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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

NikNikSenior Contributor23 Feb 2018, 3:14 pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for people living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your experiences accessing support and treatment services in Australia. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

148 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

BlueBaySenior Contributor06 Mar 2018, 7:49 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

thank you @OhanaSystem

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Mum2eightCasual Contributor06 Mar 2018, 7:50 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I think general Doctors need more awareness of this disorder so they can refer patients faster. In my experience it took way to long for all my Doctors psychiatrists and therapists to finally diagnosed me. I’m now 38

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

difficulthumanContributor06 Mar 2018, 7:51 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I spent years learning Dialectical behaviour therapy while i did see improvements its misleading to say it was an effective treatment for my bpd. In my opinion its only helpful for certain symptoms suicidal and impulsive behaviours, it does nothing for other symptoms.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

EliseSunflowerSenior Contributor06 Mar 2018, 7:52 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@OhanaSystem @BlueBay

There's pretty good evidence to say that it is possible to 'recover' from BPD, although what recovery looks like differs between people. As OhanaSystem said, many people can live more peaceful and happier lives with the right treatment. Psychological approaches such as Dialectical Behaviour Therapy and Schema Therapy have pretty strong evidence, although what works best depends on the person. It's not always an easy journey, but there is certainly hope.

Edit: spelling error.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

BlueBaySenior Contributor06 Mar 2018, 7:53 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Recently i have had to seek finanncial help as well as food and vouchers.

I have also used recently the local CAT team service which give me support whenn i am in crisis. They sometimes admit me in the short stay unit for 3 days. I feel the staff are okay at times but some don't treat me right, like they know i have BPD and don't care at all, they think i am attention seeking and am back in hospital yet again.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

TeejSenior Contributor06 Mar 2018, 7:55 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Yes @EliseSunflower it is dependent personality disorder. I have found 'treatment' as such pretty hard. I’ve also found that I’ve been treated as someone who is to be kept at a distance from health professionals and that has hurt immensely. The assumption is that I will become dependent on them. I have some traits of avoidant as well but the all overlap hugely. My therapist has not done that though and I am doing schematic therapy with her. SANE has been a huge saviour when I was screaming out early on in diagnosis needing support and had some really bad experiences in public mental health about 2.5 years ago.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

EliseSunflowerSenior Contributor06 Mar 2018, 7:55 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@difficulthuman DBT can be great but I'm sorry to hear it didn't entirely work for you How do you think DBT could be improved?

Also - have you accessed any other treatment or services that you have found helpful?

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

BlueBaySenior Contributor06 Mar 2018, 7:55 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I am really lucky that my GP understands BPD and supports me 100%. He has boundaries put on me which I struggle with but he sticks with them and he is caring and supportive.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

MDTSenior Contributor06 Mar 2018, 7:56 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi all
What is the topic this evening ?

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Mum2eightCasual Contributor06 Mar 2018, 7:56 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I started seeing a private therapist since my diagnosis late last year. It’s very costly ($190 per fortnight) I can get 10 sessions subsided by Medicare but doesn’t cover after that. Considering recover is anytime between 1-3 years it doesn’t help. The only other option I have is get amitted into mental health unit in public hospital for 2 months to get access to DBT therapy. I’m to scared of NDIS and how they will treat me I haven’t tried.

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