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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for people living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your experiences accessing support and treatment services in Australia. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

148 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Thanks @OhanaSystem - what aspects of treatment and other services have you found the most useful/had the most benefits?

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@EliseSunflower

No, i wouldn't know where to go.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT


@difficulthumanwrote:
I spent years learning Dialectical behaviour therapy while i did see improvements its misleading to say it was an effective treatment for my bpd. In my opinion its only helpful for certain symptoms suicidal and impulsive behaviours, it does nothing for other symptoms.

@difficulthuman my psychologist was saying just the other day that DBT is really just the beginning. That is, learning the DBT skills helps us to be able to manage our emotions well enough to be able to cope with processing the trauma etc. I am a big fan of DBT, but it really annoys me that it is kind-of sold as a cure for BPD - especially since DBT is supposed to have 3 components and yet usually only the one component of the skills training is used.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

im on disability pension but apart from that, no other financial supports

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@Catcakes Sorry to hear that you've had some negative experiences. What types or services - or aspects of services - did you find to be the most useful?

I hope you have found some benefits to the SANE forums

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I think the most helpful thing is to not be made to feel like a diagnosis first and foremost. I think that I need lots of positive reinforcement before things sink in. I have found that patience has been critical. Lately I’m getting a better understanding of things through understanding my needs. I have found that what hasn’t worked is when I’ve been told to sort it out myself as it is a dependent behaviour. It’s been way more helpful to work through things step by step. I am very naive and so much of my issues are around learning things I had missed out on learning.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I accessed every available treatment to CBT/DBT/Medications as a last solution i applied for ECT therapy after a five year period of trying everything. I don't think DBT can be improved at this time until more is known about BPD while its correct people don't meet the full criteria for BPD after DBT treatment it's misleading to say that life has improved.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@Teej I'm sorry to hear that you've been treated badly in the past. Have you had any positive experiences with hospital admissions?

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@EliseSunflower

The number one most beneficial aspect of treatment for me has been consistency with a warm and engaged professional who has reasonable boundaries, and my best interests at heart.

DBT has been of some benefit, but I found repeating it to be less helpful than I'd hoped, and mainly what I got out of it was the relationship with my psychologist -- which, thanks to flexibility and lots of fighting for what was best for me (by the psychologist, I might add!), I get to continue building as I begin my trauma work. I think trauma work may just be the "key" to unmuddling me, which is a hope I've never really had before with any other treatment avenue.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@difficulthuman

"I accessed every available treatment to CBT/DBT/Medications as a last solution i applied for ECT therapy after a five year period of trying everything. I don't think DBT can be improved at this time until more is known about BPD while its correct people don't meet the full criteria for BPD after DBT treatment it's misleading to say that life has improved."

I think if anyone was suggesting that DBT is the solution and that all people find DBT to improve their life, then yes, that would be misleading. However if this was in answer to my statement, I simply said treatments like DBT and that after treatment they have found their life has improved -- I was talking about specific people rather than generalising everyone, in which circumstance it's not misleading because it's the fact of those individuals' lives. 🙂 Hope that helps to clarify!
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