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Flutterbug9’s space

Flutterbug9’s space

After few chats with Tyme earlier this year plus recent posts on different threads about my physical health these year I’ve decided to set up this thread.

background summary

In my early 20’s I was first diagnosed with having OA, third generation to be diagnosed with OA. Im now early 60’s and have moderate to severe OA is various joints, worst being my entire spine. Late last year I started having quite painful OA flare ups which included feeling like one section of my lower back was on fire (caused by inflammation) and struggling to use my hands. All possibly options for treatment/pain relief available to my GP were having little or no impact. Earlier this year I was referred to local pain management clinic with initial appointment with Dr MK, my pain management Dr, in approx June this year.

Since initial appointment with Dr MK I have had diagnostic test which was found to be successful in pin pointing the nerves causing pain in my lumber area and have had RFA which helped reduce some of my pain to a level that deemed the procedure successful.

during post RFA review appointment with Dr MK it was mutually agreed on to continue with referral for infusion which involved me being in pain management ward at local hospital for entire week. Infusion, if successful, to eliminate all pain (or reduce even further pain levels).

First week of December 2025

downside of the infusion can be variety of side effects. I packed (ended up over packing) variety of things for a ‘if I’m affected by all side effects’. Side effects I had a different times during the week - overwhelming need to sleep immediately, unsteady on my feet, headache, blurred vision, feeling of thick head (similar to really bad head cold head), loss of interest in / inability to concentrate on things, teary (all normal side effects). Each evening Dr MK visited me answering any questions, providing reassurance and information in easy to understand words.

discharged from hospital this morning, advised not to drive, handle cash or make important decisions etc for 48hours. Came home feeling tired and bit unsteady on my feet, normal reactions.

ive been home for approx 7hrs by now. Feeling much better within myself. Main thing, feeling almost 100% pain free (getting occasional stab of pain into lumber spinal area. Haven’t feel so good (ie pain free) whilst sitting and working around for approx 12months. It’s not a permanent fix and unknown how long I will have the benefit for. Knowing this is very low priority for me. Still can’t believe my entire spine is pain free. 😍😍

@AlwaysMyself @Bunniekins @Chasingsunsets @Blackcloud @tyme @Jynx @MissGremlin @Cuddlebear @heartathome @Captain24 @REDLINEZ750 @AuntGlow (hoping I’ve tag everyone who has supported me recently, apologies if I have missed anyone. Please feel free to tag if I’ve missed anyone)

92 replies

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In response to: Flutterbug9’s space

Re: Flutterbug9’s space

*hugs @Flutterbug9 * i remember seeing your comments about how that word triggers you. I make a conscious effort not to use the word, and especially not with regard to any person - it is a strong word.

I am glad @Ru-bee has been able to look into the posts issue and emailed you 😊 thank you RB.

Is there a way I/we can help you if you do decide to stay on the forums (which is totally your choice and i will respect and support whichever decision you make) if we see the triggering word in a post?

I mean, obviously not tagging you in posts/threads where it it being used is one way I can think of! But beyond that?

I'm sorry that parents yelled it at you as a child and teen. You did not deserve that. You deserve to be loved and cared for, especially as a child/teen. Do you have someone you work through the trauma with? *big safe caring hug*

In response to: Flutterbug9’s space

Re: Flutterbug9’s space

Support button not working! 😤

I'm not sure what the H word is (I thought of Wh***) but whatever it was, I know it wouldn't have been good if you're getting flashbacks and not wanting to go to sleep! So much damage done in childhood! 😔 Now the healing is left for us to navigate! Are you okay @Flutterbug9 ? 💛

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Really hurting @heartathome

H word = H8. (Say it out aloud). Opposite of love

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

You don't deserve to hear that word! @Flutterbug9 No one does! Sorry I didn't catch on, and you had to explain it! It breaks my heart to hear you had to listen to that as a teenager! That must have crushed your soul, being told that over and over again! Being a teenager is hard enough in itself. I find it amazing how deep childhood (teenager is a child) trauma affects me fifty years later. It doesn't control me anymore, but I can still get triggered. I'm not triggered at all and you're not too much (promise) but am wondering if you need one of the peer workers at the moment. I'll tag them for you if you want.

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Just sat down post-work and post-dog-feeding.

Wondering how you are now @Flutterbug9 ?

I see 2-3 hours ago you weren't feeling good. *hugs*

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

I met and spent approx 1hr with new psychologist this morning. One huge weight off my mind.

still have other things I need to spend time trying to process and deal with associated nervous tension. @AlwaysMyself

Ill be back on the forums, even if only just to post to affirmations

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Hey there @Flutterbug9 just passing though and wanted to check in to see how you are going 💜🙏

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Last time I was awake this morning was 5:30am. Outside not long after trimming Coastal Rosemary.

Few hours and day is done

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Hi @Flutterbug9 I’ve just had a bit of a nap, just woken up.
I’ll have to google what coastal rosemary is 😊

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

@Chasingsunsets @Flutterbug9

Im guessing its a type of Rosemary that grows at the coastal areas?

How that differs to other rosemary i have no idea 🤣🤣🤣

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