD behaviour became progressively worse. He has also started to threaten self-harm and be violent towards us. He has become paranoid that we are trying to drug him to suppress his personality. He is very controlling and demanding. He won’t touch any door handles out of fear of contamination, so we have to do everything for him. If we don’t he gets violent. He has kicked in about 5 doors this year which we had to replace. He dropped out of year 12 because the anxiety made it too difficult to continue. He now spends his time researching conspiracy theories on the internet and watching YouTube videos. He won’t let anyone get within a metre of him, is constantly asking us to confirm if we have touched a bin, or touched him or something. Life for the family has become unbearable. Twice this year we have had to call 000 when he got extremely agitated and we were concerned for his and our safety. The second time was the day they moved house. He became convinced the smartmeter in the new house was giving him headaches, cancer and was a form of government mind control. He was admitted to hospital involuntarily and we hoped we would get help. However, the psychiatrist didn’t think his condition warranted being made to take medication against his will. It is difficult since he is 18 and can be very convincing and hide a lot of what he is thinking and doing. The doctor did not seem to reach a conclusive diagnosis. He said he may be suffering from a psychosis or he may just have a very eccentric personality. So he was discharged with a referral to Headspace. He has been to one appointment there, but he wouldn’t tell us anything about it and since he is 18 we don’t have permission to find out from them.

We are also going through several other major issues in our family. I am transgender (male to female) and in the process of transitioning. As a result, my wife (his mother) and I have separated. Our other child also came out as transgender (male to female) and is also transitioning. We sold our house and my wife and the kids moved to a new house. I am living an hour away in a flat in the inner west because it is a more accepting environment. So there have been a large number of stresses. In addition we are immigrants with no family here to help us. And as a result of our son’s OCD and my daughter and I being transgender we have become very isolated. My wife has taken all of these things on her shoulders for so long and is severely depressed herself now. I am not sure what to do or where to go for help. We only seem to get limited help. I feel that we either need someone to stay with us for an extended period and coach us on how to deal with his behaviour, or for him to be hospitalised and made to take medication. I don’t know if the first option exists and if it did would probably be too expensive. We tried the second option, but the doctors didn’t believe it necessary, it seems like they need someone to be injured before they will consider it necessary to hospitalise.

My wife works I’m disability care and people with physical disabilities get provided with some care. I feel that my son needs a similar level of care, but mental illness is less tangible so doesn’t seem to get the same priority.

Any suggestions as to how we could get more help would be appreciated.

Many Thanks,

Stefanie

35 replies

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In response to: Son with no insight into his mental condition

Re: Son with no insight into his mental condition

@Dadcaringalone Hey Dadcaringalone thank you for your compliment re highlight of your day 🙂 what a lovely thing to sayxx. I would have to say the same thing re seeing your messages as well. Just having a connection with another who gets it, is a wonderful thing :).

Great that your children can now get youth allowance. It makes such a difference doesn't it. I understand completely that you son has a delusion re being labelled because of his mi. It is a huge burden to carry around in itself without others knowing.

Which footy team do you barrack for? I go for Parramatta and the Swans. I also like watching local club rugby union. Haven't been to a footy match in years .... I really should go sometime :). I really love watching ice hockey if ever I get the chance that is perhaps my favourite game of all. Love greenpeaxx

In response to: Re: Son with no insight into his mental condition

Re: Son with no insight into his mental condition

@Bunniekins Morning Greenpea, yes it’s great to have someone else who also gets it! I also like the lack of prejudice because when I mention anything to do with mental health both family and friends change and they treat you differently. One of my good friends says that a lot of people and also doctors like to blame mental health on the family rather than just accepting that it’s something that just happens for a range of reasons. I find it pretty condescending when doctors try to educate you about mental illnesses when we have lived experience which is far different to their usual academic experience!

Yes, it’s a relief to know your kids are getting some type of financial support while they are studying. I would like to try and get my son on a disability pension and he said that he’s ok about that but I will need to lead that whole process because it’s very triggering for him. Today’s a big day for him because he has the 1st part of his final exam. Because he’s registered with disability services at Sydney uni he gets a private exam room and they break exams over 2 hours into 2 separate exams. He has the first part this afternoon and the last part tomorrow morning. Because his medication knocks him out completely in the morning we have pushed very hard to get all his exams in the afternoon except tomorrow but I will drive him in for that and just wait around for him with a coffee. I have to get him up shortly so he can go into uni and study before this afternoons exam. I will drive him to the train station because it’s freezing at the moment and he’s particularly sensitive to temperature changes. Not many people realise how much I do for him and it often peaves me off when people comment how high functioning and well he is doing and completely disregarding all the caring going on behind the scenes! I keep doing absolutely everything for him and hope one of these days I will get a break. I love him dearly and will always be there for him even though sometimes when he’s sick because of his lack of insight it’s a real struggle keeping going because he’s like another evil person and all the treating clinicians treat me like I’m the root cause rather than the only person who’s still there to support him.

So you are also a bit of a swannies supporter, another thing we share in common. Not really into Rugby but love AFL. I used to play so I appreciate all the technical aspects of the game. Just got this pretty cheap membership so I can go to as many home games as I like and I’m sitting with the correct crowd if you know what I mean. I like watching all the games as I’m more interested in the technical aspects and really love a very close even game. Been to a few Giants games but they are not the same as the Swans. Just got this Sports App called Kayo and I really love that because you can cast the content on your big screen or watch it on your mobile device. Looking forward to watching Ash Barty in

wimbledon very soon.

Gotta run because gotta have some healthy fruit before getting my son up. Gotta a bit carried away writing to you. Have a awesome day Greenpea and hope it’s very happy for you. XX

In response to: Re: Son with no insight into his mental condition

Re: Son with no insight into his mental condition

@Dadcaringalone Hey Dadcaringalone I am pretty lucky I have only had one instance where a so called professional (psychiatrist) made light of my son2s situation when he was very young about 6 or 7. My son2 started to show signs of schizophrenia when he was very small and we would take him to see various psychiatrists and others for help. This particular doctor called my son2's visions as 'weird and wonderfulls'. I so wish this particular jerk could see my son2 now and hear what journey our family went on to get him there. He was so dismissive of our concerns luckilly for us all the others took son2's symptoms seriously.

I hope your son does well in his exam. It is great that they can accomodate him in a private room that would make all the difference for him. You are a great dad with all the things that you do. A selfless dad who truly works hard at making his son's life a better place. I am so happy that you have some free time to visit the footy (I get what you mean about where to sit lol). It is so important isn't it. You used to play! Wow so you would get the techical stratergies compared to the rest of us.

I also love watching the tennis. My mother is a huge tennis fan I must ask her about her feelings on Ash Barty. She will be up all night watching wimbleton lol and she is 83!.

Good talking with you. Take good care of yourself. Speak soon. Love greenpeax

In response to: Re: Son with no insight into his mental condition

Re: Son with no insight into his mental condition

@Bunniekins Morning and thanks for your kind message. Just dropped my son off for his final exam! He was pretty volatile on the way in but I think that was probably because he was nervous, so I just let it go. Just having a coffee in Newtown waiting for him.

Thanks for your kind words about being a supportive father! I try my best. My mum is also a tennis addict.

Enjoy your weekend and take care

XX

In response to: Re: Son with no insight into his mental condition

Re: Son with no insight into his mental condition

@Dadcaringalone wow Newtown great area for cafes and restaurants :D! Been awhile since I have been in that area of the woods. Hope you son is happy with his exam effort. At least it is over and done with for him. Now both he and you can relax a bit:). Have a great weekend too. Love greenpeax

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