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To work or not to work: or what is "work" anyway?

To work or not to work: or what is "work" anyway?

Started up this thread to continue the "work" conversation.

@Mazarita

I focus on what I do do ... rather than say I do nothing. EG Part-time teacher, part-time mum, part-time student, renovator, social justice activist, whatever is true and relevant at the time. If they are anti catholics I dont say it was at St Vincent De Paul ... or I talk about secular things with atheists ...... I try to be diplomatic ..

I am the queen of shooting herself in the foot and over self revelation and still struggling ... footless.

I am learning to bounce off a word in conversation and just say something light, relevant not to self effacing, or challenging of the speaker.

I may discuss seeing a client on a day when it was in a volunteer role not a paid job .. if other person has used word "client".

I keep dialogue short and reciprocal but true to self. Eg Complaints about office work has me digging back 30 years ... or talking about new trends of working at home.

I query different values ... about what consitutes work in a general way that opens up conversation if there is anything willing in other person. Open statements rather than closed ones etc..

I am claiming the right to make my own generalisations but not to disagree too vehemently or be too defensive about my social position ... keep things mild so I dont rock too many social boats ... yet all those things still rear the heads... but there are changes ... people start confiding to me their little issues that align with my experience ... they were probably just to embarrassed to be honest and up-front ...

Last year ... I did pull the disability stigma concept out once in a social group ... when I get angry I talk about people who play "kick the cripple" ... people usually twig that they get much better vaule out of me by being respectful ... that is all I ever ask for ... I dont want to be Miss Popularity ... just dont step on my toes 3 times and not expect some response. I usually give gentle warnings too ...

That said ... I did blow up on holiday at the alps ... I had had 2 neck events and I probably did overreact ... but then I am giving myself consideration as I was trying avoid a 3rd neck event in a month. They are pretty painful and render me far less capableit was in the context of lots of operatic passionate expression ... and about personal space ..

I am socialising with more and more with a very wide range of people ... one lovely retired female doctor I met at the recorder was talking about interpersonal issues ... I heard .. "Patronise me at your peril" and asked if I could borrow her phrase. We all laughed together ... I claim grumpy old woman status and try and make it a joke ... but also delineate the issues. I am learning not to take things too personally unless it is really necessary and obvious.

I am less confessional... but only a little ...lol

When I received job application advice from a lady in my disability network I struggled really hard not to laugh at the ridiculousness of what they were "teaching" me ..I did that stuff 30 years ago ... she was ok and got it ... and became embarrassed explaining she had to say these things by law ... but my early job history .. said it all ... I havent sent out many applications in last 15 years ... I couldnt cope with roller coaster rejections or getting the jobs that were unsuitable but trying anyway ...or done my resume properly ... if I had I suspect things could have gotten a lot uglier regarding my son ... because I would have been pushing harder, in more pain, and therefore not so patient or understanding.

I actually have had a problem realising that I am disabled ... my grandfather used to do renovating half crippled .. so did I ... there is plenty of work ethic in our family. The last teacher at a high school said my son worked like a Trojan ... when he worked ... I am not into Sisyphus ... I prefer to reality check ... and if I am rolling rocks around ... I like to at least get a decent rockery out of it.

Sorry ... for the spiel @Mazarita.. does that make sense in the context of @Debstar and the recent Ostara thread?

45 replies

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In response to: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

DEar @Former-Member

It's good to see you.

Not long ago...I had a different life.

But it's gone. I went to Centrelink today, at a Community Centre, these Centrelink people spend their time with people who spend times with mental ill health and other unmet needs, homeless and others....who spend times in the grass ground in my area.

I explained to them how much I wanted to work and they just said. Dont worry. Your doing enough. 3 hours per fortnight is enough for you. Just wait until the middle of the year and see how you are.

What gets me through is reading messages like yours and I dont feel as incompetant.I can barely get through the 3 hours per fortnight.

PP

In response to: Re: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

How many carer hours do you put in with Little Buddha @PeppiPatty

In response to: Re: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

it's terrible @Appleblossom

!/2 hour per day.

BUT I canlt go anywhere without him........

In response to: Re: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

So you are clear about what you contribute to his well-being and what is simply together time

... that is great.

However not everything can be boiled down into hours per week.

Which bit is terrible @PeppiPatty

Sometimes I just love work .. other times I have to drag myself ... that seems to apply to many things in my life.

In response to: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

V cool thread @Appleblossom, and @Mazarita.

my very full days are my work. My efforts are poorly remunerated, but that is not unusual in caring professions. I am a volunteer, a full time Carer, a mum, a mentor, a chauffeur, an advisor, an employer, an advocate, a counsellor, a dog groomer, a writer, medical advisor, DJ, an organic vegetable farmer and free range egg 'producer' an editor, a yogi, an adjudicator, a complex case manager, a snake handler, a caterer, and occasionally a hairdresser. I'm operating, "under contract" through a collection of Centrelink payments, and self managing and administering 4 very large NDIS packages. It's certainly a more varied role than is usual in a single workplace.

i don't have time (or energy) to take on paid employment!

In response to: Re: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

Love it @GothMum

I was looking up the NDIS I read on another thread.

I am feeling a little vindicated at the moment as my son has had a few wins and a few opportunities floating in the breeze.

As mums we just keep on .. you sound like you are doing many amazing jobs ...

wishing the best for you and your kids.

In response to: Re: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

Gee @Appleblossom was that my thread on NDIS?? Is your son applcable Apple??

Your Amazing @GothMum...I used to be like you....then I got overstretched now Apple keeps me calm plus....more like @Former-Member @Mazarita @Shaz51 @Chris

Too many to write all.....

My husband has had a turn of real positivity. Phew.

I dont know I could do what you do these days @GothMum. Can you write how your days go??

Do you have a pet?

Thanks for reading from PP

In response to: Re: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

Gee @Appleblossom was that my thread on NDIS?? Is your son able to apply Apple??

Your Amazing @GothMum...I used to be like you....then I got overstretched now Apple keeps me calm plus....more like @Former-Member @Mazarita @Shaz51 @Chris

Too many to write all.....

My husband has had a turn of positivity. Phew. Poor man has a lot to cope with. He is now a resident of our home together and he has begun a hobby!! He plants and cares for herbs and two trees in our courtyard!!

I dont know I could do what you do these days @GothMum. Can you write how your days go??

Do you have a pet?

Thanks for reading from PP

In response to: Re: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

@GothMum, your range of activities are impressive and inspiring. You are a dj? Awesome. I was very involved in electronic music for some years. These days I put together home made videos. I wonder whether you have always been this actively engaged or if this is the (very productive) result of breaking down out of your academic career in the past. Sometimes the worst things that happen to us give rise to other things that are possibly even more worthwhile. I've had a huge number of breakdowns out of regular work and couldn't complete tertiary studies because of mental health problems, but artistic engagement has been very consistent through everything. At one time I did casual teaching in unis, tafes and community centres based on some artistic success I had with media making earlier on. At present I'm slowly building myself back up again from a very long period of social withdrawal. It feels great to be able to step out into the world again. Welcome to the forum!

In response to: Re: To work or not to work: or what is "work" anyway?

Re: To work or not to work: or what is "work" anyway?

Your Amazing @GothMum...I used to be like you....then I got overstretched now Apple keeps me calm plus....more like @Briar @Mazarita @Shaz51 @Chris

Oh my @PeppiPatty

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