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Hello I will search articles on ect but I wanted to ask if anyone has any recent experience and effects over time, months years. it is becoming an option for me that my psychiatrist wants to use and it's getting to the point if I don't do it she will section me because my quality of life and risk is now so bad, I don't use the term rock bottom as I believe there is no bottom for these illness, memory effects worry me the most.
hello@em22 thanks very much for your experience, the problem for me is lack of good information and peoples experiences good or bad, you mention you found medication that helps and this seems to be something that occurs in Au, that our psycs go to ECT after patients failing only a few medications, there are many medications and combinations that can be tried, I have tried many and at the moment may have something that is doing ok, the nsw mental health commission has engaged unsw to gather data on ECT use, efficacy , patient survey's and this is desperately needed, a figure often quoted is it is effective in 70% of cases, but what is effective considered to be, I have read studies that say the relapse rate is high 40% at 6 months 50% at one year relapse even with medication, I can not remember the relapse rate with maintenance ect, also there is a new class of antidepressants being fast tracked in the usa based on the effects ketamine has for depression, I am hoping they will work better for me, then there is the inflammation theory of depression which I believe certainly plays a part in my case as I have inflammatory conditions, how would ect address that? we need data on the potential efficacy of ect that considers those conditions.
In response to: ECT
TrueColoursContributor
Re: ECT
Hi getbetter, depends on your circumstances but I would not consider ECT again unless absolutely necessary. I had intense ect just under 3 years ago now and I still have memory problems. Although I had a complete mental breakdown at the time so the treatment was justified & there was a big improvement in my mood for about 6 weeks following. I had a lot of sessions in a short period of time though which I think was the problem. Due to the memory problems I decided not to continue with the planned "maintenance" sessions.
In response to: ECT
MP15295Casual Contributor
Re: ECT
Hello @getbetter, This is my third year of having ECT as a treatment. Funnily enough, I'm in hospital at this very moment, having ECT every second day (I typically have ECT once a month as maintenance). To be honest, ECT is the reason I'm still alive today. I'm twenty-two years old now, and have been suffering from severe depression and anxiety since I was eleven. I had been prescribed every medication under the sun, I'd seen a psychologist once or twice every week since childhood, nothing made a significant or notable difference. ECT was my last resort...otherwise I have no doubt that I wouldn't be here today. Thank you God for it working; ECT has worked wonders for me, absolute wonders. I haven't felt this happy, energetic, attentive and 'well' since I was young. Of course, there are side effects, including head and muscle pain, as well as memory loss. The memory loss isn't too bad, really. I believe the benefits of the treatment outweigh the risks. There have been times where my family members have brought up events from the past that I can't recall...only on a few occasions however. The only issue is that you can't select which memories you forget. Though again, the memory loss (from my experience anyway) wasn't too horrible. To put it into perspective, I've been attending uni while undergoing treatment, and I can still recall everything I've studied. I'm not sure if you've already gone through with it, but I hope this post helps with your decision somewhat. I also wanted to add that I've heard many others (fellow psychiatric hospital patients) have a positive experience with ECT - I've also heard some (mostly people with bipolar) experience absolutely no benefit or difference at all. To me, I thank God everyday for my decision. ECT has saved my life, and allowed me to experience some quality of life again. It does work, it's not frightening (like it was in the past/1930's, or how horror movies portray it). All you do is lay on a hospital bed, get hooked up to a pulse moniter, blood pressure cuff etc. You're then given some oxygen, put to sleep with anaesthetic...and you wake up in recovery a few minutes later, the procedure over with. I wish you, and anyone else reading this, the absolute best. Good luck!
In response to: ECT
MP15295Casual Contributor
Re: ECT
To add more information, I only had unilateral ECT. There's no doubt that Bilateral would cause more significant memory loss issues.
In response to: ECT
avalynnContributor
Re: ECT
Thank you for sharing your experience with ECT. I'm having my first treatment at the end of this month. I'm at the end of my rope. Being doing trial and error on meds for 24 years and nothing has helped. I do have situaltionl depression and anxiety but also diagnosed with Bipolar 2. Struggling with depression since I can remember. I don't want to live like this anymore. I'm desparete to try anything. I've done my research and willing to put up with some memory loss hoping to have a sense of meaning in life as now I have none. I feel like I'm only here because of my precious dog Luke. What is there to live for? Tired of struggling. No desire or energy to do much of anything. I use to have good days that lasted. What happend to me?
In response to: Re: ECT
MaggieSenior Contributor
Re: ECT
Hi @getbetter i have had ECT. I was an involuntary patient and too depressed to be able to make any decisions for myself. It did not work for me and I have not regained the momory loss. I did however see other patients improve dramatically after ECT, so it's an individual thing I guess.
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