Fragile

Hi @Appleblossom

Forgive me for the quick response, taking a minute out from work as I need to take a break *sigh

It was for his NDIS plan review. The initial one was no where near sufficient to cover the assistance that he needs. Already the coordination funds are depleted so that statement was to reinforce that I need the coordination funds in his plan as I am not in a position to wholey and soley set his plan up. A) I don't have the knowledge to do so in a way to 100% get what he needs and B) my mental health is not at capacity as a result of his mi, oh the joys...

Thanks for quick response @Anastasia Appreciate it.

It makes sense NDIS want to get it right long term. SO that is a good, for you and son. Yes it sounds like CoS for him is wise, then you can go back to being just a mum, instead of expert on everything that has anything to do with kids, without that frequently quoted missing instruction manual.

My ex and son do not want to do the work of making NDIS work. They prefer to make me scapegoat, which has a big cost for the family, but I cant do more about it atm, if ever. No point in fighting for respect. Best remove self from firing line. I may shift my interest to an African orphanage in Uganda that I have started having online contacts with.

Just back from 2 med things ( X Ray and chem and going to physio in a min) plus carting things to opshop to find they were not taking stuff. Oh Well. Leave it in car for next time.

Still not up for difficult stuff talk. Still triggered, will do physio, and then reward self with figuring out how to plug old tele which finally came back from my and watch a movie. Its been a couple months. )My NDIS LAC thought I was sitting aorund watching tele all day. Little did he know me, but he did not accuse heavily, just slid it into conversation and did not further argue or have more digs. He also acknowledged that my CoS and their Company has been luck lustre, and he would help me get another. I am hoping I can sort it out myself and end up not needing one. We will see. The money keeps pouring into their coffers.

Hi @Appleblossom

Sorry you've had a tough day. Navigating around the NDIS system is a battlefield! I hope you can get the supports set up for you without too much trouble. Sorry ex and son don't want them, shame. Maybe one day? My boy was anti when he learned it meant dealing with people. He's still anti anyone new but baby steps.

Hope physio went ok. And telly too 🙂

Sending lots of healing hugs cause I feel that you might need them xxx

Tagging you @Emelia8 cause you asked to be included. I must admit I'm limited on words as brain overloaded. Both you and Apple and @Owlunar write particularly well. I do hope that my quick replies usually written whilst taking an overdue toilet break at work don't come across as non caring. Far from the truth just all I can manage mostly. Love communicating with you all 💓

Hi @Anastasia

This is just a short message - I have to take a script up to the pharmacy - I left my blood pressure tablets at the hospital and they pharmacy gave me some to tide me over but need the script - so I am leaving as soon as I am finished here

It's okay - you write when you can - I have been through that part of life when no time is your own unless you lock the door in the small room for a few moments and take your phone with you - at least - I didn't have a mobile in the 70s - 80s but I know the pressure. I wouldn't like to live like that again and I really feel for you

Your writing is fine - I understand it and feel your emotion coming through - and that's what we need - to know the emotions - you are very expressive

Now - pharmacy - I think when I get home I will need one of my tablets - they tend to knock me out somewhat

Hugs - Dec

Thank you @Owlunar

It truly means the world to me to have your understanding. I don't have that in the "real world"

Keep taking care of you x

Hi @Appleblossom I would strongly recommend looking at the HireUp website to source your support workers. https://hireup.com.au/ I have found it terrific and easy to use. You can put a job on the job board and be really specific about who you are looking for e.g. education, work experience, lived experience, particular skills you need them to have etc. Let me know if you have any questions about it. I am plan managed and they invoice my plan manager directly, who pays them promptly. HireUp takes care of all the super etc.

@Appleblossom 🌷💐

Hope you are ok dear Apple. 💐🌷🌻

Sending virtual hugs and hugs @Appleblossom

Hi @Appleblossom @@ How you going? you've been quiet, bit concerned, come looking for you. How's the Support Wkr hunt? NDIS nightmare etc. Don't know if I could have strangers in my home or hanging off my every move... rather lock myself away (not that that's healthy option either). And Sorry you don't feel respected by those you love either, ouch! My family can't 'respect' others either, so much arrogance in the world. Best remove self from firing line. Made me chuckle re "shifting interest to an African orphanage in Uganda" love it! Oh dear. Hope you're ok? I've tried to reply a few times but kept losing the page. Just know I actually care, evrn with moods, but you've been through so much, and understand ppl like me better than most. Come back to us. I have my lost girls 23rd B'day this coming week and need to connect with someone - thought of you first. I know it's 9yrs, but still throws me off kelter, (feel lost), knee you'd understand. And physical aches & pains seem worse. And Yesterday I had fall in the street, was so embarrassing, two lovely ladies helped me up, they were in a Carbol work van, so nice. Jared back + knee, lot of pain since, getting worse. Then apt @ skin clinic - took biopsy Feeling😟 Feeling very sorry for myself atm. Anyway, dont stay away too long Apple, miss ya 🎶

EOR🌻🌷🌻🌷🌻

Hi @Appleblossom 😄

Just like @Former-Member , I too have noted that youve been quiet for a while. But I recall hearing you say recently that you likely wont be on here as much any more. Just want you to know that many of us here still think of you, with much affection and admiration. Catch you next time you're on. 😄💖

Dear @Former-Member ... I understand loss and I understand chronic pain. I feel for you on both counts. Next week will be a tough one for you, with your darling lost girl's would-have-been 23rd birthday. I still get thrown off kilter at each of my little nieces birthdays. She should have turned 16yo this year, had it not been for the accident 5 years ago.

Its understandably harder when it comes to the loss of children. Perhaps because they never had a chance to reach all those important milestones ... teenager, finishing school, starting work, 18th, 21st, getting married, having children, etc. Very very hard. And I'm only her aunt. You are a loving, and still grieving mum. My heart goes out to you.🌹

Sorry to hear about your fall, but pleased to hear of the care and assistance you received. 😄

Emelia 🌷