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So What Now?

So What Now?

I'm new at this ... but here it goes.

Since being a teenager I have dealt with serious bouts of depression. Not medicated, just some counselling the last few times. Then last August I went manic for the first time. (I haven't obviously previously). Lack of sleep, sense of paranoia that people would target me for not agreeing with them, feelings that God had messages for me everywhere, hidden in plain sight, all I had to do was slow down and see. November the year before I was diagnosed with ASD1 and so I thought what I was experiencing was making sense of that. Looking back now I can appreciate that it had been building in little ways for at least two to three months before this .

So I ended up hospitalised for a week and a half (maybe) and diagnosed BiPolar1. I went back to work pretty quickly on greatly reduced hours (which always amazes my psychiatrist) and expected that, if I jumped through the required hoops, including taking my meds, I would return to life as normal. It's now seven months and life is not back to normal. My Dr and Psychiatrist keep saying 12 months at least and at the last appointment said it will be a new normal because of the effect on my brain. Even though I had left hospital, I don't think I came out of the manic phase for another month - but it had felt normal during that time. My psychiatrist has been happy and amazed by the success of my recovery even having been able to reduce my anti-psychotic meds to a lower amount to enable me to function better.

I'm writing this post and reaching out for a number of reasons.

  1. I need a community to join
  2. I continually hear tales of recurrence and frequency of manic episodes and so I wanted to test this as it's all new to me.
  3. So what now? ... How do I live a life on the Autism Spectrum with BiPolar?

4 replies

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In response to: So What Now?

Re: So What Now?

Hi @Rayzed_Edge

Welcome to the Forum a great opportunity for you to find a supportive community. Have a look around the web site there are interesting articles as well as visiting the forum.

Enjoy your time here!!

Sylvester SANE Moderator

In response to: Re: So What Now?

Re: So What Now?

Hi @Rayzed_Edge

Welcome to the forums, it sound as though there has been a lot to manage over the last few years with managing and recovering. I'm glad that your psychiatrist is happy with your progress but i can also relate to the sense of frustration (perhaps) of things not being back to normal. i had a break down several years ago and took time off work. my psychiatrist didnt think i was ready for work a year later but i was so determined and felt that it was the only thing that made me ok and gave me purpose... my type of work didnt accept the type of reduced hours, slow start that my psychiatrist recommended and so i jumped back in full time.

I still struggle with the depression especially and managing it takes so much energy just of itself but i have been able to continue working and surviving. in the past it was because i had a lot of support via a support worker and a psychologist who were all very good.

I hope the forums are a helpful place for you to be,

take care

In response to: So What Now?

Re: So What Now?

@Rayzed_Edge Hi Rayzed_Edge I have a son with Autism and Schizophrenia, Epilepsy and a mild intellectual delay and a daughter with Asbergers and epilepsy. I myself have bipolar1 and schizo so I kind of know what you are going through.

This community, here on the forums, saved my life .... it gave me people to talk to other than my family and a few acquaitances that I have. Kudos to you for going back to work. Many of us cannot. I was studying and just couldn't study anymore after I got sick ... the psychiatrist said it was due to cogntive problems that those with schizo have. It saddens me to be honest but what can you do but soldier on.

I have found taking my medications (although I hate them) is the key to stopping getting sick. Less episodes of mania the better ones cognitive skills are ... my psychiatriast put the fear of god into me. I wont be going of my meds any time soon.

Anyway welcome again and look forward to seeing you around sometime. greenpea 🙂

In response to: So What Now?

Re: So What Now?

Hey there @Rayzed_Edge, welcome to the forums!

Living on the autistic spectrum and also living with bipolar I imagine would be very complex. I don't live with ASD, but I live with schizoaffective disorder which is like a combination of bipolar and schizophrenia in one. I find being supported in a community of like-minded individuals really important for recovery from mental illness. I hope you find reaching out here as helpful to you as I did.

You ask about manic episodes and the frequency of them? I think every person with bipolar is different. For me, I've experienced mania or hypomania a few times, mostly in times of severe stress or if I have gone off my medications against medical advice (off my own back). During these times, I am living a pretty risky lifestyle and having little sleep. I become easily irritated when people cannot follow my train of thought (which I'll be the first to admit is pretty scattered during manic periods). My mania can last up to several weeks at a time and is always accompanied by psychosis too, which makes life complicated.

You sound like you know what you want in your path to recovery (believe me, being proactive is a great thing). You also sound like you have great insight into what works and what doesn't work for you. Avoiding stressors (like reducing work hours) is a great way to maintain recovery.

I'm afraid I don't have all the answers you may be looking for. There are members who live with mental illness and also live on the autistic spectrum. I hope they can provide better answers than I can.

Again welcome, hope to see you around!

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