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CPTSD re-triggered by physical health event & subsequent physical disability & looking for support

CPTSD re-triggered by physical health event & subsequent physical disability & looking for support

Hi, I recently experienced a serious and life-threatening medical condition, at one of my healthiest and fittest times of my life. That was 2mths ago. Since I've had another 'spontaneous' serious and life-threatening health event. Drs are puzzled. Doing pathology, imaging and making referrals to specialists to try to discover why, which I am grateful for.

In the meantime I have been left with a physical disability.

I used to exercise at high intensity x4 days a week and walk my dog for 1-1.5hr on the other days.

This was to help manage my CPTSD, ADHD & PMDD. I have trialled many medications over many years and had many adverse reactions with nothing so far helping.

The best management has been through daily high intensity exercise and excellent nutrition with some specific nutrients and herbal tinctures.

I am unable to walk properly and for long periods of time. I am breathless without exertion,it only needs to be a hot day and I feel lightheaded and dizzy. This is so frustrating for me, when I am used to being a very physically fit person, prior, only 2 months ago.

I have been told I do not meet access for NDIS, as my impairment does not meet the criteria for permenancy. I have been told that permenancy can only be established 6 weeks post event. It has been 2.

I do not accept that I will be permenantly disabled, and have been complying with physio rehab enthusiastically. Dr was positive that I may make a full recovery but also didn't give me false hope, citing the 6week mark as indicative of where I will likely 'stay' at.

Initially my family (husband and x2 teens) were slow to support me at home, as they were used to me being very physically active, energetic and hence would do most the home tasks. After some conversations (and consequences of deleting their streaming services) they are now helping (and have their services access back).

I am feeling though, like a 'dependent', which I do not like at all. I am a strong and independent woman who has built multiple small family businesses and enjoy an active social life.

I miss my beach walks and swims and ablity to jump in the car and take myself off to socialise.

My partner has pulled away physically as he states he 'doesn't want to hurt me'. I'm told him to be gentle with me and we can work it out, but its as if he is too scared and not sure what to do. I can't be arsed initiating because I'm always so bloody tired!

I can feel the PTSD re-triggering, as he went to initiate and I ended up in tears.

Also, my tired to teach my L plater to parallel park and I ended up having a panic attack (poor girl).

I'd love to connect with others who have experienced similar situations please

3 replies

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In response to: CPTSD re-triggered by physical health event & subsequent physical disability & looking for support

Re: CPTSD re-triggered by physical health event & subsequent physical disability & looking for support

@TheMooge hi TheMooge about 3 years ago now i was diagnosed with uti, sepsis, pnuemonia and cellulitis. i also have atrial fibillation of the heart. i cannot remember much. i dont want to tbh. i am now getting my health back losing weight slowly but surely. i too used to be super fit but it began to be an obsession which is not healthy. it was my way to control my spirilling life. i'm here if you need to vent. bunx

In response to: CPTSD re-triggered by physical health event & subsequent physical disability & looking for support

Re: CPTSD re-triggered by physical health event & subsequent physical disability & looking for support

Hi @TheMooge

Thank you for sharing your story with such raw honesty. It is incredibly clear that you are a person of immense strength - someone who has built businesses, raised a family, and managed complex neurodivergence and trauma with discipline and grit. To have your "engine" (your physical health) suddenly stall when you were at your peak is not just a medical event; it is a profound loss of identity.

Moving from being the high-intensity, "do-it-all" person to feeling like a "dependent" is a form of grief in itself. It makes so much sense that you feel frustrated. You haven't just lost your mobility; you've lost your primary tool for regulating your ADHD and CPTSD. When exercise is your medicine, being sidelined feels like being stripped of your armour.

The panic attack with your daughter and the tears during intimacy are signals from a nervous system that currently feels unsafe in its own skin. When our bodies fail us, our old traumas often "speak up" because the sense of control has been taken away. Please be gentle with yourself, your brain is currently working overtime to process medical mystery and physical limitation; it has very little "buffer" left for high-stress tasks like teaching driving.

I want to say that it is impressive that you took such decisive action with streaming services to reset the household expectations. While you hate feeling dependent, you are actually teaching your family a vital lesson of reciprocity and resilience. Their "slow start" in supporting you is likely a reflection of how effectively you've carried them in the past - they are learning a new rhythm just as you are.

As for the NDIS and medical "wait and see" periods (or, as I call it, Limbo), these are notoriously cold and bureaucratic. It is exhausting to be told to wait for a 6-week mark when you are living through the intensity of the "now." Hold onto that "enthusiastic rehab" spirit, but allow yourself space to be "bloody tired" too. You don't have to be a "warrior" every hour of the day. This is all being said by someone who is multiply disabled and neurodivergent (including CPTSD), who is a carer for my disabled and neurodivergent partner, and has helped them get onto DSP (still trying to get them onto NDIS though).

You are not alone in this in this journey 💚

In response to: Re: CPTSD re-triggered by physical health event & subsequent physical disability & looking for support

Re: CPTSD re-triggered by physical health event & subsequent physical disability & looking for support

@MatchaToad, wow, thank you! Your kind, validating words brought me to tears.

Yes, it does feel like loss of identity, thank you for those words!

Tha k you for extending empathy to my family too, as 'slow start' is a great way to describe how their actions were. They, rightly, have an adjustment period too of their partner and mother being different to the one they've known and relied on. I have tried to empathise with them and that is difficult when we are all going through this together.

I hear you that this is a marathon, not a sprint. I am hoping that I do not need further services and am doing everything, including the resting, I can to recover.

Thanks again!

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