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Disability Support System-Demonised

Disability Support System-Demonised

The Government structures around disability support are so complex, fragmented and lacking focus I thought I should relay my experiences with it.

I see all of the press and goverment bleating about leaners and lifters, bludgers, malingerers etc etc etc. Truth is that the hurdles are so high to even qualify for the DSP, it is absurd to suggest anyone who is actually on it to somehow manipulated the system to qualify.

It is alleged, based on anecdotal evidence, that years ago the DSP was used as a sort of unemployment replacement payment. However everyone forgets that that doctors perviously had to certify DSP recipients, believing the applicant to be entitled to it.

In my view, the contemptable obligations to be put into place concerning the unemployed mirror the fundemental lack of understanding that government ministers have in this area and the area of disability, particiularly mental illness, other than in a budgetory way.

Anyway back to my story. I qualify for the DSP because of the severity of my schizoaffective disorder. However I made a decison that I did not want the pension but to try and live off my savings until such time as I could land a job.

I have periods where I am unwell but I also have times when I am well. I have had a couple of mental health unit and clinic admissions, the longest being 3 months. After my latest admission and the very successfull treatment that I recieved I decided it was time to work again. To obtain the services of a disability employment provider,

I had to 1. Have a recognised disability and 2. obtain a job capacity assessment. Centrelink oeganised my assessment with a medical professional who was reluctant to approve my working at all.

Her knowledge of the disorder and what flows from it was to put it very kindly, minimal.There was a letter from my psych saying I was stabilised which was the only medical evidence I had.

No proper consideration was given to my wishes and there was very no questioning except one question focusing on my hallucinations. I put forward that I have a flat mate who makes sure I eat, take my medication, have proper hygeine and can make sure I can get to any place of employment. This was ignored.

After a great deal of begging I finally was approved for maximum 15 hrs per week. I appealed this as I wanted a full time job but I was told I couldnt appeal the assessment.

The only way I could have it reviewed was for my psych to provide evidence to centrelink that might be considered for increased hours. What a ludicrous system. I am now stuck with a service provider who is only marketing me for 8-15 hrs per week based on that assessment. Without being critical,

I have been to the service provider 3 times. I have not seen the same person twice. I get called gregory, which is not my name, and I havent had any meaningfull discussion about emplyment at all. I know the employment services work in a difficult area but they contract to do that work and get payed for it by the government.

So I am stuck in the system at the moment. I want to work full time but cant and at 8-15 hrs per week I would earn about $250 per week at the basic wage, which is about the same as the unemployment benefit and quite a bit less than the DSP. I did momentarily consider applying for the DSP this week because I just felt like giving in.

I have now got over that and will push on with my search for a job.Just goes to show that no matter which way you come at it, with mental illness you are discriminated against, even inadvertantly. My experience was that I dont think I was taken seriously because I have Schizophrenia. I will write more on this subject.

26 replies

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In response to: Disability Support System-Demonised

Re: Disability Support System-Deamonised

Hi Moon

Sorry things are hard for you.I know the feeling well. Fortunately my medication does help me a lot. I have to take it over the whole day so that is a bit of a drama taking it 4 times a day but it stops unwanted symptoms coming back. I think that the barriers to getting the DSP are almost impossible. My best friend is a paranoid schizophrenic with really obvious issues but he got rejected on the first attempt. He had a bad episode and a stay in the mental health unit,which finally caused the assessors to relent and give him the DSP on the second attempt. I dont think they are worrying about the impact on people, just trying to get the numbers down. From what I see it seems important to have a really competant and supportive psych or health professional to help guide you through the process. So maybe that is something to explore. I hope you get some real support Moon. Lets know if I can do anything to help, even though I am so far away.

Kenny

In response to: Disability Support System-Demonised

Re: Disability Support System-Deamonised

Thanks Allesandra- I found a MI support group where I live who will walk me through the application process if I apply. You are right, the cost of medication is getting a bit overwhelming, particularly the ones on private script. I have offered to volunteer in both the disability support care area and also in the employment area where I think I could make a difference. Jus waiting to see if anyone takes up my offer. I also put my mame down to visit people in the clinic where I had my hospitalisation to visit people that have no friends or family visit them-so that one should work out I think. I also found out there is a cert 3 and 4 course in disability support care at the uni which i am going to try and get into. Im told the government might pick up the cost of that if I qualify. So I am really trying everything I can think of.

In response to: Disability Support System-Demonised

Re: Disability Support System-Deamonised

Hi Kenny,

I really empathise with your dilemma. Having read the other posts I think there is good advice here.

In the end I think no one else can tell you whether you can or should/not be working with your condition, you will know. (Graeme Innes was so right about people with disabilities being cotton-woolled.) Going onto DSP even as a fall-back position at least enables financial and physical survival. However I understand the depth of your reluctance.

I had a terrible time facing the fact that I needed to apply for DSP, I just didn't want to accept that I couldn't work. I also felt deeply ashamed, I did not want to be on a pension. But for me the evidence was there - every time I tried to work or study after I had my kids I would end up desperately and unrelentingly depressed to the point of desperation. And if I was honest with myself - even before I had kids, although I worked full-time, I coped by seeing my therapist at least 1x, but sometimes 4x, per week, and I was just about catatonic at night when I went home.

I find it deeply ironic that having finally (after about 6 years) come to terms with my inability to do paid work, and having found many sustainable and rewarding ways to support other vulnerable people in my community - this abusive government is threatening to throw me back to the workplace lions because my disablility is not permanent - it fluctuates. Quite frankly I am terrified. So I totally relate to your deep angst about the treatment you've received at the hands of Centrelink, and the job agencies story is sadly a very common one.

I admire your determination, it's an excellent quality for anyone to have - and particularly useful if you suffer from a debilitating mental or physical condition. It may be a long journey, but in the end you will get there (wherever there is!) - I hope you find many blessings on your journeying.

Best regards,

Kristin

In response to: Re: Disability Support System-Deamonised

Re: Disability Support System-Deamonised

Thanks Kristin

You are so right about the reasons I dont want to go onto the DSP-the shame thing is very real. I dont know the answer about whether i can work a proper job or not, I think I can but the real world may be a different thing for me. Anyway I will exhaust all my employment options and go throught the process probably of applying for the DSP and see where it all leaves me. I guess I dont have to take it up if I qualify in any event. It is very difficult to put ones MI into a proper context and often, as I am sure happens with some other MI people you can have an unrealistic view of your abilities and condition. One funny aspect of the whole thing is when I rang up centrelink and bitterly complained about being told I could work only 8-15 hrs per week and I wanted it reviewed. The customer sevice officer says they never had that request before and didnt know how to process it. So everything has a lighter side. The truth is I am very lucky in that my depressive periods are not with me all the time so my main stuff is hallucinations, delusions and Manic behaviour. I hasten to add though it is kept under control by my medication which i religiously take on time thanks to my flatmate. The only issue with this is that a couple of them make me quite tired. Having said all that though I dont have a pessimistic view of my condition at all, nor so i feel like any sort of victim. I am quite happy to rock along and take on whatever gets handed to me, good or bad. I am very appreciative you wrote to me with all your kind words.

kenny

In response to: Disability Support System-Demonised

Re: Disability Support System-Deamonised

Kenny it might also be worth checking out your local areas mental health services website, I am not sure what region of QLD you are in or even of the general state of things Peer Work wise in QLD but there might be small temp jobs come up there, things like sitting on a CAG or doing some work with consumers in another way. It is a good way to get your foot in the door. I teach iPad at my local Community health service, sit on the CAG and also do focus group and consumer consultant work ocassionaly, all of which I am hoping lead to bigger and brighter things. Peer work is great for a number of reasons, it is an awesome way to get involved in the community, it gives you a great deal of insight and it also means that they are perfectly aware of the fact that you have a mental illness, after all that is kind of the point!

When I got my Faciliating job teaching iPad, my immediate thought was, "So crazy geek IS a career choice!"

In response to: Disability Support System-Demonised

Re: Disability Support System-Deamonised

Your very inspirational.

On a side note,have you found any employers to be compassionate/accepting when told of your diagnosis or have they all been judgmental or stigmatising?

In response to: Re: Disability Support System-Deamonised

Re: Disability Support System-Deamonised

Thanks heaps nyxsong. I have been pretty dumb and uninformed about this, probably up until my last admission but since that time I have been on the case. I have written off to the one mental health group in town and went to see them before I met my employment providers. I also asked my psych if he could let me know if he hears of anything, as he is at the coal face, so to speak. Its a litle hard where I am way up in the far north, with the second highest unemployment stats in the country, just behind regional Tasmania. The overwhelming employment opportunities are in the tourism sector mainly focused on seasonal work. So I think that volunteer work in the sector may be the only way to go in the first instance, which I am trying to do. All of the posts have given me lots of information and may things to think about, as well as being incredibly supportive. I am sure I will crack something eventually. Thanks again

In response to: Re: Disability Support System-Deamonised

Re: Disability Support System and Study

Hi Kenny,
I think your plan to do further study is a great pathway to work. You might also want to explore if you have access to special consideration if you ever need it, depending on study workloads. I have hesitation in accessing services that help me stay in study..your drive and determination is inspiring...and being online I think counts as community building, so you might be able to put being part of this trial on your CV too. Maybe check with site moderators and see if that is possible?

In response to: Re: Disability Support System and Study

Re: Disability Support System and Study

Thanks Allesandra.

I think some learning institutions help you if you need some support with an MI or other conditions as well. My schizophrenic flatmate did his science degree and got a lot of support from the uni which helped him graduate.

Its all very exciting talking about it with people on the forum-thanks for helping me out

In response to: Re: Disability Support System-Deamonised

Re: Disability Support System-Deamonised

For reasons that don't fit with my particular response here, I won't go into the whole DSP bit....... (grrrr), however, I really want to encourage anyone who is able to to look into peer support.

At this point, I have been a (voluntary) peer suppport worker for 11 + years with people with MS, which has it's own associated mental health issues (due to living with the unpredictability of the disease, suddenly having your who 'life map' changed, and a higher disposition to depression.

I have found it to be great for my own mental health, as I feel better helping someone else, often just by listening, or relating how I solved a particular issue. My work is mainly done by phone, as I usually deal with people in rural/regional/remote areas.

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