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If I don't get help, a tragedy is going to happen

If I don't get help, a tragedy is going to happen

I haven't posted in a while because I have had so little free time between dealing with the family's mental health problems and working full time. Things are not going well and continue to deteriorate. We are at a greater crisis point than we have ever been before and I fear that unless something dramatic changes to help us then a tragedy is going to happen.

Basically, my husband has bipolar disorder with psychotic symtoms. I am not sure why his psychiatrist does not call it schizoaffective disorder. He is on an anti-psychotic and an anti-depressant and hasn't worked in over three years. Our eldest son has schizophrenia which he battles with constantly. He has spent a good part of his life in psychiatric wards and hospitals and has a large network of support. But he is fragile. Our next son is in denial. He has been diagnosed with OCD, ADHD and GAD and depression, but he does not accept the diagnosis nor the treatment. He is also an autistic savant. And our youngest son is still at school. He suffers a lot in silence and was once on medicatication for Tourette's but is no longer needing it. However, he still suffers a great deal from all the tension going on around him.

At the centre of the trouble is actually our middle son who has bad OCD, untreated. As far as he is concerned, he is only trying to put things right. The problem is not him, it is everyone else. Iin particular, the problem is my husband. When my husband retired he withdrew his super and went on a big spending spree, spending the whole lot in just a couple of months. The despair and desperation this action caused the whole family is completely beyond his grasp. The house is full of the uneeded and unsolicited bling he bought and imposed on us and it traumatised our middle son who likes things simple and uncomplicated. So every night when the rest of us are sleeping (and believe me, even getting that far was a major achievement for us), our middle son gets up and rearranges everything, and I mean everything. Nothing is too sacred to violate. My work things, the kitchen, the linen, even private things we have in our bedroom drawers. My husband feels completely undermined and disrespected and he is angry. His moods trigger his psychosis as they do our eldest son's psychosis. They are now at the point where they do not want the other to be involved at all in their lives. Our poor eldest son needs a calm and peaceful environment and is trying to cope with the war ragin between his brother and his father by going out for long walks. But this is not really helping.

When I get home from work each day I am still grateful to find everyone still alive. But I am walking into a battle zone with huge degrees of hurt, anger and upset and the emotional inability to deal with it on the part of my mentally ill husband and three mentally ill sons.

We need a bigger house with separate living areas. We need to have it decorated by an interior designer and to make an agreement that we will all abide by what the external person thinks needs to be in the house. And I really need another sane adult in the house. It would help my family beyond description if I could leave work and just be here to smooth over the storms, to listen and understand, to mediate and work things out.

My husband is on the brink of a violent reaction. I am genuinely worried and do not want to be leaving the house to go to work.

24 replies

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In response to: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

@perseverer ... very difficult to know what to do. Wellways might be able to assist with support through NDIS for S1 if you do not have already. You might be able to get cheap domestic help through HACC too - is hubby on DSP?

Re: S2 - is the rearranging disorganized or orderly? If disorganized, by stressing this, along with no motivation for work, nocturnal habits, disruption and perceived danger to others, no insight, through constant nagging, you might be able to press the point for CATT,

There should be a duty officer to fill in for S1 if he needs extra support, does husband have a case worker?

In response to: Re: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

@Former-Member, no, my husband is not eligible for DSP because of my teacher's salary. One of the big questions I have been battling with is whether or not to leave the paid workforce. On the one hand, my mentally ill husband is not well enough to care for his three mentally ill sons. On the other hand, financial stress will make them all ill (and we have already had a taste of what it is like the year I took leave without pay for two major operations). None of the organizations can give me what I really need, which is a live in carer, or the financial freedom to be able to leave the paid workforce.

In response to: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

@perseverer

I do not know enough about these things, you are probably more au fait with carer pension and NDIS criteria. Wellways and other MI support groups have staff who can help.

I do hope you can get some help.

Darcy

In response to: Re: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

Dear Australian Department of Health,

Can we please help this poor woman, surely there is some spare funding to provide this carer the help she so desparately needs for herself and her familiy?

There are many more CARERS just like her.

CARERS are not professionals, they are special people with big hearts suffering in isolation and silence trying to do the right thing for their families. It is mostly unpaid and not rewarded, not acknowledged. Please. Can we help her.

Thank you,

Grasshopper3

In response to: Re: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

Good morning Perseverer,

you sound like you are stuck between a rock and a hard place, Im thinking from what you have stated you are the carer for 3 males who are experiencing Mental Illness?

Im thinking a support person for you, depending on where you are residing, Mental Illness Fellowship NTmay be able to assist you in getting you regular aid. if you are out side of the territory have you accessed NDIS?

In the intrem practice thinking about the good experiences you have had in your life and breath slowly and deeply to reduce any increase adrenalin.

Please stay safe and know that Mental Illness fellowship NT is here to help.

In response to: Re: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

Thank you so much, @Grasshopper3. If only!

In response to: Re: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

Thank you, @MIFANTCARER. I do feel caught between the devil and the deep blue sea, that is for sure. I live in Victoria and our services just do not stretch far enough to help families with multiple disabilities. My eldest son who has diagnosed schizophrenia has a network of support and can always access help when needed. Ultimately that means visits to the psyche ward but of course it doensn't end there. Psyche wards in the public system still adhere to the age old prejudice that severe psychiatric illness is caused by bad parenting. So when the doctors feel the patient is stable enough, they want them to go into an assisted living place so they can learn new ways of thinking, living and relating. It angers me that with everything that is known about schizophrenia as a brain pathology, that this system is still prescribed. It is massively insulting to carers. I said to my son, "At home, you can relax with a glass of wine before going to bed. In the assisted living place, they do not permit alcohol but will give you a sedative instead." At home, we at least understand all the little tricks of the trade to helping our sick children cope on a day to day basis.

At present I am home on school holidays so things are at an even keel again. But my office has had all its drawers pulled out and all my work thinks tipped out in a pile on the floor. My furniture is completely disarranged and sometimes I have to move pieces of furniture just to get access to my computer. Yesterday when I tried to cook tea I went into the kitchen only to find the garbage bag from the rubbish bin there, tipped over, with its contents spilled out across the floor. I went to the drawer to get an implement to cut vegetables with only to find it covered in grease. My youngest son is in the process of changing schools and I needed to get his birth certificate to bring with his enrolment form. I had all the family's documents neatly filed and stored in a filing cabinet. But when I went to access the cabinet I found it gone. The files had been pulled out and were scattered across the garage floor. The filing cabinet had been thrown out. I just sat in the front room and cried. I had well and truly had enough. Amazingly, the birth certificate was found and my son was enrolled in his new school. But there is not a single thing I try to do in the course of one day that is not sabotaged and frought with the most enormous difficulty and level of frustration.

In response to: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

Oh @perseverer ... it is so very difficult for you.

In response to: Re: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

@perseverer
This is mental abuse and you need help so you can keep living up to your name: Perseverer......
I hope you get some relief by contacting this forum.
Please do something nice for yourself at least once a day, deep breath in, long breath out, feel the sun on your skin, hug a tree, whatever, please look after yourself too, ok?
Grasshopper3

In response to: If I don't get help, a tragedy is going to happen

Re: If I don't get help, a tragedy is going to happen

@Grasshopper3, I do realise that this is more than mental illness, but how to stop it... I need empowerment, but how? Wherever I turn I am told - with bucket loads of sympathy - nothing anyone can do. I go out birding, and that is my sacrosanct escape.
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