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Managing relationships

Advice for carer about sister with Bipolar

Advice for carer about sister with Bipolar

Hey everyone, first time poster here! I was referred by a mental health professional at the psych ward my sister is in. She has suffered from bipolar for around 3 years. Two major manic episodes - we are currently in our second. Both times I (sister, 12 years younger) have been the one to convince her to go to the emergency room. I am feel so burnt out and jaded by the sister. Can anyone offer any positive stories about managing bipolar? Any tips or tricks for carers? Open to discussing anything positive, can't take anymore negativity!

9 replies

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In response to: Advice for carer about sister with Bipolar

Re: Advice for carer about sister with Bipolar

Hi @amrh90

I don’t have much to offer really but I do have bipolar II. I don’t really get manic episodes but I do get hypomanic ones. I suffer more with the depressive episodes.

Currently my bipolar is pretty well managed. I’m on a lot of medication and take them as recommended religiously! I do have depressive episodes even though I’m medicated but since adding adhd medication it seems to be a little better.

My last hospital stay the changed my medication around and it helped some what.

I see a psychologist regularly and my GP. They monitor my moods and symptoms. My psychologist picks up things before I do. Does your sister have professional support?

As for a carer I really don’t know. I deal with it on my own and don’t really have any family support just professional support.

In response to: Re: Advice for carer about sister with Bipolar

Re: Advice for carer about sister with Bipolar

@Captain24

Thanks for your response. I'm so happy to hear you've been able to manage mostly! I'm sorry you don't have any family support - I can imagine that must be hard. My sister is lucky to have a couple of us rooting for her. She does have a mental health team but it seems she continuously falls through the cracks. She is a social worker herself (hasn't worked in 5 years) so is able to present quite well and talk the talk. It's very clear to me why suicide rates are so high around the world, mental health support isn't nearly as accessible as it should be.

I wish you a life full of balance and love x

In response to: Re: Advice for carer about sister with Bipolar

Re: Advice for carer about sister with Bipolar

@amrh90

Hi and welcome to the forums. I have bipolar 1 and suffer from both manic episodes and depressive lengths of time. I was diagnosed in 1990 and was hospitalised twice then. I went off my meds in 1991 and stayed out of hospital till 2008 despite being quite unwell. In 2008 had a massive manic episode and was in and out of hospital several times a year till 2020. Unfortunately for me I hate taking medications. I would take them, feel better, go off them, then end up back in hospital. Over the years and after about 3 times doing that I learnt that I need to continue with daily medications no matter how I feel. In 2020 after a pharmaceutical review of my case they changed my meds and I have been quite well since then. I have had a couple of little wobbles last year and this year but they were well managed and I didn't end up in hospital. Recovery is very possible, and while your sister will never be without bipolar she can live a very normal life and even work again if that is what she wants. It is very difficult for carers especially when the consumer is very unwell. I have put my husband through hell at times. I feel so guilty now but I cannot change the past. Try not to judge your sister for things she says and does when she is unwell. That is not really her. It's almost like a completely different person comes to stay a while and we don't really like them at all. Her perception changes and things that seem bizarre make perfect sense to her. Just love her through it. I know it is a difficult time for you and the rest of the family. Please put some self-care in place for yourself. Good luck.

In response to: Re: Advice for carer about sister with Bipolar

Re: Advice for carer about sister with Bipolar

@Oaktree

Wow that was really helpful. I do daily reminders that a lot of the things she says to me she doesn't mean. She has been in and out of psych wards since 2020 when her marriage broke down. I really feel for her. I will continue to love her through it and show up for her. I try to keep things light when I visit her in the ward, try to dance with her and play ping pong too. She doesn't sit still and talks constantly!!

In response to: Re: Advice for carer about sister with Bipolar

Re: Advice for carer about sister with Bipolar

Hi @amrh90 ,

So glad you have connected with the community here. A little hint that when you respond to members, you can tag them in so they get a notification of your post e.g. @Oaktree @Captain24

In response to: Re: Advice for carer about sister with Bipolar

Re: Advice for carer about sister with Bipolar

When I was with community health I kept falling through the cracks as well. I presented fine so the didn’t really believe what I was saying. @amrh90. I looked and sounded ok so it wasn’t believed that I was in crisis. I just kept getting told there was sicker people.

My whole world changed when I went all private. It is really expensive but the best thing that has happened to me. My psych listens to what I’m saying and reads my body language not the way I present myself. She reads between the lines.

As for family, it’s been like it always. I’ve always hidden what is going on for me from them as they never would understand and also don’t see that there is a problem because I work full-time and mask so well.

In response to: Advice for carer about sister with Bipolar

Re: Advice for carer about sister with Bipolar

Hi @amrh90

Thank you for being brave enough to share what you have been going through. First and foremost, I wanted to recognise that you are doing the absolute best you being there for your sister and getting her the help that she needs. That is a huge act of love, compassion and effort, and I want to say that I am very proud of you (from one carer to another).

I used to be a carer for my older sibling, who lives with various conditions, including BPD, although it is not Bipolar, I thought I'd share some advice and support from my own experience as a carer.

It is so important that you prioritise your own wellbeing right now (which can be really hard to do for us carers), but you can't pour from an empty cup! A few things I recommend include:

- Setting Firm Boundaries: This can be really hard to do, but it's important that we do set boundaries. You are allowed to say "no" to things that deplete you, and you are allowed to take breaks.

- Having Your Own Supports: When I was a carer, I was unfortunately alone and had no supports in place for myself, which was not good for my overall mental wellbeing. Coming on here is a fantastic start to building supports! I recommend looking online for local/nationwide carer support groups, e.g. Carer Gateway.

- Scheduling "Me Time": prioritising self-care prevents burnout! Make sure to find time each day to do something nice for yourself, whether that is going for a walk, watching a comfort movie, or ordering a bit of takeaway.

Please know that you are not alone!

In response to: Advice for carer about sister with Bipolar

Re: Advice for carer about sister with Bipolar

Hi @amrh90

cc: @Captain24, @MatchaToad, @tyme, @Oaktree

Hi @amrh90

I would like to reiterate what @MatchaToad advises about making your wellbeing as independently stable and supported as much as possible.

I don't have any diagnosed mental health (MH) issues, but I am in a fractious relationship with someone that has a complex PTSD and has had various diagnoses of BPD, bipolar and cPTSD.

From what I have experienced, much of her perception of the relationship is just like a normal person to some extent, except it is turned up to '11'. She has struggled to relate in times of stress and conflict, where much of the triggers are understandable but just confused. And I have very little capacity to present a coherent reason as to why she is mistaken. It is tragic that I cannot just get her to listen to me when she reasons about the world around her, and particularly my perspective of what is going on. It is particularly frustrating when her reasoning is just a simple misunderstanding of technology or timelines. This is just the way she is when she is stressed. However, I know enough of how her mind works under stress and the triggers that 'set her off'. But even still, it is difficult to let her wind down without being triggered myself. So the advice that was listed about boundaries, etc.. are absolutely essential. I would also add that if you can add to all of those points one of 'consistency', I think it really helps in making conflict quicker to eventually resolve.

The other point I would add is a little more harder to build a coherent framework about. I don't know if I can do it justice, and it is probably because I am still working it out as I go. In a nutshell, I think the opening statement that I wrote has some merit: that your sister is just like us but her internal processing is turned up to '11'. And if there is some merit to that, then there is the possibility that we are able to also work along side them; you with your sister and me with my partner.

A long time ago I somehow got my hand on a self-help book called "If you meet Buddha on the road, slay him" by a psychologist called Sheldon Kopp. He quoted a allegory about two different outcomes when two different travellers come across a rural village that is in a state of panic. As the story went, when the first traveller comes across the villagers, he found them cowering at the edge of a vegetable crop. On hearing of their lamentations, he understood that they were all scared that a monster was lurking in their crop. On investigation, the stranger found that instead of a monster in the crop, there was merely an overgrown pumpkin. These villagers were ignorant of such a vegetable, and so the stranger tried to console them and educate them on the benefits of such a vegetable. However, he made no impact on their panic and confusion, so he used a scythe to server it from it's vine and then split the pumpkin into two to revel the flesh. Although he tried to explain that it was a tasty source of food, the villagers couldn't listen and reasoned that if the stranger so easily slayed the monster, that they themselves could be in danger. And so in defence, the villagers chased the stranger outside the boarders of the village. The next day, another stranger came across the same fearful villagers, but instead of trying to reason with them, he understood their panicked frame of thinking, and behaved as they did. He pretended to cower, snuck away with the villagers and sheltered in their homes. Eventually, once he had established trust, he was able to calmly communicate his experience, and of course, the story ends with the villagers utilising the vegetable into the farming and diet.

I think this tale relates to two different approaches that I have used with my partner, and with some of the same failure and success as was concluded the tale.

I have found that if I have external stability and boundaries that shield some of the ramifications of the conflict with my partner in her 'altered state', it is possible to 'travel' with her without being distressed by her destructive behaviour and confused perception. It requires the safe-space infrastructure that @MatchaToad listed to ensure that I am not derailed and that the normal necessities of mortgage repayments, etc are all serviced in the 'real' world. But if I have that structure, then my own thinking and engagement also is altered, too. And furthermore, I benefit from this engagement.

I think in my relationship, I am beginning to understand that much of her experience has led her to act in much the same way as those villagers. Although outwardly her behaviour reads as dominant and harmful, the more I understand the links between her current thinking and her past, the more I understand her behaviour as merely panicked and defensive. In our worse case scenario where I do not consider this quiescent power dynamic, we are triggered by each other and our conflict spirals out of control. In reality, my position is much more stable and without the burden of PTSD. As such, I am actually the dominant one when she is acting as the 'dominant one in conflict'. The more I emulate the second stranger, the more I can balance the dynamic and the better we resolve the conflict and strengthen the bonds in our relationship.

But reasoning is easier on paper than it is in the middle of a crisis. It is easy to get triggered and become defensive myself. However, if this is just 'normality turned up to 11', then there would be the same misunderstandings in the larger social space. And that is what I am hypothesizing: our society is replete with power dynamics and national narratives that make us within that 'normal' bell curve the villagers, not either of those strangers. Just look at the national condoned position of Zionism verses Palestinians, or all the wars that we are in against demonised brown people. And that is just the tip of the iceberg. I'm convinced that if either of us was privileged to be analysed by Karl Jung brought back from the dead, we would both be convinced that there was a myriad of unconscious drivers that our consciousness suppresses, but our psyche are composed of.

And so in some way, our relationship to our sisters and partners are a way for us to come to terms with ourselves, as much as a possibility of reconnecting with our panicked and distressed loved ones.

It is just a thought, and it is possibly just a wish. But perhaps there is some merit in this conception.

Best of luck, @amrh90

In response to: Re: Advice for carer about sister with Bipolar

Re: Advice for carer about sister with Bipolar

Thank you for sharing @J_Oz , it was a really insightful read.

How have things been going for you lately anyway?

@amrh90 , how are you as well?

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