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Vagus Nerve Stimulator and mental illness

Vagus Nerve Stimulator and mental illness

I have done a lot of research on vagus nerve stimulation. It is usually used to treat epilaepsy and depression....but it has also been used for other mental illnesses. Only in the last year have they bought out a non invasive VNS stimulator...which means no implant. Two devices (one for the ear and one for the forehead) haven't been approved in Australia yet. One device has been approved that uses the T nerve in the throat but only approved for cluster headaches to date. This is the pointy end of research in this area. There is a growing body of evidence that it has a lot further implications in regards to some other mental illnesses. I suffer from PD....I have teased out a list of coping mechanisms that I have intuitvly used for years. They could be pschological or vagal related. As a scientist I require good evidence. Correlation doesn't equal causation. Are there any other people out there that have a panic disorder that doesn't follow the same racing heart, palpitations, hyperventalation etc and have felt their panic episodes fall somewhere between an epileptic fit and the more common panic disorders as described in all the text books?

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In response to: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

I have a long list that could be psychological in nature or vagal nerve related. I realize that I sound quite mad but I can assure you I am not. 🙂

In response to: Re: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

Dont worry I have a very broad notion of madness and sanity. I started going to psych wards when I was 10 and been visiting them ever since but have never been able to convince anyone to lock me up. Apart from the orphanages etc.

I am not able to push my point very well , am easily fobbed off.

I am just trying to learn and share. I find the current access to information about physical and mental health wonderful, looked up brain physiology yet again and the Vagus Nerve stimulator.

In response to: Re: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

It is an interesting field the vagus nerve. Because it is called the wandering nerve it goes from your head and pass many organs including. Because implants have been used in about 6000 people in the past to treat epilepsy and depression that is none responsive to other forms of therapy, it caught my eye...and then the pennies started to drop. Again, correlation doesn't mean causation. Now they have developed an easy to use vagus nerve stimulator I very much want to try it to improve my situation. It is being studied overseas to help in types of mental illnesses, including OCD, Depression, PTSD etc. The only one approved in Australia was for cluster head aches. The ear and fore head ones are still not approved in Australia and as far as I can see there is no research being done on it. Any thoughts on getting a research program up and running in Australia? Thoughts? I for one am in!

In response to: Re: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

Can they really distinguish between a cluster headache and the others?

My little brother is very upset with the limitations of the Australian medical system ... we just dont seem to have the population density and infrastructure to do the same kinds of things as they do in the US and Europe ... even though we have had some world renown medical minds.

My ex husband and family were mayo clinic types ... the best of the best yadda yadda ..

Keep trying to imporve situation here ... try not to too mad when they dont let you but keep turning up stones. It might be suitable for me as I have a lot of head pain that is undiagnosed ... due to a combination of stress and physical trauma ... cant say why .. because of the forum rules.

I, myself am interested myself in Broca's and Wernicke's areas.

I hazard a guess it is the space between receptive and expressive language that is a major issue for many psychiatric disoprders ... I may be wrong ... does anybody know of research?

In response to: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

That post was to Appleblossom as she mentioned the term SH.

In response to: Re: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

I dont think your "mad" and i doubt that anybody on this forum thinks that either.

Just because you have a long list of unusual symptoms doesnt make you "mad" even if doctors think you are.

The Vagus nerve stimulator trial sounds like a great idea and really interesting.

I understand you didnt want to take the anticonvulsant because your scientific nature requires proof,but at the same time are you sure you wouldnt give it a try because the reality is that the majority of Psychiatric diagnosis and treatment is based on "guesswork" and without proof.

Ie:theres no proof (such as bloodtests etc) to actually confirm that each person actually has the DSM diagnosis that they have been given-its an educated guess at best (on the part of the psychiatrist).

In addition the treatments(when medication) arn't based on proof just on experimentation, with patients simply offered one antidepressant (for example)and then another if that one doesn't work etc.

Alternatively,could you afford to go to one of the countries where the non invasive VNS stimulator is approved and get treated there?

In response to: Re: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

"I,myself am interested myself in Broca's and Wernicke's areas"

Me too.

In response to: Re: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

I have no idea Apple. I checked out those areas briefly. I'm sorry I can't be of help here.

In response to: Re: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

It may be that the psychiatrist or doctor may prescribe something along those lines.Once I can convey and list the symptoms they may have an idea. I am a bit loathed to take extra medication, but if is passes my BS metre...I'll consider it. There is still a way to go on my journey. I have always said that instinct was flawed and unreliable, what I never mentioned in the past is that it can also show us things and be a powerful tool. The only way to know is to test it...once a scientist....always a scientist.

In response to: Re: Vagus Nerve Stimulator and mental illness

Re: Vagus Nerve Stimulator and mental illness

I like your comment on instinct as flawed ... it resonates with my observations of too many people, often mothers, using it, the concept of instinct, to justify bad behaviour in their beloved children.

I tend to agree with about the "once a scientist .... and continuing to test" thought ...I am not a good scientist anymore as I dont have sufficient data, and am aware of the limits of the anecdote, but I do try to be a good person.

Lets have self respect ... we have acknowledged what we do not know and what we do know. I note that you and I are humble enough to admit what we do not know (unlike some doctors). I was accused of hubris in my last choir because a cushy lawyer lady couldnt be bothered to listen or understand and wanted to sugar coat my life with grandiose bland generalisations ... I was useful to her for 2 years teaching her about music. I am going to call that narcisstic behaviour. I can read a DSM.

If I get pushed out of any more groups by OTHER people's bad behaviour I will be tempted to try some very bad behaviour of my own. If so-called socially confident people talk to me about karma I will see it as an invitation for action to address the injustices in my life ... I have already "sucked it up" and I apparently have a BS metre of my own.

It is very sensible to not want to take any more medication that necessary. You @PD_Perhapsand I, and @ivana and probably many others, all know how to read a side-effects list.

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