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When to say no to therapy

When to say no to therapy

My beautiful once happy daughter has been in family based therapy for an ED for 7 months, including a 2 week admission to an adolescent mental health unit and she is worse than when we started.

She is pretty much weight restored but has more and more behaviours and as she no longer attends school or out of school activities is becoming isolated.

Me being at home with her 24/7 has also isolated me, and at times we are driving each other crazy.

She is adamant the therapy is not working and I also have my doubts, asking myself are we doing more harm than good?

I don't want to give up on her by any means, but maybe an alternative therapy is a better option for her.

The thing is how do you know, when and if it is time to try something new, and if you do will it be a set back?

Any advice would be most welcome.

8 replies

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In response to: When to say no to therapy

Re: When to say no to therapy

Hi @Hank. Sorry to hear about the issues you and your daughter are facing. I know the question of whether particular therapies/interventions/treatment etc do more harm than good is something many of us think about. It's something I am currently grappling with myself. The only advice I can really offer is to trust your (and your daughters) instincts. Have you and/or your daughter spoken with the therapist/s about your doubts? Sometimes it can be really helpful to be very open with helping professionals about concerns with therapy. I think whether there will be a 'set back' in changing therapies is a very individual thing, but I know for me once I had discussed my concerns, tried to resolve them, couldn't and moved on to something else, it was only a forward step.

Hope you both can work through it soon.

In response to: When to say no to therapy

Re: When to say no to therapy

Hey mate,

I've always lived by the philosophy, do what works best for you.

Sometimes following your own lead can be the best course of action.

Listen to your daughter and give her a voice in her own life

Az

In response to: Re: When to say no to therapy

Re: When to say no to therapy

Hey @Hank,

I've always thought that recovery is like a jigsaw puzzle, it can take a few goes until you find the right piece that fit.

It's not one size fits all, so if certain treatments aren't working, then it's ok to to try something else, but I think that's the main point - you keep trying.

Perhaps check in with the doc first, as I understand that some alternative treatments (e.g., herbal medicines) can interfere with other medication.

Also, just thought that I should let you know that you've posted in the Lived Experiences Forums, which is generally for people who have a mental illness. It's ok to post here if you don't have a mental illness, but if you're wanting a carer's perspective, feel free to post in carers.

In response to: When to say no to therapy

Re: When to say no to therapy

I think you need to try a different therapist and/or different type of therapy. Also has medication been considered?
I had to try several different therapists and therapy types till I found one's that helped me. With MI you've got to have the attitude of keeping on trying, but also knowing when it's time to call it quits.
I'm personally a bit anti-alternative therapy as to quote tim minchin - if it was proven to work it would be called medicine.
I encourage you to explore your options and do some research on the different types of therapy's available and shop around for a good therapist that feels like a good 'fit'. It might take a few tries, but you'll know when you've got a good fit.
Wishing you all the best.

In response to: When to say no to therapy

Re: When to say no to therapy

Hello @Hank

excellent news that your daughter has put weight back on

I am assuming blood tests etc all proved positive too

that is a huge achievement within that time frame

eating disorders present covering up underlying issues

do you think that the top layer has been fixed so to speak and now other issues are being revealed

this would be terrifying for your daughter who worked so hard to disguise those feelings

it sounds to me that progress has been made and now your daughter is at the next stage feeling overwhelmed and frightened with all of the suppressed feelings reassure her

have you spoken to the therapist..what next?

keep open communication with her

have you checked out all info re the disorder, possible underlying concerns, where to go next?

In response to: When to say no to therapy

Re: When to say no to therapy

Greetings Hank. The answer is in the last place you look. Any time is good to get another angle on things- up to a point, though. Much of the Eastern based therapies are possibly preventative based rather than curative, like the western ones. That being said, they may provide another angle , a perspective which gives a better or more acceptable answer to an issue. Even part of a glimpse can be enough. For myself, much is subjective. Things need to be significant on my level. Try ! Mind you, if something seems too good to be true; it is. All the weird modalities out there attract weird people and a healthy dose of skeptisism could be good. Quite a few alternative folks really know how to make money too. Tis all unknown so just be careful. Word of mouth is good. For me a sense of humour is necessary. And they must look and feel grounded. Cheers

In response to: When to say no to therapy

Re: When to say no to therapy

Hi @Hank,

I agree with what @Former-Member has said. I think your daughter's therapy has been working as she is now weight-restored. But once we get treatment for our issues, it brings them into clearer focus and we can no longer hide from them.

I think a lot of people have the feeling that 'therapy is not working' because therapy often brings painful emotions to the surface where we can deal with them. Then it feels like we will always be in pain and that our issues will always torment us.... but this is actually not the case- what happens is we begin to deal with our painful emotions and we gradually move forward. In can be a very gradual forward movement- with many small set-backs, that can feel overwhelming at the time.

Being around your daughter 24/7 would be a huge strain for any teenager- parent relationship.... even if the teeneager didn't have an ED. With you doctor's permission, can you allow your daughter to go out on the weekends with her old friends? Movies, beach, picnics, whatever? That way she has time to be a 'normal' teenager.

Can she recommence going to school or look at doing a course?

If she has a particular issue with one of her therapists/doctors, then it would be good if you could encourage her to talk about it. These things can be resolved. Your daughter might respond better to a psychologist who is close to her own age, for example.

I'm sorry to say I am not a parent, so I guess I can't imagine what your situation would be like... I did have a mild ED when I was a teenager which went untreated, in spite of multiple threats from my parents! I believe my ED was related to my anxiety. I more or less out-grew the ED tendancies by the time I was 18.

In response to: Re: When to say no to therapy

Re: When to say no to therapy

Iv had an eating disorder for 23yrs. It has moved from anorexia too bulimia, and something in between. Some periods Iv been physically better, but the mental state is always there in some form.

I can honestly say when I was weight restored it was horrid. I thought because I was a normal weight I no longer had a problem. For some been underweight proves they have a problem. And yes it did feel worse in some ways. But that could be because she's actually facing it. I have tried recovery a few times. The CBT would help for a couple of months or less even, then I would relapse. Now I'm actually trying to recover, but for me. In the past it has always been for others, to make them happy and get them off my back. Even now I find it hard too even comprehend I have a problem because I'm a normal weight. BUT I know my behaviours are far from ok, and things have been slipping in some ways. But I'm now honest with it. Im trying to make a difference now before I get physically really ill, because it is more difficult to get out of it.

the first thing in recovery is weight restoration, because then you are mentally in a better place, as restriction changes your mental state a LOT. It's a long road, and each journey is different for everyone. Just support her like you are doing.

eating disorders are very complex, and everyday, every hour, every minute all you think of is how "fat" you are and food....

i wouldn't give up. If you have an eating disorder specialist stick with them. There are few around. Iv found that non experianced therapist can be very detrimental as they don't understand. Iv had experiences where they have said something that has really triggered me. Do ok into options, but some sort of therapy is better than none.

good luck x

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