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My son (24) has schizophrenia

My son (24) has schizophrenia

This is my first post but i am desperate. My son J. (24) has been very unwell for years and diagnosed with all sorts of disorders (C-PTSC, OCD, severe Anxiety, eating disorder, etc) but it he has completely deteriorated last year and recently been diagnosed with schizophrenia. he has become very violent, abusive, obsessive compulsive, messy and unhygenic, etc the list could go on for ever... I have to live in fear every day waiting for the next episode to happen (usually on a daily basis). it is not safe for my other 2 children to live with us so we have to keep them apart which is even more heart breaking and very difficult to manage (my daughter is meant to be doing her HSC this year, is struggling hugely to focus and sleep, she also suffers from depression).

J. goes completely 'nuts' when hearing car noise, aeroplanes, machine noise as sensory overload seems to be the prevelant symtom and noise triggers most episodes. living in the city under the flight path is horrendous for him so we have to move to the country and leave the other kids behind. J. did so well at school and Uni, all his potential and future is lost and often i dont see any hope. The pain and exhaustion i am feeling is beyond words !!!! he refuses medical intervention (and meds) as previous doctor visits and hospital stays were more traumatic than were of any help. i am in so much despair seeing him deteriorate and losing his sanity on a regular basis (he talks and walks like a complete 'drunk', behaves totally irrational and violent) he has terrible sleep and constantly sais he feels like he is dying. the cries a lot out of despair and pain, he does not enjoy anything, seems like a 'vegetable', has no friends.

J. has too much anxiety to see another doctor, it is a vicious circle we dont seem to come out of. i had to call an ambulance because he was getting so bad. When they came he suddenly pretended to be 'normal' and they did not take him. he sais if he has to go to a public hospital it would be the end of him due to more trauma (he had a very traumatic childhood therefore i can not bring myself to commiting him to a public hospital involutarily as it would add to all his traumas so we are stuck) i am waiting for him to come to the point that he voluntarily goes to a private clinic but he is adoment he will not do that.

often i just want to curl up in bed and never wake up. the other 2 kids are the only reason i am still here. it is too much to cope with and all my friends have deserted me. i am too exhausted to make new friends or do anything for myself. i just try and get through each day but so often feel like giving up. i am very scared of the future.

my heart goes out to everyone who cares for a mentally ill person, especially to mothers because i blieve they suffer the most watching their loved one! there is so little help out there and i wish we could all get together and talk, cry, exchange experiences, laugh a little. but i feel we are all very lonely, battling by ourselves, feeling helpless against something we can't control. it is heart breaking !! we just need a glimpse of hope and encouragement to get strenght to keep going...

219 replies

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In response to: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

Hi @Former-Member, thanks for the message. I signed up for the course and it's been interesting to read the introductions thread in their welcome area. Possibly more students and professionals than carers, that's the initial impression I got... and people from all over the world. Sorry to hear you couldn't attend your support group. I find it extremely difficult to plan ahead and often have to change plans at the last minute. Had to learn to "go with the flow" a long time ago.

In response to: Re: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

Hello @patientpatient

I do love your username

yes I agree......main countries UK and America I think

at least being worldwide the support will seem stronger.... a larger circle of carers.....worn out family members and friends...even though isolated... knowing that you are not alone does count for something

nothing changes physically just mentally perhaps?

or am I philosophising and dreaming?

my draining...burning out is different...mine is absence...loss...so even though not in my face 24 hours...in my heart constantly...

In response to: Re: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

I did one a few years ago run in Britain. Caring for people with Psychosis. It was good.

In response to: Re: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

hello @Appleblossom

thanks for feedback...always helpful...the more information we are given...the more we can learn

is there anything that you took away from the course that you felt improved the situation? or perhaps answer with your own question and own answer...

I am renowned for being misunderstood

In response to: Re: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

Too much of my situation is past history. @Former-Member Vague for confidentiality.

I have done heaps of research and therapy to survive the odds myself at all.

It was good to see best modern practise succintly put for the benefit of carers and therefore those with LE.

I will be away and off the forums for a while - out of digital contact.

Take Care all you CARERS.

In response to: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

HI @Former-Member thank you for the advise, i find it really hard to navigate myself around SANE website and sadly unable to find this online course for carers. could you explain a bit more in detail how to get there? thanks

In response to: Re: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

Hi @Barbara, that online course info is here. (I also have difficulty with navigation, it's hard to find items once they disappear from the "latest post" headlines.)

In response to: Re: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

thanks @Appleblossom

wherever you are and whatever you are doing take care xx

In response to: Re: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

hello @Barbara

thank you for replying

if you would like to talk please do......

I hope that the course will be beneficial....at worst it will be a distraction

thank you @patientpatient I am hopeless with computer stuff

keep in touch all when you can...helps to keep the invisible thread in place

In response to: My son (24) has schizophrenia

Re: My son (24) has schizophrenia

Thanks @Former-Member. Currently I'm finding it hard to handle the family mental illness situation. Have been up since three am.. Sometimes my brain keeps thinking about ways to help the situation and then I can't sleep. Wondering if I can manage a day at work. Anyways I'll take a look at link when I'm energised again. 🙂 hope you have a good day 💜
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