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Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

Unknown userMember27 Apr 2018, 3:57 pm AEST

Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

We are very lucky to be joined by Sandy Jeffs for this Topic Tuesday. Sandy is an author and mental health advocate who lives with schizophrenia. We are lucky enough to have Sandy as a member of SANE's Peer Ambassador program.

For this Topic Tuesday Sandy will be sharing her own experiences to provide us with an insight into what it's like to live with schizophrenia.

Want to receive an email reminder on the night? Hit the 'Like' button below.

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I'm new here - what is Topic Tuesday?

Topic Tuesday runs from 7pm - 9pm AEST monthly. Each month we focus on a different topic, with the session facilitated by a Community Manager or Moderator. Sometimes Topic Tuesday will feature a special guest, who is an expert in the topic.

The first post of the thread (this one) will give you an idea of what the topic is and what will be covered.

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Throughout the session, the facilitator will put questions out for you to answer, usually asking for your own experience on the topic. To contribute to the session, just hit the 'reply' button and share your thoughts. No answers are right or wrong and everyone is welcome to get involved.

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In response to: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

Helen26Casual Contributor22 May 2018, 7:49 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

I'm sorry to hear that is the case with doctors and the diagnoses

Is it in terms of legal/ethics that diagnoses are not fully explained?

In response to: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

BunniekinsSenior Contributor22 May 2018, 7:50 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

@zandibrot Yes you are right it is a fav of mine and yes poor Ian ....

In response to: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

MumsthewordCasual Contributor22 May 2018, 7:50 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

Hi
I am new here and following with interest. My daughter had her first episode of psychosis earlier this year. She kept things to herself. She did not act out on her delusions nor did they ever enter into any of our conversations. I am baffled that they never emerged given they were so real to her.
I am happy to say she seems to be recovering well.....apart from being tired from the medication.

In response to: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

Unknown userMember22 May 2018, 7:52 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

Hi @zandibrot,

Great to have you along and sharing with us. Everyone's experiences are so different and unique and sometimes some people can find that a definition does help them, others may not need it. The important thing is noticing what is right for you and your loved one as you continue to manage mental health.

In response to: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

Sandy1Senior Contributor22 May 2018, 7:53 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

@MelbourneWoman7

When I first became unwell I didn't know what to do or who to believe. But when I eventually saw a psychiatrist it was helpful because their diagnosis set in train treatment that i didn't always understand or think was necessary for me. I hade to learn to trust my friends and the people who were treating me. and when i did that, a game plan was put in place to help me. So we don't always know that me might need to except the help of others including professional help.

In response to: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

mrsbootsCasual Contributor22 May 2018, 7:55 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

Could you please tell me how I can ask a question on here

In response to: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

zandibrotCasual Contributor22 May 2018, 7:55 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

There is a book I read called Making Sense of Voices by Marius Romme and Sandra Escher that details really good psychosocial strategies for coping with voices.

Personally I have encountered stigma, discrimination, systemic poverty that have also make my life more problematic than it used to be

In response to: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

MelbourneWoman7Casual Contributor22 May 2018, 7:56 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

I feel like i ask the questions over and over again to the doctors and i still dont feel i understand. I dont know if its me or not being explained well. I feel like a broken record saying i dont get it.

In response to: Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

Sandy1Senior Contributor22 May 2018, 7:56 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

@Mumstheword

glad to hear there is some light at the end.....

In response to: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

MumsthewordCasual Contributor22 May 2018, 7:57 pm AEST

Re: Topic Tuesday // What it's really like to live with schizophrenia // Tues 22 May, 7pm AEDT

My daughter told professionals she was hearing voices through an ear piece

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