FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Our stories

Does a diagnosis really help?

Does a diagnosis really help?

I am interested on hearing what people around here think.

I personally have put off getting a proper diagnosis for years because I didn't think it would help me. I'm very ambivalent about it. Sometimes when things are bad I think about it but then I come out of it and convince myself I don't need the label. I seem to keep ping ponging back and forth.

I already take medicine and as far as I know that is the only treatment, so it's not like I would get better treatment with a diagnosis.

The thing is I have suffered with this for years and it might make me feel a little better about myself to relinquish some of the responsibility - i.e. to not think of myself as at fault or as a bad person but just as having a difficult disease. It might, however make me feel worse to think of myself as having this disease that there is no cure for that I have no control over. At least if I think of myself as 'bad' I can imagine I have some control over that. That one day I will just stop being bad.

Sigh. Just not sure.

141 replies

101 - 110 of 141
1...101112...15

In response to: Does a diagnosis really help?

Re: Does a diagnosis really help?

Hi @Shaz51, good to see you too 🙂 Loving this rain we're getting, makes everything new and fresh and shiny again. I hope this week is better for you too

In response to: Does a diagnosis really help?

Re: Does a diagnosis really help?

@defiant panda,

Psychosis and sequencing just generally don't go well.
But it is more of a sequencing of life's experiences and memories than of general application of logic. However, it may just be correlation and not causation, but prior to my psychotic turn in my teens, I never really struggled with sequencing my thoughts in esaays etc. I do now. Maths seems different though, however I have always been the type of learner that needs any concept pulled apart to its core for me to comprehend it and apply it.

My comment regarding nursing comes from the type of assistance you can get in Victoria as a mature aged learner that has not recieved a VCE or HSE (or equivalent score). A lot of funded programs have a select few degrees they will assist with. I understand the reasons why this is so and that it isn't intended as limiting or discriminating agaisnt me, but effectively, it does.
If I'd received effective and very specific help when I asked it, when I was attempting my VCE, then I wouldn't be in a position where my life of studies is dictated to me like that.

But I guess this is more of an issue of living with the disorder than being labelled with it, now that I read what I have just written.

I do feel though, that govts etc do love trying to persuade those with MI's into nursing or social work etc. I don't know where I get that feeling, perhaps it is unfounded and I should scrutinise that.

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

@Sehnsucht thanks for explaining that for me.

I too have problems with sequencing my thoughts and following arguments if they are too long. But with maths and IT (which I have a degree in) it was never a problem. I can write code (which is based heavily on logic) with no real issue at all - everything is written before me on the computer screen so I don't have to keep anything in memory, and it's not abstract, it's concrete - so it's not like writing an essay or arguing a point - it's a very specific example that does a very specific thing. It's very literal and there's no interpretation what-so-ever. So you might find that you might be good at it - in any case I encourage you to try it 🙂 It's satisfying and fun and very creative and there are many free courses online.

If you feel you are being pushed by the govt to go into social work or nursing then it's probably true. They are from my knowledge always trying to push a lot of unemployed / disabled into home and community care, which serves the community and always has a shortage.

In response to: Does a diagnosis really help?

Re: Does a diagnosis really help?

I was originally diagnosed with bipolar when I was 21 after an episode. A round of medication and therapy, a few lifestyle changes and I seemed to come right. Ten years later I had another series of triggers, which again almost led to me being hospitalised. Eventually I was marched with a different psychologist who told me the original diagnosis appeared incorrect. To confirm he had me assessed by a psychiatrist who agreed I was not bipolar. It was amazing the difference therapy did for me, it did more for me than the medication. However he explained to me that if I had cancer or some other form of illness that required medication that i would take drugs to save my life/get better. He was right of course, i attached the stigma of mental illness to therapy and drugs.

There were lots of things I worked out through therapy such as not being able to watch the news, my little fingers shaking, reducing myfriendship group, changes in appetite, fatigue etc. Being diagnosed, knowing the triggers for your form of illness can help you to learn coping mechanisms, can help you to challenge yourself so you can grow into the healthiest version of yourself. It wont always be smooth sailing, but there is so much support out there, you are not alone. I felt alone for the longest time, i felt as though I was living to the label, but the only label that matters is the one you choose for yourself. Choose a word for yourself, a word you want to live by for example: kindness - make part of each day about being kinder to yourself. I choose a different word every year. It needs to be something that inspires you. A friend chose, style, she began to dress better, do make up tutorials, got advice from a new hairdresser and got a new do. Her life totally changed. My word helped me to realise i take far better care of everyone else than i do myself.

You are unique, there is no one else quite like you, just as there is no one else who is just like me. You have a chance to live a full life, its your life, you just have to live it one day at a time remembering that even leadsrs fail, celebrate your failures because it means you tried. The more you try the better you get at it 🙂

In response to: Does a diagnosis really help?

Re: Does a diagnosis really help?

@HarleyQuinn84 I love your post and the idea of the self given labels thank you and welcome to the forums hope that you enjoy being here, it's a wonderful community of people who understand each other well
Lj

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

Hi @DefiantPanda,

I've seen your name here and there, good to actually read you again :0)

I just ....'fell,' into caring.....actually, my mechanic told me that he thought i'de be good at it.

He set me up an appointment and through the next 10 years....I just kept on falling back into it......since April 2006.

I can't do the......9 to 5, I chose to marry Mr You Know Who ( my nickname for husband) and be his full-time carer.

But to be an efficient carer, someone who can give 110% ..... Ya can't be pushed into it !! I'm now working part time so can pay to see my Psychotherapist again. I want to write short stories and sell them and handsew dolls. So far my mind can take in .....not that

because of my personal stuff,,,,,,,,

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

Oh @HarleyQuinn84

Thank you for this special message.

May I ask if you are you still seeing your Gp in relation to all of this?

@Former-Member hi friend,

what I like about this message is the refreshing way that @HarleyQuinn84 talks about accepting yourself. Sometime ago, only 4-5 years ago, I was struggling being married to Mr You Know Who ( nickname for husband) did a paper and learned...........

care for someone else and you learn to care for yourself...........

what does everyone think?

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

Oh @HarleyQuinn84

Thank you for this special message.

May I ask if you are you still seeing your Gp in relation to all of this?

@lisajane, hi friend,

what I like about this message is the refreshing way that @HarleyQuinn84 talks about accepting yourself. Sometime ago, only 4-5 years ago, I was struggling being married to Mr You Know Who ( nickname for husband) did a paper and learned...........

care for someone else and you learn to care for yourself...........

what does everyone think?

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

That's just it - we are all a combination of so many things. Some of those things have more significance in our lives than others, but if you consider them all labels, then bipolar, BPD, schizo-effective, short-sighted, arthritic, Down syndrome, amputation, melanoma, vitiligo, etc are all challenges in their own right, to greater or lesser degrees.

I am not trying to make light of anyone else's difficulties, but as HarleyQuinn84 says, if we take note of other labels about ourselves, like "good listener" or "great cook" or "loving grandma", it means we can identify ourselves by the positive aspects of our lives too, not just the most challenging ones.

There is so much loving care and consideration on this forum, that that is what is standing out to me more than anything else. What a fantastic community you all are. If my problems are what have introduced me to y'all, (and they have) then I am grateful for at least this positive outcome.

Not swimming alone ! 🐠🐟🐡🐠🐬🐟🐳🐟🐋🐠

In response to: Re: Does a diagnosis really help?

Re: Does a diagnosis really help?

Hi @HarleyQuinn84

I think you're definitely onto something there. Since starting this thread and eventually being diagnosed I have read a lot and met a lot of other people and heard their stories about their triggers and symptoms... And it is starting to fall into place, just how to deal with it, how to live with it, what to do. So you're right in that the label/name gives you something to work with.

As for your ideas about choosing your own label well yes I like that idea too 🙂

101 - 110 of 141
1...101112...15