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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for people living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your experiences accessing support and treatment services in Australia. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

148 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Although I had read widely and could see I fitted in to the BPD diagnosis criterior , I was still devastated to hear the diagnosis from my psychiatrist. I can’t emphasise what a negative impact this had on me because the disorder was becoming known in the community and carried such stigma... I was crushed

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@EliseSunflower

I feel like the red panda in your image is laughing at both of us. 😄

It was pretty rough -- but it was actually not the roughest patch. That was just prior to my diagnosis, actually. A few years prior, my husband had told me he wanted a divorce -- literally within 7 days of my miscarrying our much wanted (on my part) daughter. I didn't grieve properly for either thing at the time, and instead it carried and added up over the next several years to culminate in a massive breakdown complete with hallucinations, very distorted thinking including homocidal ideation with the view to protect children, an average of 1 hour sleep a day over about 3 months... and an average of one suicide attempt every week over the same period. I was hospitalised for 3 weeks and diagnosed at that time.

I felt betrayed, to be given a BPD diagnosis, to be honest. At the time, there was only just starting to be awareness and acceptance of what BPD really is, and so a lot of the information I was receiving was that BPD was a life sentence, that it wasn't a real mental illness but rather just a bunch of evil manipulative jerkfaces with temper problems. Thankfully the situation has changed now and that's not as often how BPD is seen! The one good thing to come out of my diagnosis was that I was given a case manager with the public health system and that got me to some growth resources, and eventually, into DBT (for the first time).

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I'm so sorry. I can definitely relate, though, and it sucks! ❤️

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@BlueBay That's disappointing to hear you weren't given an explanation.

Do you have any thoughts on what name you would prefer for the diagnosis instead of 'Borderline'?

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I know this one wasn't to me, but I prefer Emotionally Dysregulated Personality Disorder to Borderline.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@EliseSunflower

I think maybe 'Emotional Disorder'

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Thanks for your reply and your insight @Phoenix_Rising. I know a lot of people (but not everyone, of course) who have found the diagnosis to be validating. It's a shame that some mental health professionals have such negative attitudes.

What improvements would you like to see in this area?

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@OhanaSystem

that's what i would prefer

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi @EliseSunflower,

Regarding the term "borderline," I hold the position that BPD and C-PTSD are one and the same thing and that the powers that be made a mistake in not renaming BPD C-PTSD in the DSM-V. The overlap in diagnostic criteria between BPD and C-PTSD is so extensive that it is almost impossible to have one diagnosis and not the other. Thus it always mysterfies me when people say they have both BPD and C-PTSD. I believe that the idea of a personality disorder suggests that there is something WRONG with the person and thus invites negative attitudes, whereas the diagnosis of C-PTSD invites the question of what HAPPENED to the person, which invites empathy and understanding.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi all, I have a diagnosis of BPD which i find really hard, probably mostly because of the stigma attached to it. It was used heavily against me through family court processes and other issues with my ex.
I guess I also don't see myself in some parts of the diagnosis (but do others.. though i attribute most of it to trauma reactions) and do occasionally wonder if the psychiatrist who gave me this label did so because of my extensive trauma history (i believe they wrote something along the lines of, anyone with a history of trauma such as this is at risk of attachment and borderline disorders)... so I do wonder how much they looked at me wholistically... in terms of treatment I did see a psychiatrist for several years who told me that he would not treat the BPD and would only be able to help me with the MDD through medication, and that my psychologist could help me with 'the other stuff'. I had support for a while from a community support workers as well as a psychologist. As I live in a regional center there isnt much other support or programs available and since my psychologist moved away I havent found a new psychologist yet, which I am finding very hard.
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