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Advocating for change

Collectively advocate for ourselves, directly to federal government - can we do it?

Collectively advocate for ourselves, directly to federal government - can we do it?

I've been reading through these forums and across the internet in general and I think it's fair to say there's pretty good evidence that mental health support for too many is inadequate. For some, it's just not available.

For those of us affected, we're poignantly aware of it. Psychiatrists and psychologist are aware of it. GPs are aware of it. The federal government itself has got to be aware of it in one way or another.

There seems to be token gestures made by government to increase funding or services. Those of us who need the support know that what's available, or has been announced, falls so far short of anything that would make a difference.

I'm sure there's plenty of advocacy groups and professionals lobbying the government for change. But has any substantial change actually occurred? I'm sure there's people who can rattle off funding figures or new services announced, but the truth is it's not making a difference on the ground.

For a long time I've been politely asking my doctor, psychologists and other services if there's anything else available to me, what other options are there to pursue. But there is just a lack of services and funding and it's always a dead end. It's a confusing, limited, patchwork of a system that becomes a burden and a stress to vulnerable people. Vulnerable people that are just trying to hold on, let alone jump through hoops and cough up money they don't have.

I've kind of just sat back waiting for the professionals and experts to drive change because who am I to suggest changes? I've struggled my whole life. I can't count the number of days I couldn't even manage to have a shower, let alone drive national systemic change. But what if us - the people who live it day in day out - collectively, are the experts? What if we all stood up for ourselves and made our voices heard?

My thoughts are a letter writing campaign directly to the Minister for Mental Health and the Minister for Health. If we could get a couple thousand of us to unite and inundate them with our stories of struggle. Make it clear as day how hard it is to get by, navigate the system, and feel let down, ignored and forgotten, over and over again. I'm not talking letters of rage or blame or finger pointing. I mean genuine letters, sharing our stories, detailing our struggles, appealing to the humanity of the people in a position to change things. I don't know how comfortable others would be with this, but even popping a photo of ourselves in the letter (or email), so they can see a name and a face to each story. We're not just statistics and figures.

Letters from carers, family and friends could be just as powerful. It could point out that each case of mental illness doesn't just effect the person. It has radiating consequences that flow on to those around them.

I can't claim to know the motivations of politicians and how they come to make the decisions that they do. I have a feeling a person would need to stow away a fair bit of empathy to get anywhere in politics. But I'd like to believe they're still human, and I want to try and hold on to some hope in humanity.

The letters (or probably emails), could CC in other ministers, media outlets and others to make sure the message is out and not being pushed under the rug. I'm not a user of social media but a hashtag could maybe get the word out there, and that hashtag included in the subject line of each email to make it clear its a collective message.

I know its ambitious. I don't know how many people would have to write in for it to make a difference. I'm guessing it's a lot. I'm sure it's no small task to unite that many people towards the same goal. I'm sure there's people on this forum that don't even agree that I have a point. I was just reading a post on here earlier by someone who said people who committed suicide were no loss to the economy because they probably didnt work and cost the government more money than they generated (which i found very misguided and misinformed - I've nearly always worked despite my struggles, I pay taxes, and its always been so much more difficult for me to do my job than my peers - but hey, we learn to mask and people probably don't even know our struggles.)

I'm just a bit tired of sitting around waiting for something to change. Its kind of hard to make this post because I know how disappointed I'd be if it all just fizzled or someone shot me down. It'll probably be even harder for each and every person to be open and vulnerable in a letter to a government department. I just need to believe that change is possible and there's something that can be done. That there's something we can do from our own seemingly voiceless positions.

I know I've just written a lot, but there's more I can say on all this. I'm hoping to hear from anyone who thinks this idea has any merit.

5 replies

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In response to: Collectively advocate for ourselves, directly to federal government - can we do it?

Re: Collectively advocate for ourselves, directly to federal government - can we do it?

I look forward to reading what the community shares @StillTrying

In response to: Re: Collectively advocate for ourselves, directly to federal government - can we do it?

Re: Collectively advocate for ourselves, directly to federal government - can we do it?

Hearing you about the need. Good on you for @StillTrying . Love your name.

Your sense of expertise and advocacy are great.

Hmmm. I did write a letter last year to the Federal minister for Health… I need to be careful re anonymity and all that. Did not get a satisfactory answer.

But letters from others may work on her conscience.

In response to: Re: Collectively advocate for ourselves, directly to federal government - can we do it?

Re: Collectively advocate for ourselves, directly to federal government - can we do it?

Hi @Appleblossom

I'm sorry your letter didn't get a good enough response. Unfortunately, I don't think the letter from one person will be enough to drive change. It should be. The suffering and pain of even one human life should get the attention it deserves. Especially from a publicly elected official who's responsible for that concern. I don't think a letter from a handful of people, or possible even a hundred would make enough impact.

I think it'd take a really high number of people writing in for the government to take notice. But there are tens of thousands, if not more, people in Australia with complex mental health needs that aren't getting the support they need. Add on to that the carers, family and loved ones of those struggling - thats got to be a high number of people who are frustrated and want to see change. If every single one of them wrote in, there's no way they could be ignored.

I'm fairly conscious that most of us in this position are downtrodden and probably feel defeated. I kind of just think its worth the effort. I don't think the government is going to just turn around out of the goodness of their heart and invest the billions of dollars needed to fix the system. They've got to be made abundantly aware that things as they stand just do not work. They have to be made aware that there's a common consensus across the board that we're not going to just accept it as it is. It needs changing, it needs fixing, it needs funding. We are human beings, we are suffering, we deserve dignity, respect and hope.

In response to: Re: Collectively advocate for ourselves, directly to federal government - can we do it?

Re: Collectively advocate for ourselves, directly to federal government - can we do it?

@StillTrying

hmm

I like this approach. In my 20s I used to be part of a consumer advisory and advocacy group that worked on systemic change in the state I used to live in. It was the only lived experience voice used in amending the mental act at the time and other government initiatives around mental health. Im not sure what that organisation is up to now or if it still even exists.

Agencies like the one i used to be in shouldn't be the only input into how services, supports and the government decide how to help the people experiencing the services they deliver. I have always thought that people on the ground need a say in how services and support is delivered. And not just from people who have come through their struggles to 'the other side' and in a place of recovery.

Its nearly like we a #metoo movement for mental health experiences. How having the right mental health supports is needed for positive outcomes. Mental health isnt about the costs but actual people struggling, its about letting people know they arent alone, that they matter and they are worthy of support.

I think there is also a big emphasis on suicide prevention campaigns, but for me that money goes to all the wrong places. Im not saying suicide prevention isnt important, but that care is needed earlier and more importantly sustained before and after the crisis point.

Im not sure how to create a campaign, more so a movement, to get people to share their voices and experiences of a broken mental health system. I feel sometimes our voices can also get shut down for fear of negative experiences impacting someone's ability to reach out in the first place. I.e that I can't say I had a bad experience with a psychologist or psychiatric care in case it stops people for engaging with professionals when they are in vulnerable positions. Same with suicide. I fear that, the fear of talking about suicide puts suicide into other people's thoughts is damaging, it demonises suicide and leaves people struggling scared to talk about there experiences for fear of being shut down.

We need a way to talk about the issues and experiences in a way that allows people to say, im a person, im not a statistics, things arent working. But done in way that encourages change and actively drives the government to act.

Im not sure how we could do it, but I think it can be done. Sane is in a good position to get the word out but there would have to be a lot of thought behind how to market and promote it, in a way that is to drive change and solutions not just be an echo chamber of everything wrong.

Im not sure if that makes sense, just a few of my thoughts

In response to: Re: Collectively advocate for ourselves, directly to federal government - can we do it?

Re: Collectively advocate for ourselves, directly to federal government - can we do it?

Hi @The-red-centaur

Thanks for your thoughts. It's encouraging to hear that you also can see the benefit in the voices of lived experience.

Out of curiosity, do you remember any of the outcomes from the advocacy group you were a part of? It would be interesting to know of things that have been accomplished in the past.

I dont know if I'm just getting cynical over time, but I think the suicide prevention campaigns and whatever else are just token gestures to make it look like things are being done with minimum effort from the government. They can dump some funding into another organisation, make them do all the work and try and get some brownie points for spending some money. I really hope those services are helpful and do save lives. As far as I'm concerned they have absolutely no relevance to me whatsoever. I could talk at length as to why but I'm sure others can relate without having to go in to detail.

When you say our voices get shut down, do you mean actively by outside people, or we shut our own voices down because of fear of the consequences? It'd be very disappointing if people were deliberately censoring things because it seems unseemly or reveals uncomfortable truths.

I think thats a good point about not creating an echo chamber. That's where I'm at now. I'm sick of complaining and feeling frustrated. I'm pretty passionate about it and would like to focus that energy on actually getting something done. Part of me also thinks that we'll never get anything out of government and we should just create the services we need ourselves. Funding would always be an obstacle though. Everything costs money and nothing can be undertaken for free. I don't know, I just want something done.

If Sane was willing to create the space to collaborate and facilitate our ability to speak up and be heard, I'd be 100% in. I'm sure if we got a whole bunch of heads together there'd be a multitude of great ideas. Hopefully working together and spurring each other on would lead to action.

It all made plenty of sense and it was great to read your thoughts.

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