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Denial

Denial

How do you cope with being a carer for someone who doesn't believe they need a carer?

My husband has PTSD along with assorted physical repairs and conditions. I've been his full-time carer for 7 years. He has the short term memory span of a goldfish and a marginally longer concentration span. I make up his medications into boxes that store up to two weeks at a time - morning, lunch, evening and bed time. I do this because he takes so many different medications for his differing conditions that he can't remember what he has to take or when. If one of us goes away for a night or two he remembers to take his medications. When we're both at home he frequently forgets, even after I've reminded him.

I call reminding him to take his medications caring for him. He calls it nagging. I've dealt with his PTSD alone for 12 years. I've put up with his verbal abuse due to his over-use of alcohol and because, frankly, he's got PTSD. In the past, if I've brought some "bad behaviour" to his attention (when he's sober and could be dispassionate about it) he's apologised and promised to try not to do it again - and he really made an effort not to be that way again.

He's just coming to the end of a three week, inpatient treatment for his PTSD which has included group courses in identifying PTSD symptoms and learning coping mechanisms. I was ecstatic when he said he wanted to go into this clinic, believing that he would come out better than he went in; that he would have his first psychiatric review in 8 years, have his medications reviewed, and come out with some good coping strategies in place.

But since the change in medications he now snaps at me over small things and he tells me, after he's snapped at me over something, "I've realised it's not me, it's the PTSD". So now, instead of blaming alcohol for his bad behaviour he's able to blame his condition. We leave to go home in five days. I'm terrified of what his behaviours will be like when we get home if he's being so dismissive of them before he leaves the controlled environment of the clinic.

Am I wrong in thinking if this is all he's learned in 3 weeks it seems to me that it's been an enormous waste of time and money.

22 replies

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In response to: Denial

Re: Denial

I think you are both doing well considering the massive readjustment. It is only to be expected that things will take sometime to come right, and that there may be 'lapses'. As I keep on trying to tell my dh, he is only human - no better, no worse, just human.

In response to: Denial

Re: Denial

Hi Cazzie,

Nice to see you on here again. Sorry to hear that you've been so crook and that settling back into home away has been tough for your husband. Often a lot of the hard work happens outside of therapeautic setting when individuals need to start integrating what they've learned into everyday life, which can be a struggle.

You're right three weeks is a pretty short-time to change behaviours and thoughts that have developed over years. So it's pretty normal for indviduals to feel tempted to go back to old unhelpful behaviours/thoughts. So it's great that your husband will be talking to his psychologist can discuss some of the stuggles he's had. It seems like your husband may be considering having a drink again. If you are feeling concerned about this and want advice, drug and alcohol services can be useful.Family Drug Helpline a free 24/7 telephone where you can speak to someone about a loved one's drinking or previous drinking. They may be able to talk over ways to broach a converation.

I hope you get some rest of this weekend, and start to feel better soon.

CB

In response to: Re: Denial

Re: Denial

Thanks Cherry Bomb. I'm looking forward to a weekend locked in my quilt shed, trying to regain my own stability, before heading off to the psych on Monday morning. With luck we can both get something from the visit.

In response to: Re: Denial

Re: Denial

Hi Cazzie, how did it go over the weekend? Enjoy your quilt shed? I hope you got some time to take break before the psych appointment today. Speaking of which, how did that go?

Hope you're doing well.

CB

In response to: Re: Denial

Re: Denial

Aahhhhh the peace and quiet of the quilt shed! lol I got fabric sorted and started cutting out for a current project in which I am very badly behind. I have made a start and that's the main thing.

Travelled several hours to see the psychologist this morning and it went much better than I anticipated. I took the first 40 minutes of the appointment and had an opportunity to explain what has happened following my DH's release from the clinic. I fully expected the "well, you just need to understand and make allowances" speech and was totally blown away by the level of support I received. I mean, his focus is (and should be) on my DH but he's always made time to talk with me and validate my concerns. Trouble is, because we're not "local" any more appointments are only quarterly.

Luckily for me we've been seeing this same psychologist for around 12 years, even though we moved away from the town, so it was easy for me to ask him to recommend someone in or near to our current home town I could go to more regularly for counselling, at least until I can get on top of things.

So, while I'm not "doing well", I can say that, right at this minute, I'm feeling much more optimistic than I have been of late.

In response to: Re: Denial

Re: Denial

THat's good news Cazzie. How are you going now? I wonder if you have managed to find a local psychologist that you can see more regularly? I think that is an imprtant support for you.

Hobbit.

In response to: Re: Denial

Re: Denial

I still haven't found a psychologist but I am going to visit a new counsellor from Anglicare next Tuesday so that will be a start.

This weekend we're camping out at a quilt show. It's a bi-annual thing and I love coming here. My DH decided that he'd bring his wines out this weekend and do a tasting. It's actually very relaxing - now that we've stopped arguing about which direction to park the caravan in? Honestly, there's OCD and then there's my DH who makes OCD look decidedly haphazard! It took him 40 minutes (and I have no idea how many attempts) to park. Sometimes it was by minute amounts - a few inches or maybe a foot - when you're talking about an 18' van it's not very far in the scheme of things. Oh well, it's over now and he's been really quite at home talking to everyone about the wines.

I've managed to spend quite a bit of time with a lot of ladies with similar interests and have learned heaps along the way so all-in-all we're having an enjoyable weekend.

Home tomorrow afternoon so we're ready for his x-rays, etc first thing Monday morning.

In response to: Re: Denial

Re: Denial

That sounds awesome! I so wish I was crafty, but I am missing the crafty gene!

In response to: Re: Denial

Re: Denial

Hi UsedToBe,
I thought I had missed the craft gene..not true! I learned to quilt at 43...and it's so much fun..just watch out for quilters stash syndrome...where you find yourself eyeing off fabrics in op shops and look at clothiers as potential quilt pieces...quilters are a very social and friendly community to join..and heaps happening online too!
Cazzie, I hope hubby's x-days were ok and that your quilt habit is giving you some much needed time to create and think about something other than hubby. No offence intended to hubby...

In response to: Denial

Re: Denial

You are so right Alessandra1992, it's never too late to take up a hobby or craft. I was in my 50s when I took up quilting to make a quilt for an expected grandchild. I've got two more grandchildren now and I've given up trying to work out how many quilts I've made in the past five years.
We all need something to focus on, other than our problems or responsibilities, and any form of craft or hobby is perfect. Quilt groups, craft groups, a men's shed - these are all wonderful sources of diversion and support.
Hubby's x-rays show some issues that need to be dealt with. Won't have results from the CT scan until we see the oncologist next week but don't anticipate any problems at this point.
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