VCSCasual Contributor
What Do Carers Want
If you as a Carer could ask the Government for help with anything, what would it be?
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What Do Carers Want
35 replies
In response to: What Do Carers Want
JoSenior Contributor
Re: What Do Carers Want
So sorry to hear your story, Alicia. It's heartbreaking being a carer much of the time because of the misunderstanding and consequent fear around mental illness. The loss of friends, and sometimes loss of family support, is so sad. The way you have been treated by your new doctor and Centrelink is disgusting. I wonder if your carer's allowance would have been cut if your son suffered from cancer or heart disease? My heart goes out to you. I know exactly what you're going through.
In response to: What Do Carers Want
youcarewecareCasual Contributor
Re: What Do Carers Want
To Identify, value and recognise young carers needs.
Young carers become the ‘hidden’ fragment in the community, as it is hard to identify who is a carer. The creation of local carer programs, providing opportunities to build support systems, and tailor services to their needs to be established.
In response to: What Do Carers Want
caitlynroyceeCasual Contributor
Re: What Do Carers Want
Have you guys heard of the events, planned for 2016? CHeck them out here. They are scheduling workshops to be held in Footscray and Geelong, suitable for everyone who wants to start up a carer support group, or to refresh their current knowledge and skills.
In response to: What Do Carers Want
Shaz51Senior Contributor
Re: What Do Carers Want
Hi everyone ,
there needs to be more understanding , My husband has had depression all his life , he has been tested for ADHD and anxiety , Depression etc, no help as the doctors don`t know how diagnose what he has , no help financial and health workers, give up and say !I don`t know what you have ¬
Doctors telling him he just needs to change his thinking , A specialist told him in august to take three months off from work , no work , no money coming in , and I don`t have a job , so it would be great if there was some support
In response to: Re: What Do Carers Want
querentxyzSenior Contributor
Re: What Do Carers Want
Money. That sounds pretty bare but it's an ugly truth. Money makes a lot of difference, you really struggle to achieve things without it. Our welfare system is stingy and cowardly, it won't look at people and what they really need. People who think that other people should magically better themselves and their situation, that's because they've always had money and they don't know what it's like to not be able to buy a pair of socks or a cd, or to fix the broken toilet or door or whatever else is falling apart around you.
In response to: Re: What Do Carers Want
Shaz51Senior Contributor
Re: What Do Carers Want
Hello @querentxyz, @VCS, @caitlynroycee, @youcarewecare, @Jo
how is everyone today ??
- Re: What Do Carers Want == How about you
In response to: Re: What Do Carers Want
JoSenior Contributor
Re: What Do Carers Want
Right now I need a large glass of wine !!!! (It's been one of those days ! )
In response to: Re: What Do Carers Want
Shaz51Senior Contributor
Re: What Do Carers Want
Hello @Jo, I totally agree
I am on my second beer xx
In response to: What Do Carers Want
SallySenior Contributor
Re: What Do Carers Want
Totally agree ChocPops - in particular it is ridiculous that families and carers are excluded often from discussions or receiving information from doctors, but we are the only ones who seem to care about their treatment and advocate for them to receive better quality of care. Some psych staff in hospitals are compassionate and helpful, but in my experience most have no idea what families experiences of having a mentally ill child/parent/ etc. are like - either that or they just don't particularly care. I have had psych registrars ask me if I would become a full time carer for my mother (I said no, as among other things, I have my own child to look after), had hospital complaints virtually ignored and dismissed when my mother's safety was potentially placed in danger due in part to poor security on the inpatient ward (the registrar responsible for the blunder of her absconding from hospital was mysteriously "moved" to another unknown Department within days of my lodging of a formal complaint that went to the Head of ATODS). Care is too often substandard because staff appear to have compassion fatigue. More needs to be done to improve the system, but nothing ever changes.
In response to: Re: What Do Carers Want
AppleblossomSenior Contributor
Re: What Do Carers Want
Better Centrelink support.
Better inhouse assessments and case workers.
More mature staff with a broader living experience to give better more empathic and appropriate support. (Tho some young ones are great). Lived experience can also be Life Experience and valuable.
Better management for hard pressed mental health agencies.
RELEVANT SUPPORT for Carer and loved one.
