Riding a wave

Another week to wait to see pdoc @Phoenix_Rising - we couldn't increase one of my meds anymore over the christmas/new year break as there was no-one to monitor for side effects - so next week it is

It SUPER sucks for you @Zoe7. I super wish I could wave a wand and make you as responsive to medication as I am. The mega med helps me fall asleep and gives me a few really solid hours. I am currently still waking up somewhere between 2am and 4am, but I feel ok - I think because the sleep that I do get is very deep. I can't imagine how awful it must be to struggle with sleep in the way that you do.

My biggest issue is actually falling asleep @Phoenix_Rising - the fears around sleep manifest themselves in various different ways - and are certainly worse when triggered. Those are the nights like last night when I don't sleep at all. We are still working on 'the getting to sleep part' and I fear that it is going to be a long road still

I super wish they could find a medication that helps you fall asleep @Zoe7. I can see that I must just be very blessed in that medications that are designed to put people to sleep, put me to sleep. It super sucks that none of those medications seem to be working for you.

I think my medication changes now equal your therapist changes @Phoenix_Rising (I really want to put a lol here because it is so ridiculous for both of us that laughing is all I have left after all the tears!)

These ones seem to have had less side effects so far and I am generally less tired throughout the day - but the days and nights are still polar opposites

Well if you count up your medication changes @Zoe7, you could refer to the next one as MT-whatever-number-it-is.

I'm glad you are getting less side effects and feeling less tired during the day. I super hope this is a sign that things are heading in the right direction.

That would be MT13 (I think - argh) @Phoenix_Rising

Look what I did to @NikNik lol...

Haha @Zoe7 Love it, @NikNik looks super cool and her head doesn't look as big!! Also covers up her odd shaped eyes!!

I thought it was pretty cool @Former-Member - and she is well covered up to protect her from the sun - need to protect our NikNik

I have a super gigantic wave. @Former-Member could you maybe please ride the wave with me???

@CheerBear I think I want to snuggle into your pocket and never ever come out.

I am Phoenix_Rising. My way of being in the world can seem weird to some people. That is because they judge me based on knowing only a tiny part of my story. I have many atypical quirks and that's ok. My way of being in the world is a normal reaction to an extremely abnormal situation. I am Phoenix_Rising and I am ok just as I am.