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Being sent home from hospital too early.

Being sent home from hospital too early.

My son is in hospital and there is talk of sending him home very soon. When I say 'my son', I mean the complete strager I visit every day in hospital who now speaks with a very Royal British English accent 24/7, is still wearing exactly the same suit, white shirt and tie that he was wearing when he was admitted ten days ago (he normally never even wears a suit) and won't wear his normal clothes that I have taken in to the hospital because he claims they are not his clohes - that they belong to 'Norman Percy'. When I asked who Norman Percy was, he answered 'a normal person'. Instead of showing any signs of improvement since being admitted to the hospital, he has actually become worse and the British accent even more pronounced. He was admitted May 4th. Today is May 14th. Every single day I have asked to speak to a doctor but every time been told there was no doctor available. When I eventually spoke to a nurse, he was amazed to discover that the person who used to be my son is Australian, not English. Yesterday another nurse told me my son could be releasd from hospital next week.This would be a disaster as he lives alone and I live in a small one bedroom unit in a retirement village so he wouldn't be able to live with me.His diagnosis is bi-polar disorder which he has lived with for many years but what is happening now has never happened before, He has turned into another person completely and I am very worried.
My question is this. Can anyone advise me of someone I could see re getting help in keeping my son in hospital until he is 'himself' again, before being sent home? Is there a Body or Society I can report the hospital to if he is released prematurely?

151 replies

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In response to: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

@Former-Member Thanks so much. I'm okay. I've learned a few 'tricks' re care of myself over the years so I put them into practice whenever I can. X

In response to: Re: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

Hoping that some joy can come your way and for your son also.

write when you can xxx

In response to: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

@Jo would you mind if I tap into your experiences and ask a question?

Found a couple of articles on bipolar and holidays, looks like they are often not a good match, Mr Darcy (BPii +more) has been very agitated since we got home from being away, not helped by a few things going wrong. How did you fare with your son and going away?

Darcy

In response to: Re: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

@Former-Member Hi, sorry to hear things have gone pear-shaped after your holiday. In my case, when I have gone away for a short holiday with my son, both he and myself have 'unconsciouly' breathed enormous sighs of relief just by being away from the scene of day-to-day anguish and drama. And 'consciously' embraced new experiences eagerly/happily, even though they just comprise walking the streets of a country town, wandering along a river, eating out and sleeping in a motel or whatever. Nothing glamorous. Just 'different'. My son loves it and so do I. But when we return, my son often sinks into depression. I assume that this occurs because of the return to reality. The depression can worsen and he can turn to alcohol for relief and then that in turn leads to more problems. It's like they've been given a temporary new life, then had it taken away from them. Does that make any sense?

In response to: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

Exaggerated post holiday blues eh @Jo do you think the trade off is worth it? After the sagas of the last few breaks I'm thinking not, seems we're damned if we do and damned if we don't have a break. Is a weekend away enough to set things off for your son? If not could give this a go, otherwise might have to opt for day trips only.

Fortunately Mr Darcy does not self medicate but psychotic depression is a major problem so will need to keep an eye out, we have not long returned from 18 days away, Mr D slept a bit better last night after poor sleep the previous couple and there are no demands on him today - he has a pdoc appt booked for next week.

I hope being home from hospital has not had the same effect on your son this time.

In response to: Re: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

Hi @Former-Member and @Jo, I was interested to read your comments about holidays or time away. I've made three attempts over the past few years. One precipitated a relapse (on the highway two hours from home) and it took him months to recover. The other (fly-drive, interstate) trips were OK but we were very limited by the illness and his many anxieties. We now just do occasional short trips of a few hours.... and generally to the same places. @Jo it's refreshing to read that you and your son can really enjoy being away, and you have a way to escape the illness for a while.

In response to: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

@patientpatient
How long did you go away for on the fly-drive trips, was wondering if the 18 days was too long @Jo did the length if time away make a difference?

Did read in one (possible Sz) article on organising activities that day trips were better than longer trips.

We did not do mood chart while we were away but since returning he has marked mood normal but anxiety higher. Ensured meds were taken religiously. First couple of days away were slow but after that he settled. Said he enjoyed catching up with family and friends, got to the footy too which he enjoys, is not emotionally expressive so is hard for me to tell. Last few trips have been when he was already unwell and not approximately medicated, med changes have been happening concurrent to trips and things have been awful post return - going missing (ran away to bush with intent) and then an attempt which resulted in injury.
This time we came home to problems (chook died, dog got in scrap with another at kennels, leaking ceiling, got told wrong day to pick up friend from airport = 2 x 6 hour round trips, not just one.

I have long service leave due and was hoping that visiting family and friends in Aust would be something we could do do.

In response to: Re: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

Hi @Former-Member, our fly-drive trips were for 5 days. The only planned activity was getting there and getting back. Everything in between was flexible, and there were some days when we seemed to be completely stuck in a motel room or picnic shelter. The road trip should have been OK but I involved him in the planning, packing, dropping the dog at a friend's place, etc... which made it all too complicated. Packing the car for a few days away turned into a nightmare as more and more items were deemed necessary. At that point I should have given up... but didn't.

I still think we can do some travel, when the time's right. I need to do all the planning quietly by myself, keep the travel steps as simple as possible, be flexible with schedule, and keep the trip relatively short. Sounds like you've dealt with more than your fair share of difficulties, 10/10 for resilience and determination. Maybe you can do several short trips during your LSL.

In response to: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

Haven't booked any LSL as yet @patientpatient, was thinking of taking it off 2 weeks at a time and having short trips, will see how Mr D settles, the other problems could have contributed. Will see how long @Jo's trips were because length of time away could also be a factor. Preparation and planning used to be a strength of Mr D - this time I had to follow up on a lot of things. Hoping as he continues to recover that this will return - some signs are positive, some not quite so.

I am sure you and Jo also score a 10/10 for resilience and determination, caring for a Sz son on your own is not easy, I don't know if Jo had/has the support of a partner.

In response to: Being sent home from hospital too early.

Re: Being sent home from hospital too early.

Hi @Jo
Quick check in to see how you are going.
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