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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for people living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your experiences accessing support and treatment services in Australia. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

148 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi @NikNik @EliseSunflower

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi @OhanaSystem, thank you so much for joining the discussion tonight.

It sounds like you have a lot of experiences accessing different types of treatment. I'm sorry to hear that your mother was unable to access support.

What prompted you to seek help around age 15?

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Supports at that time was public hospital which was bad and my doctor

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I was diagnosed with BPD 8 yrs ago, as well as depression, anxiety and childhood abuse.

I have had many many hospital stays (between 2-3 weeks at one time) to change meds, for rest or for crisis. I am currently about to start a new medication on a clinical trial. My first appt is next week. It is supposed to help with my diagnosis.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi @BlueBay
Lovely to 'see' you tonight

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I had just had my fourth baby, my father was very unwell and I was driving a two hour round trip weekly to support my parents. I had some sort of breakdown, took myself (and kids) tok emerg dept of large hospital,

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@outlander Thanks for your reply. Sorry to hear you haven't accessed the support you would like. How did you feel when you first received the diagnosis?

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome @Catcakes @Phoenix_Rising & @OhanaSystem

Nice to see you all tonight.

Thanks for getting the ball rolling.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi @Mum2eight, thanks for joining!

What sort of treatment or support were you able to access during that time (before your diagnosis)?

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@EliseSunflower

A lot of experience sure sums it up! I'm 35 now and I've almost constantly been in treatment of one sort or another since I was 15. (I will clarify, though, BPD is only one of the diagnoses I've wound up with. I also live with DID and "complex trauma", so that has had some impact as well.)

When I was fifteen, I was self harming daily, suicidal most of the time, and generally struggling to get through life. I hated myself and I fought constantly with my mother, though that had improved some since I was 12 and she sent me away for two years. Things got worse when I was assaulted early the next year (16) and I began to recover memories of abuse from earlier in my life. My grades went down, I stopped participating as much in schoolwork and my previously pretty pathetic results with friendships completely derailed into abyssimal results.

**edited because apparently I don't know how old I am, lol.

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