Hi Queenie,
I don't know what access you have to immediate support, but if you have a psychiatrist or GP that has been with you on this journey I would contact them straight away.
I know it's so easy for me to sit here and preach that. When a spiral gains momentum we sorta go into a freeze like-denial/despair state.
We are so sick of being sick. Fed up, and just can't imagine how we will muster the energy to endure this for how many years, decades. And I completely understand what it's like to hate your life. I have those times too.
I know that when my insomnia revs up my anxiety sky rockets. I am cold with fear because if it is persistent enough, I know where it can lead.
People who haven't experienced hospitalisation for mental illness just don't get that sort of anxiety. And we are the only ones that know our symptoms intimately. You get served out the crummiest, stupidest, most ignorant advice from some people. And they are often wearing gym gear or some sort of fashion Lycra.
There's also a lot of shame involved. Like we are ashamed that we are failing again. It's almost like we too, have internalised society's message that mental illness is weak, made-up, not quite real.
You have to have mercy on yourself and reach out for professional help. I know how scary that is, because the medical establishment can force you to hand over some of your autonomy....
......but I reckon there is a realist inside of you too.
You know that your condition is in fact a physical condition, that has been labelled a mental illness by morons that only understand it intellectually or in bogan-ish.
And underneath all the feelings of worthlessness and despair, there's a tiny part of you that still believes in your own dignity. Even if the doctors don't. Even if the nurses don't, or your family don't. You still do, just a little. In a broken-parts-way....but still - something.
I'm so glad you are receiving the NDIS this year. I bet its been a frigging nightmare to set up.
Take care, and I hope that someone in your health team is kind. It may take a long time to recalibrate, you will feel frustrated and inpatient, but hopefully not too long.
Corny