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VCFS 22q11 Syndrome

VCFS 22q11 Syndrome

Hello, my 28 year old son with VCFS was recently diagnosed with schizophrenia. The syndrome is associated with a high incidence of schizophrenia and yet there is very little information available. I would really like to hear from other parents and carers who are living similar situations.

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In response to: VCFS 22q11 Syndrome

Re: VCFS 22q11 Syndrome

Hello @Quince,

I'm Margot, nice to meet you.

It can be challenging to access connection and support around VCFS with little info out there. I wonder whether your son's treatment team might be able to direct you to some information or support services in your area.

I can see you've joined the discussion happening over here which is great. While you're waiting for a few member's to respond you might like to introduce yourself to the community here

Although there aren't a whole lot of threads so far on VCFS, we have a fair few member's who have the expreince of caring for a child living with schizophrenia. You can check them out by typing key words into the search bar at the top of the page. Here's one to get you started. Oh and one of our member's posted here about tips for supporting somebody living with schizophrenia here

Hope that's a little useful for now. Great to have you in the forums 🙂

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