TheMoogeContributor
CPTSD re-triggered by physical health event & subsequent physical disability & looking for support
Hi, I recently experienced a serious and life-threatening medical condition, at one of my healthiest and fittest times of my life. That was 2mths ago. Since I've had another 'spontaneous' serious and life-threatening health event. Drs are puzzled. Doing pathology, imaging and making referrals to specialists to try to discover why, which I am grateful for.
In the meantime I have been left with a physical disability.
I used to exercise at high intensity x4 days a week and walk my dog for 1-1.5hr on the other days.
This was to help manage my CPTSD, ADHD & PMDD. I have trialled many medications over many years and had many adverse reactions with nothing so far helping.
The best management has been through daily high intensity exercise and excellent nutrition with some specific nutrients and herbal tinctures.
I am unable to walk properly and for long periods of time. I am breathless without exertion,it only needs to be a hot day and I feel lightheaded and dizzy. This is so frustrating for me, when I am used to being a very physically fit person, prior, only 2 months ago.
I have been told I do not meet access for NDIS, as my impairment does not meet the criteria for permenancy. I have been told that permenancy can only be established 6 weeks post event. It has been 2.
I do not accept that I will be permenantly disabled, and have been complying with physio rehab enthusiastically. Dr was positive that I may make a full recovery but also didn't give me false hope, citing the 6week mark as indicative of where I will likely 'stay' at.
Initially my family (husband and x2 teens) were slow to support me at home, as they were used to me being very physically active, energetic and hence would do most the home tasks. After some conversations (and consequences of deleting their streaming services) they are now helping (and have their services access back).
I am feeling though, like a 'dependent', which I do not like at all. I am a strong and independent woman who has built multiple small family businesses and enjoy an active social life.
I miss my beach walks and swims and ablity to jump in the car and take myself off to socialise.
My partner has pulled away physically as he states he 'doesn't want to hurt me'. I'm told him to be gentle with me and we can work it out, but its as if he is too scared and not sure what to do. I can't be arsed initiating because I'm always so bloody tired!
I can feel the PTSD re-triggering, as he went to initiate and I ended up in tears.
Also, my tired to teach my L plater to parallel park and I ended up having a panic attack (poor girl).
I'd love to connect with others who have experienced similar situations please