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Flutterbug9’s space

Flutterbug9’s space

After few chats with Tyme earlier this year plus recent posts on different threads about my physical health these year I’ve decided to set up this thread.

background summary

In my early 20’s I was first diagnosed with having OA, third generation to be diagnosed with OA. Im now early 60’s and have moderate to severe OA is various joints, worst being my entire spine. Late last year I started having quite painful OA flare ups which included feeling like one section of my lower back was on fire (caused by inflammation) and struggling to use my hands. All possibly options for treatment/pain relief available to my GP were having little or no impact. Earlier this year I was referred to local pain management clinic with initial appointment with Dr MK, my pain management Dr, in approx June this year.

Since initial appointment with Dr MK I have had diagnostic test which was found to be successful in pin pointing the nerves causing pain in my lumber area and have had RFA which helped reduce some of my pain to a level that deemed the procedure successful.

during post RFA review appointment with Dr MK it was mutually agreed on to continue with referral for infusion which involved me being in pain management ward at local hospital for entire week. Infusion, if successful, to eliminate all pain (or reduce even further pain levels).

First week of December 2025

downside of the infusion can be variety of side effects. I packed (ended up over packing) variety of things for a ‘if I’m affected by all side effects’. Side effects I had a different times during the week - overwhelming need to sleep immediately, unsteady on my feet, headache, blurred vision, feeling of thick head (similar to really bad head cold head), loss of interest in / inability to concentrate on things, teary (all normal side effects). Each evening Dr MK visited me answering any questions, providing reassurance and information in easy to understand words.

discharged from hospital this morning, advised not to drive, handle cash or make important decisions etc for 48hours. Came home feeling tired and bit unsteady on my feet, normal reactions.

ive been home for approx 7hrs by now. Feeling much better within myself. Main thing, feeling almost 100% pain free (getting occasional stab of pain into lumber spinal area. Haven’t feel so good (ie pain free) whilst sitting and working around for approx 12months. It’s not a permanent fix and unknown how long I will have the benefit for. Knowing this is very low priority for me. Still can’t believe my entire spine is pain free. 😍😍

@AlwaysMyself @Bunniekins @Chasingsunsets @Blackcloud @tyme @Jynx @MissGremlin @Cuddlebear @heartathome @Captain24 @REDLINEZ750 @AuntGlow (hoping I’ve tag everyone who has supported me recently, apologies if I have missed anyone. Please feel free to tag if I’ve missed anyone)

92 replies

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In response to: Flutterbug9’s space

Re: Flutterbug9’s space

At times I forget what the specialist said which is to stay within certain boundaries @AlwaysMyself

have spent 90mins in the garage (another shuffle and reorganise), mainly moving things plus bending over. Back niggled few times prior to getting very sore.

lunch time prior to couch and cuddle time with cat/s (colouring in if no one wants a nurse).

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

@AlwaysMyself @Chasingsunsets @Ru-bee @MissGremlin @Captain24 @AuntGlow

post infusion review went well this morning.

specialist very happy with amount of pain reduction.

booking made for May for next infusion due to availability.

specialist advised next infusion can be done anytime after mid April, pending availability plus my pain levels. Am on cancellation list, as back up.

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

I’m glad that it’s working for you @Flutterbug9

Does that mean you have to go to hospital again?

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

sending morning hugs @Flutterbug9 and sitting with you with a coffee 😍

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

The infusion and nerve blocks I have done don’t last forever @Captain24

nerve block provides pain relief benefit for minimum 12mths, (most people) maximum 2years.

Duration of pain relief from the infusion varies from person to person. Specialist this morning said benefit of infusion can last as short as 3mths, maximum 12mths.

based on information from specialist this morning regarding minimum length of time between infusions, I can be looking at week in hospital once, twice or three times a year. Nerve block is an overnight stay only, thank goodness.

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Hi @Flutterbug9, thanks for your update, I am really glad to hear your post infusion review went well, I am also really glad to hear post infusion your pain levels have improved 🙏☀️

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Hello @Chasingsunsets @Flutterbug9 @Captain24 @Shaz51 @AlwaysMyself ,

Great to see you all.

@Flutterbug9 , hope your pain eases a bit. How's your lego going?

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

hello @tyme , @Flutterbug9 , @Chasingsunsets , @Captain24 , @AlwaysMyself 😎

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Hi @tyme

I suspect I might have been doing too much during the last couple of weeks.

Last couple days bending over from the waist causing lots of pain. Short term in duration however very strong pain level wise.

Google research I’ve done shows various websites saying initial infusion might only last 4 weeks.

Lego currently on hold as have been moving furniture, decluttering garage and front room.

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Moving furniture is painful without the infusions, let alone having gone through treatment! Look after yourself and go easy.

But then again, I have to say WOW! I LOVED your photos of your lego. I went back and re-read all the posts and saw your pics. How awesome!

I wish I could lend you a hand with moving furniture. @Flutterbug9 LOL.

Great to see you anyway. Happy to be back in forumsland

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