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Highly Functional, 'Highly Distressed': A person can be both!

Highly Functional, 'Highly Distressed': A person can be both!

I wanted to share with people something I wrote about 3 months ago. It was aimed at trying to encourage the people around me to rethink some of the things they say. It never really went anywhere and I wanted to see what others thought and encourage others to join in the conversation

One of the biggest challenges I face in my current stage of life is dealing with this imposed belief of 'Well your okay now, look at how far you have come'. On one hand this statement contains some well known truths. Such as, in comparison to how 'I used to be', I have a much deeper understanding of my life, my identity and my mental health. I have an extensive 'self care toolkit' that I tap into at multiple points throughout the day. I have a better support network, primarily consisting of practitioners and with a few select people that I can count on when I feel a need. Most importantly I am able to retain a high level of functionality when experiencing periods of distress. However on the other hand, there are still some times when things really get on top of me and my baseline manageable level of distress becomes quite extreme.

During these times it amazes me at how many people respond to me being open about my level of distress in a manner that almost seems to convey a level of offense to my admission of 'not coping/doing so well'. So much so that when I am finding it hard to cope, I place strict limitations on my audience as I am well aware that some people cannot seem to cope with the fact that in some moments in my life I cannot cope. I still routinely put up with comments from people who have the audacity of dismissing my experiences for reasons that I can only speculate. Comments such as;

'You shouldn't feel that way, look at what you have achieved...',

Yes I have achieved lots and will more than likely continue to do so for many years to come AND at certain points in time I find it very hard to cope.

'Don't be like that, your life is way better than it used to be...'

Yes this is very true I am in a way better space physically, financially, socially and even emotionally AND at certain points in time I find it hard to cope.

'I think you are overthinking this...'

I over think everything I have learned to live with this very well AND at times I find it very hard to cope.

And my personal favourite 'You just need to stop being so negative and try to be more positive...'

A person can be very negative AND take positive steps. Sure it is even better if a person can be positive and take positive steps, however sometimes feeling positive about myself and my life is not easy. AND in spite of this one of the biggest reasons I have achieved so much and am in a better physical, financial, social and emotional space is because in spite of 'being negative' I have tried to take positive steps where I can.

'You are just being melodramatic...' and or 'I thought you were done with this...' and or 'Why can't you just try to be happy...' and the list could go on and on.

I have one question to ask the people who respond, not just to me like this, but to others as well...

How exactly is speaking to people like this supposed to help them feel better about themselves, the people around them and their world?

One part of me acknowledges that many of these people mean well and I know from experience that it takes skill to respond to people who are living with a high level of distress. I acknowledge that listening well and responding is a skill that many people have not had the opportunity to develop as much as others. I acknowledge that many people rely on me for support so when I start to 'drop' they feel under-equipped because I am the one that they turn to when things are going south for them. So when I drop they feel stuck as I am their usual sounding board for advice.

On the other hand, one part of me finds it incredibly frustrating that I still feel like I am not allowed to speak honestly about what is going on in my life. I often get the intimate details of others lives and many only get a brief status update of mine because I know that their responses and 'support' will often leave me feeling worse. I am frustrated that so many people seem to view mental health as an 'on/off' switch or as 'you were unwell and now you are better'. For some people including myself mental ill-health is pervasive and potentially a life long experience . The affects of Complex Trauma are deep rooted and on going. At times this means that there are things going on in my life that I don't often talk about that are having a significantly negative impact. It is not that 'I am negative' and or 'miserable all the time' and or 'being ridiculous'. It is that at this particular point in time I am STRUGGLING with what is going on and I am TRYING to ask for support.

Notice how I have been using the word 'and' a lot...

I coined the phrase 'highly functional, highly distressed' years ago in a journal entry. The idea is that I can be both at the same time, not just one or the other. Instead of highly functional but highly distressed, I have learned through experience and support that I can be highly functional AND highly distressed. I can feel very flat, have no confidence or self worth, feel useless and incapable and still achieve many amazing things. I often do not exist in one emotional state at any one point in time as human beings are far to complex to just be one thing at any one point in time. I am often joyous and sad and funny and loud and quiet and energetic and flat et cetera. What this means is that I can live comfortably with distress at times and achieve many wonderful things and at other times I can struggle with my levels of distress and still achieve many things.

Where I really struggle is when I know that I need some support from people and I am met with disdain and or dismissed and or invalidated. By using the aforementioned statements that people like to say to me, I feel like you are saying that you don't really know much about me. When you say things like this then it says to me I don't pay attention to you enough to realise how much you have actually achieved and how you got there and what you have done to get there and the many skilled decisions you make to keep growing, developing and learning.

In many ways this is not your fault you couldn't possibly know many of the skills I have had to develop, the support I have needed, the experiences in my life that have left permanent emotional scars. For one I tend to keep this closely guarded as I know that people can respond quite badly to them and so I have learned to be cautious with who I open up to. I also tend to hide from people and from life when I am reaching a point where I am struggling to cope. Not to mention that one of the things I tend to do when I am really feeling distressed is to bury myself in things that keep me busy, so all you are left with is seeing someone who appears really motivated, outgoing and successful at what they do.

Having said this I have learned to hide well because I know from experience to keep my feelings hidden as I know full well how people can respond.

What I am asking is for you to think about what you are really saying. When people reach out to me I try hard not to dismiss there distress by pointing how good other things in their life are. Instead I listen to what is going on and offer advice and support that is relevant to that persons needs at that point in time, within the context that they are presenting it. So instead of shutting down conversation by dismissing my distress at that point in time, try asking what you can do to help. Often you will find that there is very little you can physically and or financially do and that is fine, because all I am asking for in most cases is a sounding board to bounce my thoughts off of to help me work through what is going on.

I acknowledge that everyone has the high and low points in life and that the two states are not mutually exclusive. I acknowledge that people can really struggle with some aspects of their life and be very successful in other areas of their life. I acknowledge that many people find it hard to cope and yet in their own way cope very well. I acknowledge that life is never simple and often involves many complex feelings, thoughts, emotions and experiences that people may never reveal and they may speak very openly about many other aspects of their life. I acknowledge that sometimes the best thing to do is to just sit and listen because sometimes that is all somebody is asking for at that point in time. And most importantly I ask you to consider these points and I ask that you all try to do the same.

35 replies

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In response to: Highly Functional, 'Highly Distressed': A person can be both!

Re: Highly Functional, 'Highly Distressed': A person can be both!

LOL @Former-Member!

In response to: Highly Functional, 'Highly Distressed': A person can be both!

Re: Highly Functional, 'Highly Distressed': A person can be both!

CriCri63 wrote "please be patient with us people who do not live with a mental health issue, who do not have to fight with anxiety every minute of the day, who do not have to think and re-think and question everything we do... we can't possibly begin to understand how this must feel, but I am so much wanting to try"
Thank you for your effort. Unfortunately I find in my life it is only people working in the area of mental health and even then only a portion of these people that seem to be making a similar effort to understand.
If I try just stating facts of my situation the response I get is usually something alongside the lines of I'm being negative.... But I'm just giving an object fact without any emotion or bias in an effort to be understood.
I agree that the majority of people are just responding to me based on their expectations of what they want me to be and they are too selfishly caught up in their own lives to want to think about what I said. People don't want to "actively listen" because they would mean they have to invest in thinking more than want to. I agree that people have the opinion that I overthink just because they don't want to think.
The outcome is that I constantly feel invalidated, isolated and force to comply to everyone else's expectations. I too have got to the point where I have lowered my expectations so far that I don't expect anything positive towards me from anyone. It's a struggle to find a reason to live in such a world because I have got to the stage where I can no longer be look after myself or be successful when I once was.

In response to: Re: Highly Functional, 'Highly Distressed': A person can be both!

Re: Highly Functional, 'Highly Distressed': A person can be both!

Alrightyo, I am back from a brief break while i sorted study and the final days at work. I am now unemployed (as was expected) and I am feeling a lot better about the world. I am still living with a lot of distress and the Portals (visual stimuli) are in overdrive at the moment. I am on the highest dose of medication that I have been on for a long time.

Having said that now that I am away from my former employer I am feeling better about the world around me at least. The two week intensive was an incredibly energising experience and I walked into work for my final week on the Monday like a gunslinger entering a bar. At least for my last week I was back to the fiery radical activist that I was when I started working there. So I kinda left on a high note which was good.

Now back to the discussion. I am still appalled at the attitudes of some people. Like we can talk about being depressed having anxiety (not being anxious there is a difference, rant for another day!) as long as it is done in a way that is palatable for the person listening. However when it comes to things like say for example going through mania and psychosis and living with "hallucination's" not my word 'their" word. Then suddenly people go deaf and blind and go out of their way to not be available for the people living with these things.

I take a lot of pride in my ability to stand firm and move on when my psychological health is in turmoil, however it gets tiring and bothersome to not be able to talk about what is going on honestly. Now I will admit that I have two therapists who and a gp who are fantastic. It has taken a long time to find people that I trust enough to be completely honest with. As far as friends and family go I have given up trying. I just default to " I'm fine, how are you?" because at the end of the day they are not really asking me how I am going, they are just creating a segue into a conversation about them and how they are going.

The last time my mother visited I barely spoke, because as soon as I said something my story would be highjacked and turned into a story about her. It wasn't a bad experience as such, purely because I expect nothing less and therefore do not react and I respond in a skilled way that avoids any conflict.

I was talking with fellow peer workers today and we were discussing how we are sick of being viewed as lesser workers because of our mental health 'Status'. Many professionals view us as fragile snowflakes waiting to melt and the way they speak to us and about us can be quite upsetting. This is a systemic issue that still perceive mental health as you are either unwell, or well and awaiting the next meltdown. We were discussing that we rarely feel validated as professionals outside of our peer's because there is this systemic belief that we are not 'true' professionals. I am a qualified social worker, I had a gpa of 6.3 out of a possible seven ( I was hospitalised during this time and developed a neurological condition that leaves me with chronic pain and limited movement and worked and lived life). I have created, found funding for and facilitated numerous community projects and yet, people still talk at me or to me in a way that shows a) they never listen to a word I say and b) they are looking at me through a very narrow and dark tinted lens and this is reflected back at me via their responses to the things I say about my mental health. A lens that often views me as 'lesser' or 'fragile'.

Just Stop! I have been through a lot, still live with a lot AND I am also highly functional despite the crap I live with. When I speak about what is goin on it is not because I am falling apart ( unless I say otherwise) it is because I would like to talk about my life the way that others talk about theirs. I am not looking for answers or solutions, just for someone to be with me in that moment.

In response to: Re: Highly Functional, 'Highly Distressed': A person can be both!

Re: Highly Functional, 'Highly Distressed': A person can be both!

@Doc_Gonzo Do you think what you are talking about is a type of confirmation bias? Which is akin to what I was trying to say in an earlier post to you on my previous alias.

An example of people see and perceive what they want to, and even those with a more open mind, who perceive rather than judge, can fall prey to its folly.

In text (on the forum for example) it is far easier to succumb to it because we are in a position where we lack visual cues, but even face to face it can cloud interpretation unconsciously. Some people may do what you are describing with conscious intent; others may do it through thoughtlessness and/or because they are perceiving through a veil of confirmation bias.

Isn't it "funny" how we, the less understood, seek to understand 'them' more than they do "us"? That's a whole other side to what you have said, but your post brings it to mind and I see its relationship.

Of course with some people it can also be as simple as they just don't know how to act and would rather not deal with anything outside their comfortable cerebral cocoon.

Congratulations on leaving in your fiery radical activist mode 🙂 That has to bring a smile to your face.

In response to: Re: Highly Functional, 'Highly Distressed': A person can be both!

Re: Highly Functional, 'Highly Distressed': A person can be both!

@Spookytookims Confirmation bias may be a part of it. I would argue that it is a very complex picture with many faces.

If we were to dot point the numerous intersecting forces at play within responses than I think the list would be comprehensive.

- Confirmation bias -

People responding in a way that aligns with pre-existing belief sets. This in itself is a very complex scenario as once again there are numerous intersecting forces at play. Socialisation, media, neo-liberalism are just a few of the influences behind people developing confirmation biases. People can struggle to remove themselves from a situation and focus on others as this in itself is a genuine skill. This can lead to a lot of confusion as people get stuck on this is what worked for me, this is what I understand, this is what i believe etc, so therefore this must be what is happening for you and therefore if you do this, you will be fine. Our biases are one of many influences that are present in any given context.

- Skill level -

once again a very complex picture with many intersecting forces at play. I have said before it is a genuine skill to be able to listen and to respond. There are many absent but implicit influences in conversations such as gender, class, experience, knowledge etc, which are often in the background and always present. It would be impossible to name all the intersecting forces that are present in any situation and as a result so many of these things remain hidden. The level of knowledge a person brings to a conversation influences their ability to respond. If people are unaware of the many nuanced absent but implicit influences within any given space, than it is hard for them to be able to relate to people at a level that is congruent with that person's actual experiences. The broader and more comprehensive a person's knowledge base, the better equipped they are to respond ina validating way. (brief overview of a complex scenario)

- What is not being shared -

It is also impossible for a person to speak about their experiences in a way that clearly articulates every single aspect of what is influencing their experience at that point in time. The history of problems, the communities they reside within, every single experience they have ever had to name but a few, influence conversation, interpretation and perception. These things are always present, however they are not openly articulated by people so therefore there are always pieces missing from any conversation. This leaves gaps in information. So when a person is speaking they are often leaving information out of the conversation, which in turn limits the complexity of the experience the person is relaying. For a listener to be able to draw out the absent but implicit they must be aware that there are always absent but implicit pieces of the puzzle. It takes skill to engage in a conversation that draws out the absent but implicit. Often it involves utilising lines of questioning that are aimed at encouraging a person to connect with with their experiences in a broader way. This is once again a skill.

- Questioning vs assuming -

Assumptions are the bane of our existence. We all have high levels of knowledge that we have gathered throughout the years and as a result we have an leaning towards 'knwoing' rather that unconscious 'asking'. I find those who are the most skilled listeners are often the ones who ask questions to explore and to confirm, rather than those who take the position of an expert and assume that they know.

I could continue with this all day. I would appreciate others insights, so please feel free to join in

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