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CLOSED // Topic Tuesday // Caring for someone with bipolar

CLOSED // Topic Tuesday // Caring for someone with bipolar

In recognition of World Bipolar Awareness Day, tonight we are focusing on carers who have a loved one with bipolar.

We are @Jo, who, during the 1970s/1980s was part- time carer for her sister and nephew, both of whom lived with schizophrenia and from the 1990s on, has been full time carer of her son who has bi polar disorder. She also brings carers together and runs workshops on how to take care of themselves.

Jo will be around to answer you questions and share some of her own experiences and will also be throwing out questions to learn more about YOUR experiences, so we can share and learn from each other.

A big hello to all those who wanted to join in tonight - @Bob @Tara1 @Mama_Penguin @Shaz51 @Chezrailee @Longdog @Millie12 @DaveShaw and @Mazarita *waves*

Jo is going to kick off the night by asking you some of the most common questions she gets as a carer 🙂

69 replies

21 - 30 of 69

In response to: CLOSED // Topic Tuesday // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Hi @Titanic
Welcome to the discussion.

I'm sorry you're going through this. Having health problems on top of being a carer must be really difficult.

Above all, your safety is paramount. You mentioned he's getting better through medication and therapy, which is great to hear. I hope this means the threatening behaviour has stopped - as there is no excuse for that.

I'm sorry to hear that you have been led to believe that you won't have a carer if you need one. There are many people with bipolar who have the ability to also be a carer. This could be either or both emotionally or physically.

If this isn't the case though, I would suggest at looking at formal community support - whether that be practical (help with the chores around the house)and/ or emotional support (counselling, support groups, respite care)

I hope you find tonight helpful.

In response to: CLOSED // Topic Tuesday // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Wow that is very tough, you definitely need someone to look out for you...do you have any friends that understand your situation?

In response to: CLOSED // Topic Tuesday // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

@Heartworks - great points around grief and frustration!

In response to: Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Hi Everyone,

Jo is still having some technical issues - so I will continue to facilitate the conversation though 🙂

*sending Jo some good tech vibes*

So our next question is:

Do you re-arrange your personal daily routine to cope with the periods of mania and depression your loved one goes through? If so, what strategies do you apply at these times?

I'd also love to hear from anyone who has bipolar, what your loved ones could do (or what NOT to do) to assist when you are experiencing mania or lows?

In response to: CLOSED // Topic Tuesday // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

A question we (my husband and I) seem to ask oursleves a lot as carers is, are our expectations of our son (who has bipolar) reasonable? Should we expect him to be able to pick up after himself, to put away dirty dishes, to remember simple tasks that we feel he's capable of?

I feel he often uses his illness as an excuse for not doing the boring, menial, day-to-day tasks. And it makes be really frustrated and angry at times! But asking him to do things usually goes south. So we find ourselves tip-toeing around him a little too much.

A classic example was today. When he's 'good' and his mental illness isn't affecting him, I find it harder to NOT get frustrated by what I see as a lack of thoughtfulness and just being lazy.

So my questions are:

Do I need to reassess my expectations or are they reasonable?

Should I accept that his illness isn't allowing him to "get his sh*t together" as he puts it?

Should we try to enforce rules and boundaries, like "Pick up your clothes" so that he knows he does have rules and boundaries?

In response to: Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Strategies: (mania and depression, either or both of us - what works for us, in no particular order)

  1. clear the books (that includes appointments, expectations, occasions etc)
  2. having periods when you 'just go with it' We allow ourselves 'bed time' when we don't want to get up, but we don't allow the whole day, every day for a week
  3. pre-prepare meals or have easy cook meals so everyone is eating without max effort
  4. go with the flow - I was the micromanaging queen, trying to have it all neat and organised. Nope - to 'just be' is more than enough
  5. Listen, when you are able. No need to have all the answers just listen ( I speak from both perspectives)
  6. Have the hospital on speed dial or a number on the fridge
  7. dont blame yourself
  8. acknowledge you are doing the best you can
  9. Take a moment to breathe
  10. establish boundaries - what's okay and what's not

In response to: Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Hi @Mama_Penguin
Sorry if you've already mentioned this, but how old is your son?

In response to: CLOSED // Topic Tuesday // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

HI @Heartworks. you've touched on something I feel is often overlooked by health professionals and that is the overwhelming grief that comes with a diagnosis of mental illness. Grief of both the person with the MI and grief as a carer.

In response to: Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

hi @NikNik, he's 18.

In response to: Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

Re: COMING UP: Topic Tuesday // Tues, 22 March, 7pm AEDT // Caring for someone with bipolar

That's a tough one @Mama_Penguin - what you described is what some would stay is "typical" teenage behaviour and that your expectations are realistic, on the other hand, I can understand why you would worry about him being unwell and having high expectations.

In my experience, I don't lower my expectations, but I am flexible. This works well if you are able to tell when your loved one is well or going downhill.

Would you say he understands your expectations. Are there key things he knows he has to do?

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