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Topic Tuesday - CLOSED - Is life not going the direction you thought? A discussion about the loss a carer experiences

Topic Tuesday - CLOSED - Is life not going the direction you thought? A discussion about the loss a carer experiences

Coming up...

Topic Tuesday, 24 March @ 7pm AEDT

Do you remember when the person you care for was diagnosed? Or the first time the person you care for had to go to hospital? Or even the time you just couldn't do what you wanted to do because of your responsibilities as a carer? So many mixed emotions.

One of the emotions that carers often push aside or don't realise they are going through is grief; the sense of loss of a life not going the direction you anticipated for yourself or the person you care for, a change of expectations and dreams, and even a loss of hope.

Topic Tuesday will feature Sarah Coker from SANE Australia, who will share information and offer advice about the loss and grief all carers go through; how to recognise it, strategies to deal with it and how to maintain your sense of hope.

Whether you are just recognising the signs of loss, are currently right in the middle of it, or have been through it and managed it, your contribution, experience and thoughts are encouraged.

Hit the 'Like' button below if you'll be joining us - 7pm AEDT

69 replies

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In response to: Topic Tuesday - CLOSED - Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday / 24 March 7pm AEDT / Is life not going the direction you thought? A discussion about the loss a carer experiences

Hi concerned, for those of us who have cared for loved ones who have attempted or have feelings of suicide, it can be a terrifying time. We always played it safe when our daughter was unwell. Her clinicians gave us a lot of guidance as to where her risk was.

Our family became very open about suicide and our daughter had the confidence to tell us when she was feeling low. I guess we developed a "sense" or a "gut feeling" of where she was and I read a lot about warning signs, which gave me a little more confidence.

We still need a break though, even if we have fears for our loved ones. Maybe a trusted family member or friend can give you a break, even for an hour? I tried to do it all myself and became so exhausted that I was forced to take a break!

In response to: Topic Tuesday - CLOSED - Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday / 24 March 7pm AEDT / Is life not going the direction you thought? A discussion about the loss a carer experiences

Hey @Rjb

You might find this previous Topic Tuesday, which was specifically on RESPITE useful.

In response to: Topic Tuesday - CLOSED - Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday / 24 March 7pm AEDT / Is life not going the direction you thought? A discussion about the loss a carer experiences

I'm wondering if anyone has had the opportunity to talk to a trusted person about how your hopes and dreams for yourself and your loved one have now changed?

@Untethered@Concerned@Rjb@Attahua@3forme

It sounds like @Viv has had a really positive experience talking and learning from others carers.

In response to: Topic Tuesday - CLOSED - Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday / 24 March 7pm AEDT / Is life not going the direction you thought? A discussion about the loss a carer experiences


@CherryBomb wrote:

@Viv and @3forme

Sounds like it was quite a rocky road at first, but ultimately seeking support, developing new insights and approaches helped you to help your loved one.

I like your point @3forme sometimes it takes learning to let go, which can feel counter intuitive. Particularly, when you are the person who is regarded as the 'life boat'! Learning how to provide support, but letting go at the same time is challenge for many.



A hard question I had to face was: am I doing this because I want to feel better or because it is helpful to my daughter.

With suicidality, it helps to have an emergency plan that your loved one agrees to - to prevent suicide attempts. This is a way of putting a boundary around such fearful situations... but it is also a way for giving your loved one control over a situation where they obviously feel a sense of powerlessness. Is this possible?

The difference between self harm and suicide is set out in the National Guidelines for theTreatment of BPD (? available online as a pdf).

In response to: Topic Tuesday - CLOSED - Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday / 24 March 7pm AEDT / Is life not going the direction you thought? A discussion about the loss a carer experiences

Hi rjb, you could contact the Carer organisation in your state, they may be able to help you with options? Can your daughter's clinicians help you?

In response to: Topic Tuesday - CLOSED - Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday - NOW OPEN - Is life not going the direction you thought? A discussion about the loss a carer experiences

Sorry I'm late to the discussion. What I would like to ask is, what are some practical ways of processing the grief that comes with life not going the way you thought t was? Raising kids with a depressed partner has been such a challenge and family life is so different to what I expected. I really feel sad about the reality vs the dream I had for myself and my kids. I also feel sad that my life has more challenges than a standard marriage, that I see many of my friends having. I don't know what to do with these feelings.

In response to: Re: Topic Tuesday / 24 March 7pm AEDT / Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday / 24 March 7pm AEDT / Is life not going the direction you thought? A discussion about the loss a carer experiences

I have a great psycologist who has listened to me talk about various scenarios for some kind of satisying retirement together, so i'm v lucky there

In response to: Topic Tuesday - CLOSED - Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday - NOW OPEN - Is life not going the direction you thought? A discussion about the loss a carer experiences

We didn't set our life up for one partner to be unwell most of the time. With hindsight, different choices would have been better. Eg we have too many pets to care for, and our kids are all close in age. We took on quite a lot, me thinking we could manage it together. I never thought it would all fall on my shoulders.

In response to: Re: Topic Tuesday / 24 March 7pm AEDT / Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday / 24 March 7pm AEDT / Is life not going the direction you thought? A discussion about the loss a carer experiences

I used my own learning experience of loss and grief post a brain injury , ie ACCEPTANCE, to get over the loss of hopes and dreams for my daughter.
But I am confident she will have a different life when her brain fully matures, if not, I will be here for her,

In response to: Re: Topic Tuesday - NOW OPEN - Is life not going the direction you thought? A discussion about the loss a carer experiences

Re: Topic Tuesday - NOW OPEN - Is life not going the direction you thought? A discussion about the loss a carer experiences


@Tatsinda wrote:
Sorry I'm late to the discussion. What I would like to ask is, what are some practical ways of processing the grief that comes with life not going the way you thought t was? Raising kids with a depressed partner has been such a challenge and family life is so different to what I expected. I really feel sad about the reality vs the dream I had for myself and my kids. I also feel sad that my life has more challenges than a standard marriage, that I see many of my friends having. I don't know what to do with these feelings.

Great question @Tatsinda

I'm going to point this in the direction of our guest speaker @Former-Member , and our experienced carers @Viv and @3forme - what are your thoughts?

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