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Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

NikNikSenior Contributor23 Feb 2018, 3:14 pm AEDT

Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Welcome to this special Topic Tuesday discussion.

In this event we'll be looking at the support and treatment options available for people living with a personality disorder and asking you about their overall usefulness.

This discussion will be a little different to a normal Topic Tuesday because it will be part of a research project conducted by SANE for the National Mental Health Commission. SANE will be reporting on the lived experience of seeking support and treatment for personality disorders.

Elise Carrotte, a Research Assistant at SANE, is hoping to hear from you about your experiences accessing support and treatment services in Australia. We’re looking at the big picture, including early intervention, diagnosis, treatment, recovery, relapse prevention and social/financial support.

What types of services have you accessed? What have you found helpful?

Please read the Participant Information Sheet before deciding to participate in the discussion. By posting in this thread, you are agreeing that your responses can be used as part of the project. This may involve paraphrasing or summarising, or using direct quotes. If your comments are used, researchers will protect anonymity by using pseudonyms and removing any identifying details.

To get an email reminder on the night, hit the ‘Like’ button below.

148 replies

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In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

NikNikSenior Contributor06 Mar 2018, 9:03 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

I would like to say a huge thanks to everyone involved tonight and a big thanks to @EliseSunflower for including the Forum members in on this important research.

If anything from tonight's discussion has raised distress for you, please don't hesitate to contact a crisis service, engage in your helpful strategies or continue to connect with others here in the Forums.

Thank you for all being so generous in sharing your experiences.

If you have any questions about tonight's session or the research in general, but sure to check out the Participant Information Sheet where you'll find a lot of information including how to get in touch if you have any unanswered questions.

Thanks everyone!

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Phoenix_RisingSenior Contributor06 Mar 2018, 9:04 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@OhanaSystem we can't send private messages here in Forum Land, but I am certainly happy to keep raving on about TTT to you on another thread somewhere around here. I will tag you and we can continue the conversation.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

OhanaSystemSenior Contributor06 Mar 2018, 9:05 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@Phoenix_Rising

Thank you!

I'm about to go to bed, but I'll do my best to check in tomorrow. ❤️

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

EliseSunflowerSenior Contributor06 Mar 2018, 9:07 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Thanks @NikNik and a huge thank you to everyone who participated in tonight's discussion! I really enjoyed speaking to you all.

Thank you for sharing your stories and experiences. All your insights are extremely valuable.

Have a great night everyone!

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Phoenix_RisingSenior Contributor06 Mar 2018, 9:07 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Thank you @NikNik and @EliseSunflower and everyone else for a super engaging evening.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Phoenix_RisingSenior Contributor06 Mar 2018, 9:08 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

@OhanaSystemwrote:
@Phoenix_Rising
Thank you!

I'm about to go to bed, but I'll do my best to check in tomorrow. ❤️

@OhanaSystem Oh that's good, cos I'm about to go to bed too.

I will definitely be in Forum Land and will tag you at some point tomorrow.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

OhanaSystemSenior Contributor06 Mar 2018, 9:08 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Thanks everyone! This has been really interesting, and I'll make a note to share it with some other folks living with PDs.

In response to: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

MDTSenior Contributor06 Mar 2018, 9:10 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hey all
My pc is mucking up and keeps turning off so i have now come into the forum on my tablet.

I think it seems that thr topic is what works and what does not

So here is my list:

What works:

- social media blackout. I only have facebook chat because its the easiest way to contact people from all walks of life

- confiding in some friends who are mature enough to handle the information about mental health

- limiting the amount you tell certain people. This is for 2 reasons. Firstly not everyone can handle the information and they may babble to others and you can become the subject of ridicule amongst peers. Also you are entitled to privacy.

- not watching shows where mental health is the subject of the shows plot (ie home and away where a depressed person is a "weirdo").

- forums like sane (woo lol) where you can check in and communicate with others going through the same

- changing psychologists when you no longer feel challeneged and you are going around in circles

- music

- eating well and healthy

- exercise (i do this at the gym because im not into group fitness, too many people competing for attention)

What doesnt work:

- spending too much time with the same people, because you are under no obligation to spend time with bad people. Respect yourself.

- religious teaching that tells you mental illness is a myth and that you are feeling bad because you dont pray enough (this happened to me)

- telling the wrong people stuff about your MH

- give yourself too much credit and you become lazy and get worse, go too hard on yourself and you get worse still. Balance is key.

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Faith-and-HopeSenior Contributor06 Mar 2018, 10:45 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Hi everyone .....

I am just tail-ending in here .....reading back through the thread. We have had a recent diagnosis of OCPD within our immediate family, with the potential that more than one of us may be yet diagnosed, as there appears to be a strong familial basis coming through generationally, and possibly through both sides of the family.

Although with very little experience as yet, I couldn’t agree more with @Phoenix_Rising ..... in our situation the medical professionals have been talking about the personality disorder being triggered ..... so that definitely appears to be about what HAPPENED to the person ..... and with childhood wartime trauma in the generational background, surely inherited trauma ought to be a key focus too .... as in what has HAPPENED in this family ?

To me, a label is only important as a way of identifying needs, and paths to improved life outcomes. If it helps with validation also, then that is important too, but validation then leads to “what is the next step ?” .... (where is the way forward ?)

In response to: Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

MDTSenior Contributor06 Mar 2018, 10:52 pm AEDT

Re: Topic Tuesday Focus Group // Treatment and support for people experiencing personality disorders // Tuesday 6 March, 7pm AEDT

Agreed @Faith-and-Hope
Thats the best part of labels

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