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Partner has schizoeffective disorder and rapidly becoming unwell

Partner has schizoeffective disorder and rapidly becoming unwell

Why this illness for us always seems to rear its ugly head on a weekend I will never understand!!! Doesn't it know the mental health team don't work on a weekend??? Doesn't it know family interstate are happy to give advice but not willing to jump on a plane and be here for their own son because it's an inconvenience!!! Doesn't it know that in reality and despite what we all like to say....we are in actual fact alone!!!!! Once again i am in this situation , yes I choose to be in it because my partner of Dix years is a beautiful person but he has a brain disease and most of the time his schizoeffective disorder is only a very small part of who he is but today it's a huge part and it is increasing in size as every day passes, I have never known a weekend to pass so slowly! My saving grace is that tomorrow is Monday and for the first time in his life living with this illness he has actually agreed to take himself to his doctor for a 'top up!'If he doesn't have this he will inevitably be hospitalised like every other time but this time we both want it to be different. He is still able to hold a rational conversation and agree with me that he is becoming unwell... yes he may also being agreeing to appease me but that's fine...just like he says he is only going to see his doc tomorrow to keep ME out of hospital... that's fine too if that's what it takes to get him to comply!!!! I am exhausted, he rambles, I don't want to hear about the berry growing in our yard that is the cure for cancer, I am tired of hearing how lemon peel in his tobacco pouch is helping him smoke less or that we are going to be richer than we could ever imagine after he has built the engine that runs on water only.......yes my partner is a qualified mechanical engineer and can fix anything, even built his own drilling rig for opal mining but enough is enough.... Sorry to sound selfish but I am tired of hearing about it all and just responding with.... That's your reality but it's not mine.... He is okay with that response as we have discussed possible responses when he was well!! Today he finally admitted to hearing voices so once again Monday for me cannot come quick enough sling with another depot!!!!! Sorry to put it all out there but in reality I am alone, his family pretty much don't want the inconvenience and I font want our friends to see him unwell so we are alone!

14 replies

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In response to: Partner has schizoeffective disorder and rapidly becoming unwell

Re: Partner with schizoeffective disorder hospitalised

Cherishing the good moments even in a crisis shows a lot of love and understanding. Glad they let the dog in. You are balancing a big load. Take care.

In response to: Re: Partner with schizoeffective disorder hospitalised

Re: Partner with schizoeffective disorder hospitalised

Yep it is a balancing act and finding the right balance is not always easy. The pyschiatrist actually approved leave for him this weekend so his mate could at least take him to our place to see the animals whilst I am away but unfortunately they reneged as he was a little agitated this afternoon when I popped in to see him before leaving for my weekend of respite. However I rang the hospital a few hours into my drive and they assured me that he was calm again.....they gave him another depot to flatten him... and he has since apologised to his pyschiatrist and cancelled his appeal hearing.... he always, without a doubt appeals the process, has done so for the past 20 plus years but only won once, the last time he was hospitalised and that was after being in for quite sometime. He has only been in since Tuesday so we shan't be counting our chickens before they hatch.... he needs proper rest and lots of sleep as the oral sedatives simply do not have any affect on him but the depot does. It is sad to see him so flattened but whilst he rests he is healing, so they tell me. Such a roller coaster but we will all be back to our normal routines soon enough I am sure.... not that there is any rush but I do hope he can come home soon enough and complete the recovery process at home as he does recover quicker when in his own surroundings and this is possible if mental health can organise a nurse and MHW to visit daily......surely his caseworker can manage that although I have noticed that he has not checked in on my partner since seeing to his admission on Tuesday and it's not like he is a long way away as it is on the same hospital grounds. I really am quite unsure of the exact role of a caseworker!!!! My understanding is that when on a CTO they are supposed to visit or at least make contact weekly but in the six years that he has been on one this has never happened, once a fortnight for awhile but very soon after that it was a phone call once a month if that!!!! I thought the role of these workers was to do the 'maintenance ' side of things and check that he was having his depot fortnightly etc but that never seemed to happen and now he is hospitalised I thought they would check in regularly to see where things are at but apparently not, apparently they now take a back step and let the treating team at the hospital take over.... so what exactly is in their J&P, that's what I would like to know!!!!

In response to: Re: Partner with schizoeffective disorder hospitalised

Re: Partner with schizoeffective disorder hospitalised

@Attahua

I hope you had some decent respite and your partner is settling.

I havent been involved with CTOs .. so not much use in answering questions ... just concerned you are doing ok.

In response to: Re: Partner with schizoeffective disorder hospitalised

Re: Partner with schizoeffective disorder hospitalised

I am actually doing okay Appleblossum thank you for asking!! I was able to take my daughter away for a very rushed respite weekend but well worth it and the break away from the daily routine of hospital visits was nice. Naturally I went straight to the hospital as soon as we returned and then again about an hour after that as my partner disappeared from the ward for a bit but I managed to locate and return him so all is okay!!! Am having an early night tonight so that I am refreshed and ready for whatever this week has in store for us!!!My partner is still very unwell and delusional but we have managed to have a laugh today which I love hearing as he doesn't really have many good old belly laughs so that was great!!!

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