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And just when we thought things were going well...

And just when we thought things were going well...

I haven't been on the forum for a few months because things have been going well with my teenage son who has schizophrenia. After 12 months of hospitalisation, suicide attempts and psychotic episodes, we finally found the right medical regime for him last December. Since that time, he has been great. He attended school everyday in term 1 and is achieving his potential at school. He has found a part time job and was playing baseball. As parents, we became complacent, even thinking at times that perhaps he was just a difficult teenager last year and wasn't really ill. His case management team were also pleased with his change and progress.

i was wrong. Things do change. In the last few weeks, we have seen some subtle changes and warning signs that have again led to crisis. He is withdrawing again, angry and recently had a situation where he got lost and didn't know where he was. He is agitated and angry a lot of the time and says his voices are starting to come back and say negative things to him. He is demanding we buy him alcohol which we refuse to do because he is 16. He wants the voices to go away. We are not convinced he is telling us or his case manager the truth all of the time and don't know what to believe.

He doesn't want to go back to hospital, but would rather go back to STEPS. We are not convinced that this will be helpful to resolve issues, but rather make things more difficult. Last week he had a major meltdown at his psychiatrist appointment which too us 3 hours to convince him to come home. Home is safe, yet he finds it traumatic because he associates it with his thoughts.

I just needed to talk. Feeling very angry, lost, confused, scared and sad.

13 replies

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In response to: And just when we thought things were going well...

Re: And just when we thought things were going well...

Good morning @Boo13

How are you and how is your son feeling now?

*hugs* to you 🧡🧡💝

In response to: Re: And just when we thought things were going well...

Re: And just when we thought things were going well...

Hi

i am feeling much calmer now, having had a couple of weeks respite for myself too. My son is doing better in the scheme of things. We are currently out of crisis mode and he is coping with life again at this time. You think you understand the person and the illness, but will we ever really know?

What I can say is that this experience no matter how hard has made me a better person for the experience. My son's experience has made me more grateful, a better listener and improved my mindfulness.

In response to: Re: And just when we thought things were going well...

Re: And just when we thought things were going well...

Hi Boo13 - thought I'd comment as there are a few similarities between what you've seen with your boy and what I've seen with my own teenager. Also psychotic, also a heartwarming period of improvement, also a very rapid descent once things started to go south. It is terrible when you think it is all resolved and you have to face that it isn't. Nonetheless I hope he will be one of the lucky ones who responds well.

When my boy is becoming unwell it's frightening for all of us. He will seek out psychiatric help after a few weeks of increasing chaos, then almost immediately regret it and try to exit the system. (He's absconded from the ED, the AIPU and the ICA within the AIPU.) From what you said a bit earlier perhaps your son feels the same way - and if he's smart, no doubt he can be very convincing. You did so well to stand your ground and get him admitted. If it ever happens again, you know your boy, you may have to insist but please, please do so.

It's good to hear that things are going better again. I hope the respite is healing for you all.

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